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Transforming challenges into opportunities: conducting health preference research during the COVID-19 pandemic and beyond

The disruptions to health research during the COVID-19 pandemic are being recognized globally, and there is a growing need for understanding the pandemic’s impact on the health and health preferences of patients, caregivers, and the general public. Ongoing and planned health preference research (HPR...

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Autores principales: Kaur, Manraj N., Skolasky, Richard L., Powell, Philip A., Xie, Feng, Huang, I-Chan, Kuspinar, Ayse, O’Dwyer, John L., Cizik, Amy M., Rowen, Donna
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Springer International Publishing 2021
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8521079/
https://www.ncbi.nlm.nih.gov/pubmed/34661806
http://dx.doi.org/10.1007/s11136-021-03012-y
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author Kaur, Manraj N.
Skolasky, Richard L.
Powell, Philip A.
Xie, Feng
Huang, I-Chan
Kuspinar, Ayse
O’Dwyer, John L.
Cizik, Amy M.
Rowen, Donna
author_facet Kaur, Manraj N.
Skolasky, Richard L.
Powell, Philip A.
Xie, Feng
Huang, I-Chan
Kuspinar, Ayse
O’Dwyer, John L.
Cizik, Amy M.
Rowen, Donna
author_sort Kaur, Manraj N.
collection PubMed
description The disruptions to health research during the COVID-19 pandemic are being recognized globally, and there is a growing need for understanding the pandemic’s impact on the health and health preferences of patients, caregivers, and the general public. Ongoing and planned health preference research (HPR) has been affected due to problems associated with recruitment, data collection, and data interpretation. While there are no “one size fits all” solutions, this commentary summarizes the key challenges in HPR within the context of the pandemic and offers pragmatic solutions and directions for future research. We recommend recruitment of a diverse, typically under-represented population in HPR using online, quota-based crowdsourcing platforms, and community partnerships. We foresee emerging evidence on remote, and telephone-based HPR modes of administration, with further studies on the shifts in preferences related to health and healthcare services as a result of the pandemic. We believe that the recalibration of HPR, due to what one would hope is an impermanent change, will permanently change how we conduct HPR in the future.
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spelling pubmed-85210792021-10-18 Transforming challenges into opportunities: conducting health preference research during the COVID-19 pandemic and beyond Kaur, Manraj N. Skolasky, Richard L. Powell, Philip A. Xie, Feng Huang, I-Chan Kuspinar, Ayse O’Dwyer, John L. Cizik, Amy M. Rowen, Donna Qual Life Res Commentary The disruptions to health research during the COVID-19 pandemic are being recognized globally, and there is a growing need for understanding the pandemic’s impact on the health and health preferences of patients, caregivers, and the general public. Ongoing and planned health preference research (HPR) has been affected due to problems associated with recruitment, data collection, and data interpretation. While there are no “one size fits all” solutions, this commentary summarizes the key challenges in HPR within the context of the pandemic and offers pragmatic solutions and directions for future research. We recommend recruitment of a diverse, typically under-represented population in HPR using online, quota-based crowdsourcing platforms, and community partnerships. We foresee emerging evidence on remote, and telephone-based HPR modes of administration, with further studies on the shifts in preferences related to health and healthcare services as a result of the pandemic. We believe that the recalibration of HPR, due to what one would hope is an impermanent change, will permanently change how we conduct HPR in the future. Springer International Publishing 2021-10-18 2022 /pmc/articles/PMC8521079/ /pubmed/34661806 http://dx.doi.org/10.1007/s11136-021-03012-y Text en © The Author(s), under exclusive licence to Springer Nature Switzerland AG 2021 This article is made available via the PMC Open Access Subset for unrestricted research re-use and secondary analysis in any form or by any means with acknowledgement of the original source. These permissions are granted for the duration of the World Health Organization (WHO) declaration of COVID-19 as a global pandemic.
spellingShingle Commentary
Kaur, Manraj N.
Skolasky, Richard L.
Powell, Philip A.
Xie, Feng
Huang, I-Chan
Kuspinar, Ayse
O’Dwyer, John L.
Cizik, Amy M.
Rowen, Donna
Transforming challenges into opportunities: conducting health preference research during the COVID-19 pandemic and beyond
title Transforming challenges into opportunities: conducting health preference research during the COVID-19 pandemic and beyond
title_full Transforming challenges into opportunities: conducting health preference research during the COVID-19 pandemic and beyond
title_fullStr Transforming challenges into opportunities: conducting health preference research during the COVID-19 pandemic and beyond
title_full_unstemmed Transforming challenges into opportunities: conducting health preference research during the COVID-19 pandemic and beyond
title_short Transforming challenges into opportunities: conducting health preference research during the COVID-19 pandemic and beyond
title_sort transforming challenges into opportunities: conducting health preference research during the covid-19 pandemic and beyond
topic Commentary
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8521079/
https://www.ncbi.nlm.nih.gov/pubmed/34661806
http://dx.doi.org/10.1007/s11136-021-03012-y
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