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“Sharing Is Caring:” Australian Self-Trackers' Concepts and Practices of Personal Data Sharing and Privacy

Self-tracking technologies and practices offer ways of generating vast reams of personal details, raising questions about how these data are revealed or exposed to others. In this article, I report on findings from an interview-based study of long-term Australian self-trackers who were collecting an...

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Detalles Bibliográficos
Autor principal: Lupton, Deborah
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Frontiers Media S.A. 2021
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8521845/
https://www.ncbi.nlm.nih.gov/pubmed/34713123
http://dx.doi.org/10.3389/fdgth.2021.649275
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author Lupton, Deborah
author_facet Lupton, Deborah
author_sort Lupton, Deborah
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description Self-tracking technologies and practices offer ways of generating vast reams of personal details, raising questions about how these data are revealed or exposed to others. In this article, I report on findings from an interview-based study of long-term Australian self-trackers who were collecting and reviewing personal information about their bodies and other aspects of their everyday lives. The discussion focuses on the participants' understandings and practices related to sharing their personal data and to data privacy. The contextual elements of self-tracked sharing and privacy concerns were evident in the participants' accounts and were strongly related to ideas about why and how these details should be accessed by others. Sharing personal information from self-tracking was largely viewed as an intimate social experience. The value of self-tracked data to contribute to close face-to-face relationships was recognized and related aspects of social privacy were identified. However, most participants did not consider the possibilities that their personal information could be distributed well-beyond these relationships by third parties for commercial purposes (or what has been termed “institutional privacy”). These findings contribute to a more-than-digital approach to personal data sharing and privacy practices that recognizes the interplay between digital and non-digital practices and contexts. They also highlight the relational and social dimensions of self-tracking and concepts of data privacy.
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spelling pubmed-85218452021-10-27 “Sharing Is Caring:” Australian Self-Trackers' Concepts and Practices of Personal Data Sharing and Privacy Lupton, Deborah Front Digit Health Digital Health Self-tracking technologies and practices offer ways of generating vast reams of personal details, raising questions about how these data are revealed or exposed to others. In this article, I report on findings from an interview-based study of long-term Australian self-trackers who were collecting and reviewing personal information about their bodies and other aspects of their everyday lives. The discussion focuses on the participants' understandings and practices related to sharing their personal data and to data privacy. The contextual elements of self-tracked sharing and privacy concerns were evident in the participants' accounts and were strongly related to ideas about why and how these details should be accessed by others. Sharing personal information from self-tracking was largely viewed as an intimate social experience. The value of self-tracked data to contribute to close face-to-face relationships was recognized and related aspects of social privacy were identified. However, most participants did not consider the possibilities that their personal information could be distributed well-beyond these relationships by third parties for commercial purposes (or what has been termed “institutional privacy”). These findings contribute to a more-than-digital approach to personal data sharing and privacy practices that recognizes the interplay between digital and non-digital practices and contexts. They also highlight the relational and social dimensions of self-tracking and concepts of data privacy. Frontiers Media S.A. 2021-02-23 /pmc/articles/PMC8521845/ /pubmed/34713123 http://dx.doi.org/10.3389/fdgth.2021.649275 Text en Copyright © 2021 Lupton. https://creativecommons.org/licenses/by/4.0/This is an open-access article distributed under the terms of the Creative Commons Attribution License (CC BY). The use, distribution or reproduction in other forums is permitted, provided the original author(s) and the copyright owner(s) are credited and that the original publication in this journal is cited, in accordance with accepted academic practice. No use, distribution or reproduction is permitted which does not comply with these terms.
spellingShingle Digital Health
Lupton, Deborah
“Sharing Is Caring:” Australian Self-Trackers' Concepts and Practices of Personal Data Sharing and Privacy
title “Sharing Is Caring:” Australian Self-Trackers' Concepts and Practices of Personal Data Sharing and Privacy
title_full “Sharing Is Caring:” Australian Self-Trackers' Concepts and Practices of Personal Data Sharing and Privacy
title_fullStr “Sharing Is Caring:” Australian Self-Trackers' Concepts and Practices of Personal Data Sharing and Privacy
title_full_unstemmed “Sharing Is Caring:” Australian Self-Trackers' Concepts and Practices of Personal Data Sharing and Privacy
title_short “Sharing Is Caring:” Australian Self-Trackers' Concepts and Practices of Personal Data Sharing and Privacy
title_sort “sharing is caring:” australian self-trackers' concepts and practices of personal data sharing and privacy
topic Digital Health
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8521845/
https://www.ncbi.nlm.nih.gov/pubmed/34713123
http://dx.doi.org/10.3389/fdgth.2021.649275
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