Cargando…

Exploring the Use of Genomic and Routinely Collected Data: Narrative Literature Review and Interview Study

BACKGROUND: Advancing the use of genomic data with routinely collected health data holds great promise for health care and research. Increasing the use of these data is a high priority to understand and address the causes of disease. OBJECTIVE: This study aims to provide an outline of the use of gen...

Descripción completa

Detalles Bibliográficos
Autores principales:	Daniels, Helen, Jones, Kerina Helen, Heys, Sharon, Ford, David Vincent
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	JMIR Publications 2021
Materias:	Original Paper
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8501405/ https://www.ncbi.nlm.nih.gov/pubmed/34559060 http://dx.doi.org/10.2196/15739

Ejemplares similares

Toward a Risk-Utility Data Governance Framework for Research Using Genomic and Phenotypic Data in Safe Havens: Multifaceted Review
por: Jones, Kerina, et al.
Publicado: (2020)

Public Views on Using Mobile Phone Call Detail Records in Health Research: Qualitative Study
por: Jones, Kerina Helen, et al.
Publicado: (2019)

Challenges and Potential Opportunities of Mobile Phone Call Detail Records in Health Research: Review
por: Jones, Kerina Helen, et al.
Publicado: (2018)

Toward an Ethically Founded Framework for the Use of Mobile Phone Call Detail Records in Health Research
por: Jones, Kerina Helen, et al.
Publicado: (2019)

Public Views on Models for Accessing Genomic and Health Data for Research: Mixed Methods Study
por: Jones, Kerina H, et al.
Publicado: (2019)

Population data science: advancing the safe use of population data for public benefit
por: Jones, Kerina Helen, et al.
Publicado: (2018)

The Good, the Bad, the Clunky: Improving the Use of Administrative Data for Research
por: Jones, Kerina Helen, et al.
Publicado: (2018)

Public involvement & engagement in the work of a data safe haven: a case study of the SAIL Databank
por: Jones, Kerina H, et al.
Publicado: (2020)

Toward the Development of Data Governance Standards for Using Clinical Free-Text Data in Health Research: Position Paper
por: Jones, Kerina H, et al.
Publicado: (2020)

Exploring barriers and solutions in advancing cross-centre population data science
por: Jones, KH, et al.
Publicado: (2019)

Linking pre- and post-adoption records for research in anonymised form in a data safe haven: legal implications and support for a social licence
por: Jones, Kerina, et al.
Publicado: (2020)

The Value of Routinely Collected Data in Evaluating Home Assessment and Modification Interventions to Prevent Falls in Older People: Systematic Literature Review
por: Daniels, Helen, et al.
Publicado: (2021)

Data-Prompted Interviews: Using Individual Ecological Data to Stimulate Narratives and Explore Meanings
por: Kwasnicka, Dominika, et al.
Publicado: (2015)

Understanding Views Around the Creation of a Consented, Donated Databank of Clinical Free Text to Develop and Train Natural Language Processing Models for Research: Focus Group Interviews With Stakeholders
por: Fitzpatrick, Natalie K, et al.
Publicado: (2023)

Exploring Patient and Staff Experiences With Video Consultations During COVID-19 in an English Outpatient Care Setting: Secondary Data Analysis of Routinely Collected Feedback Data
por: Bradwell, Hannah, et al.
Publicado: (2022)

Going beyond routine data collection of clinical trials funded by the health technology assessment programme
por: Raftery, James, et al.
Publicado: (2015)

Routinely collected data and patient‐centred research in anaesthesia and peri‐operative care: a narrative review
por: Armstrong, R. A., et al.
Publicado: (2020)

What are the methodological designs of nihr funded clinical trials? Going beyond routine data collection
por: Young, Amanda, et al.
Publicado: (2015)

Inequalities in children’s mental health care: analysis of routinely collected data on prescribing and referrals to secondary care
por: Ball, William P., et al.
Publicado: (2023)

How real can we get in generating real world evidence? Exploring the opportunities of routinely collected administrative data for evaluation of medical devices
por: Pongiglione, Benedetta, et al.
Publicado: (2022)

Exploring trends in admissions and treatment for ankle fractures: a longitudinal cohort study of routinely collected hospital data in England
por: Scott, Lauren J., et al.
Publicado: (2020)

Data source profile reporting by studies that use routinely collected health data to explore the effects of drug treatment
por: Wang, Wen, et al.
Publicado: (2023)

Liver disease management as routine work in primary care: a qualitative interview study to guide implementation
por: Jarvis, Helen, et al.
Publicado: (2022)

Validating epilepsy diagnoses in routinely collected data
por: Fonferko-Shadrach, Beata, et al.
Publicado: (2017)

Data safe havens to combine health and genomic data: benefits and challenges
por: Jones, Kerina H, et al.
Publicado: (2017)

Identifying cerebral palsy from routinely-collected data in England and Wales
por: Carter, Bethan, et al.
Publicado: (2019)

Views of healthcare professionals to linkage of routinely collected healthcare data: a systematic literature review
por: Hopf, Y M, et al.
Publicado: (2014)

Quantifying patient- and hospital-level antimicrobial resistance dynamics in Staphylococcus aureus from routinely collected data
por: Leclerc, Quentin, et al.
Publicado: (2023)

Building Data-Driven Pathways From Routinely Collected Hospital Data: A Case Study on Prostate Cancer
por: Bettencourt-Silva, Joao H, et al.
Publicado: (2015)

The other side of the coin: harm due to the non-use of health-related data
por: Jones, Kerina, et al.
Publicado: (2017)

Monitoring the hepatitis C epidemic in England and evaluating intervention scale‐up using routinely collected data
por: Harris, Ross J., et al.
Publicado: (2019)

Your Data to Explore: An Interview with Anne Wojcicki
por: Gitschier, Jane
Publicado: (2015)

Working conditions and tuberculosis mortality in England and Wales, 1890–1912: a retrospective analysis of routinely collected data
por: Jackson, Charlotte, et al.
Publicado: (2016)

Using routinely collected data to improve immunisation histories
por: Allen, Luke
Publicado: (2013)

Birthplace in New South Wales, Australia: an analysis of perinatal outcomes using routinely collected data
por: Homer, Caroline SE, et al.
Publicado: (2014)

The narrative interview for the assessment of the assisted person: structure, method and data analysis
por: Giovanna, Artioli, et al.
Publicado: (2019)

Exploring patient perspectives on the secondary use of their personal health information: an interview study
por: Dobson, Rosie, et al.
Publicado: (2023)

Yes, one can obtain better quality structures from routine X-ray data collection
por: Sanjuan-Szklarz, W. Fabiola, et al.
Publicado: (2016)

Online ‘chatting’ interviews: An acceptable method for qualitative data collection
por: Gunawan, Joko, et al.
Publicado: (2022)

Unintended consequences: a qualitative study exploring the impact of collecting implementation process data with phone interviews on implementation activities
por: Gruß, Inga, et al.
Publicado: (2020)

Cannot write session to /tmp/vufind_sessions/sess_tg8pbgc02qd03i6tts8d9kcp5g