Social Media and Clinical Trials in Pediatric Disease: Musings From the Bench

The use of social media in clinical trials, for recruiting and retention as well as for collecting data, has become increasingly common. However, little has been documented in respect to the guidelines for its use and the possible effects it may have on clinical trials. In this review, we provide an...

Descripción completa

Detalles Bibliográficos
Autores principales: Nelson, Leslie, Iannaccone, Susan T.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Frontiers Media S.A. 2021
Materias:
Genetics
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8521012/
https://www.ncbi.nlm.nih.gov/pubmed/34671383
http://dx.doi.org/10.3389/fgene.2021.734691
_version_ 1784584807962902528
author Nelson, Leslie
Iannaccone, Susan T.
author_facet Nelson, Leslie
Iannaccone, Susan T.
author_sort Nelson, Leslie
collection PubMed
description The use of social media in clinical trials, for recruiting and retention as well as for collecting data, has become increasingly common. However, little has been documented in respect to the guidelines for its use and the possible effects it may have on clinical trials. In this review, we provide an overview of the guidance that has been published and muse the pros and cons of the use of social media in trials for rare disease.
format Online
Article
Text
id pubmed-8521012
institution National Center for Biotechnology Information
language English
publishDate 2021
publisher Frontiers Media S.A.
record_format MEDLINE/PubMed
spelling pubmed-85210122021-10-19 Social Media and Clinical Trials in Pediatric Disease: Musings From the Bench Nelson, Leslie Iannaccone, Susan T. Front Genet Genetics The use of social media in clinical trials, for recruiting and retention as well as for collecting data, has become increasingly common. However, little has been documented in respect to the guidelines for its use and the possible effects it may have on clinical trials. In this review, we provide an overview of the guidance that has been published and muse the pros and cons of the use of social media in trials for rare disease. Frontiers Media S.A. 2021-10-04 /pmc/articles/PMC8521012/ /pubmed/34671383 http://dx.doi.org/10.3389/fgene.2021.734691 Text en Copyright © 2021 Nelson and Iannaccone. https://creativecommons.org/licenses/by/4.0/This is an open-access article distributed under the terms of the Creative Commons Attribution License (CC BY). The use, distribution or reproduction in other forums is permitted, provided the original author(s) and the copyright owner(s) are credited and that the original publication in this journal is cited, in accordance with accepted academic practice. No use, distribution or reproduction is permitted which does not comply with these terms.
spellingShingle Genetics
Nelson, Leslie
Iannaccone, Susan T.
Social Media and Clinical Trials in Pediatric Disease: Musings From the Bench
title Social Media and Clinical Trials in Pediatric Disease: Musings From the Bench
title_full Social Media and Clinical Trials in Pediatric Disease: Musings From the Bench
title_fullStr Social Media and Clinical Trials in Pediatric Disease: Musings From the Bench
title_full_unstemmed Social Media and Clinical Trials in Pediatric Disease: Musings From the Bench
title_short Social Media and Clinical Trials in Pediatric Disease: Musings From the Bench
title_sort social media and clinical trials in pediatric disease: musings from the bench
topic Genetics
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8521012/
https://www.ncbi.nlm.nih.gov/pubmed/34671383
http://dx.doi.org/10.3389/fgene.2021.734691
work_keys_str_mv AT nelsonleslie socialmediaandclinicaltrialsinpediatricdiseasemusingsfromthebench
AT iannacconesusant socialmediaandclinicaltrialsinpediatricdiseasemusingsfromthebench

Ejemplares similares