The patient experience of Wilson disease: a conceptual model based on qualitative research

BACKGROUND: Wilson disease (WD) is a rare disease wherein copper accumulates in tissues, leading to hepatic degeneration, neurological impairments, and psychiatric symptoms. This study aimed to characterize the patient experience of WD and develop a conceptual model containing key symptoms and impac...

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Detalles Bibliográficos
Autores principales: Karantzoulis, Stella, Heuer, Karli, Sparling, Nicole, Teynor, Megan
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2021
Materias:
Research
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8525030/
https://www.ncbi.nlm.nih.gov/pubmed/34666796
http://dx.doi.org/10.1186/s13023-021-02059-x

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8525030/
https://www.ncbi.nlm.nih.gov/pubmed/34666796
http://dx.doi.org/10.1186/s13023-021-02059-x

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