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A roadmap to surgery in osteogenesis imperfecta: results of an international collaboration of patient organizations and interdisciplinary care teams
Background and purpose — Involvement of patient organizations is steadily increasing in guidelines for treatment of various diseases and conditions for better care from the patient’s viewpoint and better comparability of outcomes. For this reason, the Osteogenesis Imperfecta Federation Europe and th...
Autores principales: | Sakkers, Ralph J, Montpetit, Kathleen, Tsimicalis, Argerie, Wirth, Thomas, Verhoef, Marjolein, Hamdy, Reginald, Ouellet, Jean A, Castelein, Rene M, Damas, Chantal, Janus, Guus J, Nijhuis, Wouter H, Panzeri, Leonardo, Paveri, Simona, Mekking, Dagmar, Thorstad, Kelly, Kruse, Richard W |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Taylor & Francis
2021
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8519518/ https://www.ncbi.nlm.nih.gov/pubmed/34180749 http://dx.doi.org/10.1080/17453674.2021.1941628 |
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