The impact of demographic and clinical characteristics on the trajectories of health-related quality of life among patients with Fabry disease

BACKGROUND: Fabry disease (FD) is an X-linked lysosomal storage disorder characterized by multiorgan dysfunction. Since individuals with FD usually experience progressive clinical disease manifestations, their health-related quality of life (HRQOL) is expected to change over time. However, there is...

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Detalles Bibliográficos
Autores principales: Sigurdardottir, Solrun, Bjerkely, Birgitte, Jenssen, Trond G., Mathisen, Per, von der Lippe, Charlotte, Ørstavik, Kristin, Heimdal, Ketil, Dahle, Dag Olav, Weedon-Fekjær, Mina Susanne, Solberg, Olga, Pihlstrøm, Hege K.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2021
Materias:
Research
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8506470/
https://www.ncbi.nlm.nih.gov/pubmed/34641933
http://dx.doi.org/10.1186/s13023-021-02066-y

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