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Development of symptom-focused outcome measures for advanced and indolent systemic mastocytosis: the AdvSM-SAF and ISM-SAF(©)

BACKGROUND: Advanced systemic mastocytosis (AdvSM), indolent systemic mastocytosis (ISM), and smoldering systemic mastocytosis (SSM) are rare diseases characterized by neoplastic mast cell infiltration of more than one organ. A content-valid patient-reported outcome (PRO) questionnaire that assesses...

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Detalles Bibliográficos
Autores principales:	Taylor, Fiona, Akin, Cem, Lamoureux, Roger E., Padilla, Brad, Green, Tanya, Boral, Anthony L., Mazar, Iyar, Mar, Brenton, Shields, Alan L., Siebenhaar, Frank
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	BioMed Central 2021
Materias:	Research
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8501694/ https://www.ncbi.nlm.nih.gov/pubmed/34627355 http://dx.doi.org/10.1186/s13023-021-02035-5

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