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“Here comes Bio-me”: An analysis of a biobank campaign targeted at children

Finnish biobanks have started to recruit children. The national supervising authority has emphasized the centrality of providing children with age-appropriate information. We analyzed one such campaign. We argue that by simplifying the complex socio-technical arrangements of biobanking with the intr...

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Detalles Bibliográficos
Autores principales: Snell, Karoliina, Tarkkala, Heta
Formato: Online Artículo Texto
Lenguaje:English
Publicado: SAGE Publications 2021
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8488646/
https://www.ncbi.nlm.nih.gov/pubmed/34148459
http://dx.doi.org/10.1177/09636625211022648
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author Snell, Karoliina
Tarkkala, Heta
author_facet Snell, Karoliina
Tarkkala, Heta
author_sort Snell, Karoliina
collection PubMed
description Finnish biobanks have started to recruit children. The national supervising authority has emphasized the centrality of providing children with age-appropriate information. We analyzed one such campaign. We argue that by simplifying the complex socio-technical arrangements of biobanking with the introduction of a new metaphor-like concept, “Bio-me,” the campaign presents a misleading and reductionist picture of data-driven biomedicine and biobank participation. First, the Bio-me character seems to bear similarities to the seventeenth-century explanations of embryological development. Second, the focus in the campaign is on biological material while crucial connections to different sorts of data are ignored. Third, we point to the absence of verbal references to genes and DNA, although the prevailing visualization comprises the double helix. We argue that the campaign has potential to contribute to public misunderstanding of science by introducing a new term that has little connection to actual biology or scientific practices it tries to promote.
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spelling pubmed-84886462021-10-05 “Here comes Bio-me”: An analysis of a biobank campaign targeted at children Snell, Karoliina Tarkkala, Heta Public Underst Sci Articles Finnish biobanks have started to recruit children. The national supervising authority has emphasized the centrality of providing children with age-appropriate information. We analyzed one such campaign. We argue that by simplifying the complex socio-technical arrangements of biobanking with the introduction of a new metaphor-like concept, “Bio-me,” the campaign presents a misleading and reductionist picture of data-driven biomedicine and biobank participation. First, the Bio-me character seems to bear similarities to the seventeenth-century explanations of embryological development. Second, the focus in the campaign is on biological material while crucial connections to different sorts of data are ignored. Third, we point to the absence of verbal references to genes and DNA, although the prevailing visualization comprises the double helix. We argue that the campaign has potential to contribute to public misunderstanding of science by introducing a new term that has little connection to actual biology or scientific practices it tries to promote. SAGE Publications 2021-06-19 2021-10 /pmc/articles/PMC8488646/ /pubmed/34148459 http://dx.doi.org/10.1177/09636625211022648 Text en © The Author(s) 2021 https://creativecommons.org/licenses/by/4.0/This article is distributed under the terms of the Creative Commons Attribution 4.0 License (https://creativecommons.org/licenses/by/4.0/) which permits any use, reproduction and distribution of the work without further permission provided the original work is attributed as specified on the SAGE and Open Access pages (https://us.sagepub.com/en-us/nam/open-access-at-sage).
spellingShingle Articles
Snell, Karoliina
Tarkkala, Heta
“Here comes Bio-me”: An analysis of a biobank campaign targeted at children
title “Here comes Bio-me”: An analysis of a biobank campaign targeted at children
title_full “Here comes Bio-me”: An analysis of a biobank campaign targeted at children
title_fullStr “Here comes Bio-me”: An analysis of a biobank campaign targeted at children
title_full_unstemmed “Here comes Bio-me”: An analysis of a biobank campaign targeted at children
title_short “Here comes Bio-me”: An analysis of a biobank campaign targeted at children
title_sort “here comes bio-me”: an analysis of a biobank campaign targeted at children
topic Articles
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8488646/
https://www.ncbi.nlm.nih.gov/pubmed/34148459
http://dx.doi.org/10.1177/09636625211022648
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