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Public attitudes to the use of remote data collection in clinical research

BACKGROUND/AIMS: Coronavirus Disease 2019 (COVID-19) has presented an unprecedented challenge for delivering clinical research. The use of technology-assisted data collection for clinical research is desirable for many practitioners, but the acceptability of use in the general population has not bee...

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Autores principales: Neumann, S., Bamford, A., Lithander, F.E., Tenison, E., Henderson, E.J.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Elsevier Inc. 2021
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8511885/
https://www.ncbi.nlm.nih.gov/pubmed/34653652
http://dx.doi.org/10.1016/j.cct.2021.106595
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author Neumann, S.
Bamford, A.
Lithander, F.E.
Tenison, E.
Henderson, E.J.
author_facet Neumann, S.
Bamford, A.
Lithander, F.E.
Tenison, E.
Henderson, E.J.
author_sort Neumann, S.
collection PubMed
description BACKGROUND/AIMS: Coronavirus Disease 2019 (COVID-19) has presented an unprecedented challenge for delivering clinical research. The use of technology-assisted data collection for clinical research is desirable for many practitioners, but the acceptability of use in the general population has not been assessed. The aim of the study was to assess attitudes towards using technology-assisted remote methods in the delivery of clinical research in the UK and to understand the barriers to taking part in research with respect to both remote assessments and traditional research methods across different age ranges. METHODS: The study was conducted as an online anonymous survey with a 4-part questionnaire, between August 2020 and December 2020. Participants living in the UK aged 18 years and above were eligible to take part. RESULTS: A total 351 completed the survey and are included in the data analysis. In all age groups, participants identified that use of online assignments, video calls and telephone calls would make them more likely to take part in clinical research. Overall, the largest barrier to taking part in research was time commitments and timing of the appointment. COVID-19 has had a small, positive influence on the confidence of using technology in the general population. CONCLUSIONS: The study found that there is a large interest in taking part in research using online, telephone and video call appointments, which could facilitate research delivery in light of ongoing COVID-19-related restrictions and also improve the accessibility and inclusivity of research.
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spelling pubmed-85118852021-10-13 Public attitudes to the use of remote data collection in clinical research Neumann, S. Bamford, A. Lithander, F.E. Tenison, E. Henderson, E.J. Contemp Clin Trials Full Length Article BACKGROUND/AIMS: Coronavirus Disease 2019 (COVID-19) has presented an unprecedented challenge for delivering clinical research. The use of technology-assisted data collection for clinical research is desirable for many practitioners, but the acceptability of use in the general population has not been assessed. The aim of the study was to assess attitudes towards using technology-assisted remote methods in the delivery of clinical research in the UK and to understand the barriers to taking part in research with respect to both remote assessments and traditional research methods across different age ranges. METHODS: The study was conducted as an online anonymous survey with a 4-part questionnaire, between August 2020 and December 2020. Participants living in the UK aged 18 years and above were eligible to take part. RESULTS: A total 351 completed the survey and are included in the data analysis. In all age groups, participants identified that use of online assignments, video calls and telephone calls would make them more likely to take part in clinical research. Overall, the largest barrier to taking part in research was time commitments and timing of the appointment. COVID-19 has had a small, positive influence on the confidence of using technology in the general population. CONCLUSIONS: The study found that there is a large interest in taking part in research using online, telephone and video call appointments, which could facilitate research delivery in light of ongoing COVID-19-related restrictions and also improve the accessibility and inclusivity of research. Elsevier Inc. 2021-12 2021-10-13 /pmc/articles/PMC8511885/ /pubmed/34653652 http://dx.doi.org/10.1016/j.cct.2021.106595 Text en © 2021 Elsevier Inc. All rights reserved. Since January 2020 Elsevier has created a COVID-19 resource centre with free information in English and Mandarin on the novel coronavirus COVID-19. The COVID-19 resource centre is hosted on Elsevier Connect, the company's public news and information website. Elsevier hereby grants permission to make all its COVID-19-related research that is available on the COVID-19 resource centre - including this research content - immediately available in PubMed Central and other publicly funded repositories, such as the WHO COVID database with rights for unrestricted research re-use and analyses in any form or by any means with acknowledgement of the original source. These permissions are granted for free by Elsevier for as long as the COVID-19 resource centre remains active.
spellingShingle Full Length Article
Neumann, S.
Bamford, A.
Lithander, F.E.
Tenison, E.
Henderson, E.J.
Public attitudes to the use of remote data collection in clinical research
title Public attitudes to the use of remote data collection in clinical research
title_full Public attitudes to the use of remote data collection in clinical research
title_fullStr Public attitudes to the use of remote data collection in clinical research
title_full_unstemmed Public attitudes to the use of remote data collection in clinical research
title_short Public attitudes to the use of remote data collection in clinical research
title_sort public attitudes to the use of remote data collection in clinical research
topic Full Length Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8511885/
https://www.ncbi.nlm.nih.gov/pubmed/34653652
http://dx.doi.org/10.1016/j.cct.2021.106595
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