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Leveraging patient‐reported outcomes (PROs) in patients with pancreatic cancer: The Pancreatic Cancer Action Network (PanCAN) online patient registry experience
BACKGROUND: The Pancreatic Cancer Action Network (PanCAN) Patient Registry is an online, pancreatic cancer‐specific, global registry enabling patients to self‐report sociodemographics, disease/management characteristics, and patient‐reported outcomes (PROs). We sought to describe the creation, user...
Autores principales: | Gupta, Arjun, Khalid, Omar, Moravek, Cassadie, Lamkin, Anica, Matrisian, Lynn M., Doss, Sudheer, Denlinger, Crystal S., Coveler, Andrew L., Weekes, Colin D., Roeland, Eric J., Hendifar, Andrew E., Nipp, Ryan D. |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
John Wiley and Sons Inc.
2021
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8525124/ https://www.ncbi.nlm.nih.gov/pubmed/34477302 http://dx.doi.org/10.1002/cam4.4257 |
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