Religious Perspectives on Precision Medicine in Singapore

Precision medicine (PM) aims to revolutionise healthcare, but little is known about the role religion and spirituality might play in the ethical discourse about PM. This Perspective reports the outcomes of a knowledge exchange fora with religious authorities in Singapore about data sharing for PM. W...

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Autores principales: Toh, Hui Jin, Ballantyne, Angela, Ong, Serene Ai Kiang, Sankaran, Chitra, Tay, Hung Yong, Singh, Malminderjit, Zaidi, Raza, Chia, Roland, Singh, Sarabjeet, Samachittananda, Swami, Shi, You Guang, Tan, Zhixia, Lysaght, Tamra
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Springer Singapore 2021
Materias:
Perspective
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8486897/
https://www.ncbi.nlm.nih.gov/pubmed/34611464
http://dx.doi.org/10.1007/s41649-021-00180-4
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author Toh, Hui Jin
Ballantyne, Angela
Ong, Serene Ai Kiang
Sankaran, Chitra
Tay, Hung Yong
Singh, Malminderjit
Zaidi, Raza
Chia, Roland
Singh, Sarabjeet
Samachittananda, Swami
Shi, You Guang
Tan, Zhixia
Lysaght, Tamra
author_facet Toh, Hui Jin
Ballantyne, Angela
Ong, Serene Ai Kiang
Sankaran, Chitra
Tay, Hung Yong
Singh, Malminderjit
Zaidi, Raza
Chia, Roland
Singh, Sarabjeet
Samachittananda, Swami
Shi, You Guang
Tan, Zhixia
Lysaght, Tamra
author_sort Toh, Hui Jin
collection PubMed
description Precision medicine (PM) aims to revolutionise healthcare, but little is known about the role religion and spirituality might play in the ethical discourse about PM. This Perspective reports the outcomes of a knowledge exchange fora with religious authorities in Singapore about data sharing for PM. While the exchange did not identify any foundational religious objections to PM, ethical concerns were raised about the possibility for private industry to profiteer from social resources and the potential for genetic discrimination by private health insurers. According to religious authorities in Singapore, sharing PM data with private industry will require a clear public benefit and robust data governance that incorporates principles of transparency, accountability and oversight. SUPPLEMENTARY INFORMATION: The online version contains supplementary material available at 10.1007/s41649-021-00180-4.
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spelling pubmed-84868972021-10-04 Religious Perspectives on Precision Medicine in Singapore Toh, Hui Jin Ballantyne, Angela Ong, Serene Ai Kiang Sankaran, Chitra Tay, Hung Yong Singh, Malminderjit Zaidi, Raza Chia, Roland Singh, Sarabjeet Samachittananda, Swami Shi, You Guang Tan, Zhixia Lysaght, Tamra Asian Bioeth Rev Perspective Precision medicine (PM) aims to revolutionise healthcare, but little is known about the role religion and spirituality might play in the ethical discourse about PM. This Perspective reports the outcomes of a knowledge exchange fora with religious authorities in Singapore about data sharing for PM. While the exchange did not identify any foundational religious objections to PM, ethical concerns were raised about the possibility for private industry to profiteer from social resources and the potential for genetic discrimination by private health insurers. According to religious authorities in Singapore, sharing PM data with private industry will require a clear public benefit and robust data governance that incorporates principles of transparency, accountability and oversight. SUPPLEMENTARY INFORMATION: The online version contains supplementary material available at 10.1007/s41649-021-00180-4. Springer Singapore 2021-09-06 /pmc/articles/PMC8486897/ /pubmed/34611464 http://dx.doi.org/10.1007/s41649-021-00180-4 Text en © The Author(s) 2021 https://creativecommons.org/licenses/by/4.0/Open AccessThis article is licensed under a Creative Commons Attribution 4.0 International License, which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons licence, and indicate if changes were made. The images or other third party material in this article are included in the article's Creative Commons licence, unless indicated otherwise in a credit line to the material. If material is not included in the article's Creative Commons licence and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this licence, visit http://creativecommons.org/licenses/by/4.0/ (https://creativecommons.org/licenses/by/4.0/) .
spellingShingle Perspective
Toh, Hui Jin
Ballantyne, Angela
Ong, Serene Ai Kiang
Sankaran, Chitra
Tay, Hung Yong
Singh, Malminderjit
Zaidi, Raza
Chia, Roland
Singh, Sarabjeet
Samachittananda, Swami
Shi, You Guang
Tan, Zhixia
Lysaght, Tamra
Religious Perspectives on Precision Medicine in Singapore
title Religious Perspectives on Precision Medicine in Singapore
title_full Religious Perspectives on Precision Medicine in Singapore
title_fullStr Religious Perspectives on Precision Medicine in Singapore
title_full_unstemmed Religious Perspectives on Precision Medicine in Singapore
title_short Religious Perspectives on Precision Medicine in Singapore
title_sort religious perspectives on precision medicine in singapore
topic Perspective
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8486897/
https://www.ncbi.nlm.nih.gov/pubmed/34611464
http://dx.doi.org/10.1007/s41649-021-00180-4
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