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Like a Grinding Stone: How Crowdfunding Platforms Create, Perpetuate, and Value Health Inequities

This article explores how inequities are reproduced by, and valued within, the increasingly ubiquitous world of medical crowdfunding. As patients use platforms like GoFundMe to solicit donations for health care, success stories inundate social media. But most crowdfunders experience steep odds and m...

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Detalles Bibliográficos
Autor principal: Kenworthy, Nora
Formato: Online Artículo Texto
Lenguaje:English
Publicado: John Wiley and Sons Inc. 2021
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8519036/
https://www.ncbi.nlm.nih.gov/pubmed/33711178
http://dx.doi.org/10.1111/maq.12639
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author Kenworthy, Nora
author_facet Kenworthy, Nora
author_sort Kenworthy, Nora
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description This article explores how inequities are reproduced by, and valued within, the increasingly ubiquitous world of medical crowdfunding. As patients use platforms like GoFundMe to solicit donations for health care, success stories inundate social media. But most crowdfunders experience steep odds and marginal benefits. Drawing on the problematic figure of the “black box” in health disparities research and technology studies, I offer ethnography as a tool for unpacking often inscrutable and complex pathways through which online platforms amplify inequities. By leveraging both online and traditional research strategies—a platform analysis and paired narratives of crowdfunders’ disparate experiences, drawn from open‐ended interviews—this article explores how inequities are created and experienced by users. The analysis highlights how inequities are simultaneously central to the functioning of this marketplace and occluded by its platform design. Consequently, crowdfunding is concealing health inequities while shifting public values about who is entitled to health care, and why.
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spelling pubmed-85190362021-10-21 Like a Grinding Stone: How Crowdfunding Platforms Create, Perpetuate, and Value Health Inequities Kenworthy, Nora Med Anthropol Q Articles This article explores how inequities are reproduced by, and valued within, the increasingly ubiquitous world of medical crowdfunding. As patients use platforms like GoFundMe to solicit donations for health care, success stories inundate social media. But most crowdfunders experience steep odds and marginal benefits. Drawing on the problematic figure of the “black box” in health disparities research and technology studies, I offer ethnography as a tool for unpacking often inscrutable and complex pathways through which online platforms amplify inequities. By leveraging both online and traditional research strategies—a platform analysis and paired narratives of crowdfunders’ disparate experiences, drawn from open‐ended interviews—this article explores how inequities are created and experienced by users. The analysis highlights how inequities are simultaneously central to the functioning of this marketplace and occluded by its platform design. Consequently, crowdfunding is concealing health inequities while shifting public values about who is entitled to health care, and why. John Wiley and Sons Inc. 2021-03-12 2021-09 /pmc/articles/PMC8519036/ /pubmed/33711178 http://dx.doi.org/10.1111/maq.12639 Text en © 2021 The Authors. Medical Anthropology Quarterly published by Wiley Periodicals LLC on behalf of American Anthropological Association https://creativecommons.org/licenses/by-nc-nd/4.0/This is an open access article under the terms of the http://creativecommons.org/licenses/by-nc-nd/4.0/ (https://creativecommons.org/licenses/by-nc-nd/4.0/) License, which permits use and distribution in any medium, provided the original work is properly cited, the use is non‐commercial and no modifications or adaptations are made.
spellingShingle Articles
Kenworthy, Nora
Like a Grinding Stone: How Crowdfunding Platforms Create, Perpetuate, and Value Health Inequities
title Like a Grinding Stone: How Crowdfunding Platforms Create, Perpetuate, and Value Health Inequities
title_full Like a Grinding Stone: How Crowdfunding Platforms Create, Perpetuate, and Value Health Inequities
title_fullStr Like a Grinding Stone: How Crowdfunding Platforms Create, Perpetuate, and Value Health Inequities
title_full_unstemmed Like a Grinding Stone: How Crowdfunding Platforms Create, Perpetuate, and Value Health Inequities
title_short Like a Grinding Stone: How Crowdfunding Platforms Create, Perpetuate, and Value Health Inequities
title_sort like a grinding stone: how crowdfunding platforms create, perpetuate, and value health inequities
topic Articles
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8519036/
https://www.ncbi.nlm.nih.gov/pubmed/33711178
http://dx.doi.org/10.1111/maq.12639
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