Cargando…

Fondazione Telethon and Unione Italiana Lotta alla Distrofia Muscolare, a successful partnership for neuromuscular healthcare research of value for patients

In 2001, Fondazione Telethon and the Italian muscular dystrophy patient organisation Unione Italiana Lotta alla Distrofia Muscolare joined their efforts to design and launch a call for grant applications specifically dedicated to clinical projects in the field of neuromuscular disorders. This strate...

Descripción completa

Detalles Bibliográficos
Autores principales:	Ambrosini, Anna, Baldessari, Danila, Pozzi, Silvia, Battaglia, Manuela, Beltrami, Elena, Merico, Anna Maria, Rasconi, Marco, Monaco, Lucia
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	BioMed Central 2021
Materias:	Review
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8487484/ https://www.ncbi.nlm.nih.gov/pubmed/34600567 http://dx.doi.org/10.1186/s13023-021-02047-1

Ejemplares similares

Patient‐driven search for rare disease therapies: the Fondazione Telethon success story and the strategy leading to Strimvelis
por: Monaco, Lucia, et al.
Publicado: (2017)

The positive impact on translational research of Fondazione italiana di ricerca per la Sclerosi Laterale Amiotrofica (AriSLA), a non-profit foundation focused on amyotrophic lateral sclerosis. Convergence of ex-ante evaluation and ex-post outcomes when goals are set upfront
por: Guareschi, Stefania, et al.
Publicado: (2023)

CERN Firemen's Telethon
Publicado: (1994)

Fertility preservation and monitoring in adult patients diagnosed with lymphoma: consensus-based practical recommendations by the Fondazione Italiana Linfomi & Società Italiana della Riproduzione Umana
por: Minoia, Carla, et al.
Publicado: (2023)

Distrofia simpática refleja
por: Santés Gómez, Alejandro
Publicado: (1995)

"Distrofias y displasias vulvares" /
por: García Pérez, Claudia del Rosario
Publicado: (1995)

MYC Rearranged Aggressive B-Cell Lymphomas: A Report on 100 Patients of the Fondazione Italiana Linfomi (FIL)
por: Tisi, Maria Chiara, et al.
Publicado: (2019)

CERN pompiers participate in Téléthon 94
Publicado: (1994)

CERN gives a hand to Telethon
Publicado: (2000)

Candidate germline biomarkers of lenalidomide efficacy in mantle cell lymphoma: the Fondazione Italiana Linfomi MCL0208 trial
por: Ferrero, Simone, et al.
Publicado: (2023)

Fondazione Italiana Linfomi (FIL) expert consensus on the use of intensity-modulated and image-guided radiotherapy for Hodgkin’s lymphoma involving the mediastinum
por: Filippi, Andrea Riccardo, et al.
Publicado: (2020)

Whole Lotta Lipids—From HCV RNA Replication to the Mature Viral Particle
por: Bley, Hanna, et al.
Publicado: (2020)

Volunteers wanted for the Telethon 'Children of the World' gathering
Publicado: (2000)

Punctual and kinetic MRD analysis from the Fondazione Italiana Linfomi MCL0208 phase 3 trial in mantle cell lymphoma
por: Ferrero, Simone, et al.
Publicado: (2022)

Contributo alla storia della presenza italiana in Brasile : in occasione del primo centenario dell'emigrazione agricola italiana nel Rio Grande do Sul, 1875-1975
Publicado: (1975)

First salvage treatment with bendamustine and brentuximab vedotin in Hodgkin lymphoma: a phase 2 study of the Fondazione Italiana Linfomi
por: Broccoli, A., et al.
Publicado: (2019)

Direct-Acting Antivirals as Primary Treatment for Hepatitis C Virus–Associated Indolent Non-Hodgkin Lymphomas: The BArT Study of the Fondazione Italiana Linfomi
por: Merli, Michele, et al.
Publicado: (2022)

A Clinical Prognostic Model Based on Machine Learning from the Fondazione Italiana Linfomi (FIL) MCL0208 Phase III Trial
por: Zaccaria, Gian Maria, et al.
Publicado: (2021)

Second Cancers in Classical Hodgkin Lymphoma and Diffuse Large B-Cell Lymphoma: A Systematic Review by the Fondazione Italiana Linfomi
por: Nassi, Luca, et al.
Publicado: (2022)

CNS Prophylaxis: How Far Is Routine Practice From the Guidelines? Focus on a Nationwide Survey by the Fondazione Italiana Linfomi (FIL)
por: Gini, Guido, et al.
Publicado: (2021)

Role of Rituximab Addition to First-line Chemotherapy Regimens in Nodular Lymphocyte-predominant Hodgkin Lymphoma: A Study by Fondazione Italiana Linfomi
por: Gotti, Manuel, et al.
Publicado: (2023)

Brentuximab vedotin consolidation after autologous stem cell transplantation for Hodgkin lymphoma: A Fondazione Italiana Linfomi real‐life experience
por: Massaro, Fulvio, et al.
Publicado: (2021)

Male and Female Fertility: Prevention and Monitoring Hodgkin’ Lymphoma and Diffuse Large B-Cell Lymphoma Adult Survivors. A Systematic Review by the Fondazione Italiana Linfomi
por: Viviani, Simonetta, et al.
Publicado: (2021)

Quality Assessment for PCR-based Minimal Residual Disease in Lymphoma: 10 Years of Cross-laboratory Standardization Process Within the Fondazione Italiana Linfomi MRD Network
por: Mantoan, Barbara, et al.
Publicado: (2021)

Venetoclax Shows Low Therapeutic Activity in BCL2-Positive Relapsed/Refractory Peripheral T-Cell Lymphoma: A Phase 2 Study of the Fondazione Italiana Linfomi
por: Ballotta, Laura, et al.
Publicado: (2021)

A Fondazione Italiana Linfomi cohort study of R-COMP vs R-CHOP in older patients with diffuse large B-cell lymphoma
por: Arcari, Annalisa, et al.
Publicado: (2023)

The alliance between genetic biobanks and patient organisations: the experience of the telethon network of genetic biobanks
por: Baldo, Chiara, et al.
Publicado: (2016)

Rituximab plus bendamustine as front-line treatment in frail elderly (>70 years) patients with diffuse large B-cell non-Hodgkin lymphoma: a phase II multicenter study of the Fondazione Italiana Linfomi
por: Storti, Sergio, et al.
Publicado: (2018)

A B-cell receptor-related gene signature predicts survival in mantle cell lymphoma: results from the Fondazione Italiana Linfomi MCL-0208 trial
por: Bomben, Riccardo, et al.
Publicado: (2018)

The Impact of Healthy Lifestyles on Late Sequelae in Classical Hodgkin Lymphoma and Diffuse Large B-Cell Lymphoma Survivors. A Systematic Review by the Fondazione Italiana Linfomi
por: Minoia, Carla, et al.
Publicado: (2021)

Survival estimates of childhood malignancies treated at the Mexican telethon pediatric oncology hospital
por: Monárrez‐Espino, Joel, et al.
Publicado: (2022)

Estudio actual de las distrofias musculares en forma progresiva :
por: Contreras Duran, David
Publicado: (1980)

Long-Term Follow-Up of Classical Hodgkin Lymphoma and Diffuse Large B-Cell Lymphoma Survivors: Aims and Methodological Approach for Fondazione Italiana Linfomi Systematic Reviews
por: Gerardi, Chiara, et al.
Publicado: (2021)

Late Cardiological Sequelae and Long-Term Monitoring in Classical Hodgkin Lymphoma and Diffuse Large B-Cell Lymphoma Survivors: A Systematic Review by the Fondazione Italiana Linfomi
por: Oliva, Stefano, et al.
Publicado: (2021)

Telethon Network of Genetic Biobanks: a key service for diagnosis and research on rare diseases
por: Filocamo, Mirella, et al.
Publicado: (2013)

Distrofia toraxica asficiante presentación de un caso y revisión bibliográfica /
por: Ticante Guadalupe, Atzin
Publicado: (1987)

Late Neurological and Cognitive Sequelae and Long-Term Monitoring of Classical Hodgkin Lymphoma and Diffuse Large B-Cell Lymphoma Survivors: A Systematic Review by the Fondazione Italiana Linfomi
por: Franceschetti, Silvia, et al.
Publicado: (2021)

Late Endocrine and Metabolic Sequelae and Long-Term Monitoring of Classical Hodgkin Lymphoma and Diffuse Large B-Cell Lymphoma Survivors: A Systematic Review by the Fondazione Italiana Linfomi
por: Di Molfetta, Sergio, et al.
Publicado: (2022)

P1245: CLINICAL IMPACT OF IMMUNOGLOBULIN HEAVY CHAIN REPERTOIRE IN MANTLE CELL LYMPHOMA: A STUDY FROM THE FONDAZIONE ITALIANA LINFOMI (FIL) PHASE III MCL0208 TRIAL.
por: Alessandria, B., et al.
Publicado: (2022)

Reabilitação Cardíaca na Pessoa Transplantada com Distrofia Muscular de Emery-Dreifuss
por: Loureiro, Maria, et al.
Publicado: (2023)

Cannot write session to /tmp/vufind_sessions/sess_bn08ecs8nticnip4rcrht1k5cg