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Reaching consensus for unified medical language in Fontan care

AIMS: The Fontan operation has resulted in improved survival in patients with single‐ventricle congenital heart disease. As a result, there is a growing population of teenagers and adults with a Fontan circulation. Many co‐morbidities have been increasingly recognized in this population due to the u...

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Autores principales: Alsaied, Tarek, Rathod, Rahul H., Aboulhosn, Jamil A., Budts, Werner, Anderson, Jeffrey B., Baumgartner, Helmut, Brown, David W., Cordina, Rachael, D'udekem, Yves, Ginde, Salil, Goldberg, David J., Goldstein, Bryan H., Lubert, Adam M., Oechslin, Erwin, Opotowsky, Alexander R., Rychik, Jack, Schumacher, Kurt R., Valente, Anne Marie, Wright, Gail, Veldtman, Gruschen R.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: John Wiley and Sons Inc. 2021
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8497335/
https://www.ncbi.nlm.nih.gov/pubmed/34190428
http://dx.doi.org/10.1002/ehf2.13294
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author Alsaied, Tarek
Rathod, Rahul H.
Aboulhosn, Jamil A.
Budts, Werner
Anderson, Jeffrey B.
Baumgartner, Helmut
Brown, David W.
Cordina, Rachael
D'udekem, Yves
Ginde, Salil
Goldberg, David J.
Goldstein, Bryan H.
Lubert, Adam M.
Oechslin, Erwin
Opotowsky, Alexander R.
Rychik, Jack
Schumacher, Kurt R.
Valente, Anne Marie
Wright, Gail
Veldtman, Gruschen R.
author_facet Alsaied, Tarek
Rathod, Rahul H.
Aboulhosn, Jamil A.
Budts, Werner
Anderson, Jeffrey B.
Baumgartner, Helmut
Brown, David W.
Cordina, Rachael
D'udekem, Yves
Ginde, Salil
Goldberg, David J.
Goldstein, Bryan H.
Lubert, Adam M.
Oechslin, Erwin
Opotowsky, Alexander R.
Rychik, Jack
Schumacher, Kurt R.
Valente, Anne Marie
Wright, Gail
Veldtman, Gruschen R.
author_sort Alsaied, Tarek
collection PubMed
description AIMS: The Fontan operation has resulted in improved survival in patients with single‐ventricle congenital heart disease. As a result, there is a growing population of teenagers and adults with a Fontan circulation. Many co‐morbidities have been increasingly recognized in this population due to the unique features of the Fontan circulation. Standardization of how Fontan co‐morbid conditions are defined will help facilitate understanding, consistency and interpretability of research and clinical experience. Unifying common language usage in Fontan is a critical precursor step for data comparison of research findings and clinical outcomes and ultimately accelerating improvements in management for this growing group of patients. This manuscript aimed to create unified definitions for morbidities seen after the Fontan palliation. METHODS: In association of many congenital heart disease organizations, this work used Delphi methodology to reach a broad consensus among recognized experts regarding commonly used terms in Fontan care and research. Each definition underwent at least three rounds of revisions to reach a final definition through surveys sent to experts in the field of single‐ventricle care. RESULTS: The process of reaching a consensus on multiple morbidities associated with the Fontan procedure is summarized in this manuscript. The different versions that preceded reaching the consensus are also presented in the Supporting Information. Table 1 represents the final definitions according to the consensus. CONCLUSIONS: We propose the use of these definitions for clinical care, future research studies, registry development and clinical trials.
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spelling pubmed-84973352021-10-12 Reaching consensus for unified medical language in Fontan care Alsaied, Tarek Rathod, Rahul H. Aboulhosn, Jamil A. Budts, Werner Anderson, Jeffrey B. Baumgartner, Helmut Brown, David W. Cordina, Rachael D'udekem, Yves Ginde, Salil Goldberg, David J. Goldstein, Bryan H. Lubert, Adam M. Oechslin, Erwin Opotowsky, Alexander R. Rychik, Jack Schumacher, Kurt R. Valente, Anne Marie Wright, Gail Veldtman, Gruschen R. ESC Heart Fail Original Research Articles AIMS: The Fontan operation has resulted in improved survival in patients with single‐ventricle congenital heart disease. As a result, there is a growing population of teenagers and adults with a Fontan circulation. Many co‐morbidities have been increasingly recognized in this population due to the unique features of the Fontan circulation. Standardization of how Fontan co‐morbid conditions are defined will help facilitate understanding, consistency and interpretability of research and clinical experience. Unifying common language usage in Fontan is a critical precursor step for data comparison of research findings and clinical outcomes and ultimately accelerating improvements in management for this growing group of patients. This manuscript aimed to create unified definitions for morbidities seen after the Fontan palliation. METHODS: In association of many congenital heart disease organizations, this work used Delphi methodology to reach a broad consensus among recognized experts regarding commonly used terms in Fontan care and research. Each definition underwent at least three rounds of revisions to reach a final definition through surveys sent to experts in the field of single‐ventricle care. RESULTS: The process of reaching a consensus on multiple morbidities associated with the Fontan procedure is summarized in this manuscript. The different versions that preceded reaching the consensus are also presented in the Supporting Information. Table 1 represents the final definitions according to the consensus. CONCLUSIONS: We propose the use of these definitions for clinical care, future research studies, registry development and clinical trials. John Wiley and Sons Inc. 2021-06-30 /pmc/articles/PMC8497335/ /pubmed/34190428 http://dx.doi.org/10.1002/ehf2.13294 Text en © 2021 The Authors. ESC Heart Failure published by John Wiley & Sons Ltd on behalf of European Society of Cardiology. https://creativecommons.org/licenses/by-nc/4.0/This is an open access article under the terms of the http://creativecommons.org/licenses/by-nc/4.0/ (https://creativecommons.org/licenses/by-nc/4.0/) License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited and is not used for commercial purposes.
spellingShingle Original Research Articles
Alsaied, Tarek
Rathod, Rahul H.
Aboulhosn, Jamil A.
Budts, Werner
Anderson, Jeffrey B.
Baumgartner, Helmut
Brown, David W.
Cordina, Rachael
D'udekem, Yves
Ginde, Salil
Goldberg, David J.
Goldstein, Bryan H.
Lubert, Adam M.
Oechslin, Erwin
Opotowsky, Alexander R.
Rychik, Jack
Schumacher, Kurt R.
Valente, Anne Marie
Wright, Gail
Veldtman, Gruschen R.
Reaching consensus for unified medical language in Fontan care
title Reaching consensus for unified medical language in Fontan care
title_full Reaching consensus for unified medical language in Fontan care
title_fullStr Reaching consensus for unified medical language in Fontan care
title_full_unstemmed Reaching consensus for unified medical language in Fontan care
title_short Reaching consensus for unified medical language in Fontan care
title_sort reaching consensus for unified medical language in fontan care
topic Original Research Articles
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8497335/
https://www.ncbi.nlm.nih.gov/pubmed/34190428
http://dx.doi.org/10.1002/ehf2.13294
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