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Geolocation, ethics, and HIV research
The HIV epidemic continues to disproportionally affect marginalized populations. Digital tools, including global positioning system and ecologic momentary assessment, have been studied as methods for improving data collection and interventions among HIV-affected communities. Although people living w...
Autores principales: | , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Springer Berlin Heidelberg
2021
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8542916/ https://www.ncbi.nlm.nih.gov/pubmed/34722103 http://dx.doi.org/10.1007/s12553-021-00611-0 |
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author | Garett, Renee Young, Sean D. |
author_facet | Garett, Renee Young, Sean D. |
author_sort | Garett, Renee |
collection | PubMed |
description | The HIV epidemic continues to disproportionally affect marginalized populations. Digital tools, including global positioning system and ecologic momentary assessment, have been studied as methods for improving data collection and interventions among HIV-affected communities. Although people living with HIV and populations at high risk have found it acceptable to use digital technologies for HIV research, concerns over privacy and trust have also been expressed. This paper explores and describes the use of geolocation technology data (e.g., location-based social media) in HIV research as well as the ethical and implementation considerations that warrant examination prior to use. Transparent and clear language in consent forms might improve participant trust in the project and investigators’ ability to keep participant data secure and private. With respect to institutional review boards, a committee member who is knowledgeable about digital technologies and consumer protections may offer guidance in assessing adequate protections in study protocols. As technology used in research continues to evolve, investigators and the research community must continue to examine the ethical challenges that emerge to address participant concerns. |
format | Online Article Text |
id | pubmed-8542916 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2021 |
publisher | Springer Berlin Heidelberg |
record_format | MEDLINE/PubMed |
spelling | pubmed-85429162021-10-25 Geolocation, ethics, and HIV research Garett, Renee Young, Sean D. Health Technol (Berl) Short Communication The HIV epidemic continues to disproportionally affect marginalized populations. Digital tools, including global positioning system and ecologic momentary assessment, have been studied as methods for improving data collection and interventions among HIV-affected communities. Although people living with HIV and populations at high risk have found it acceptable to use digital technologies for HIV research, concerns over privacy and trust have also been expressed. This paper explores and describes the use of geolocation technology data (e.g., location-based social media) in HIV research as well as the ethical and implementation considerations that warrant examination prior to use. Transparent and clear language in consent forms might improve participant trust in the project and investigators’ ability to keep participant data secure and private. With respect to institutional review boards, a committee member who is knowledgeable about digital technologies and consumer protections may offer guidance in assessing adequate protections in study protocols. As technology used in research continues to evolve, investigators and the research community must continue to examine the ethical challenges that emerge to address participant concerns. Springer Berlin Heidelberg 2021-10-25 2021 /pmc/articles/PMC8542916/ /pubmed/34722103 http://dx.doi.org/10.1007/s12553-021-00611-0 Text en © IUPESM and Springer-Verlag GmbH Germany, part of Springer Nature 2021 This article is made available via the PMC Open Access Subset for unrestricted research re-use and secondary analysis in any form or by any means with acknowledgement of the original source. These permissions are granted for the duration of the World Health Organization (WHO) declaration of COVID-19 as a global pandemic. |
spellingShingle | Short Communication Garett, Renee Young, Sean D. Geolocation, ethics, and HIV research |
title | Geolocation, ethics, and HIV research |
title_full | Geolocation, ethics, and HIV research |
title_fullStr | Geolocation, ethics, and HIV research |
title_full_unstemmed | Geolocation, ethics, and HIV research |
title_short | Geolocation, ethics, and HIV research |
title_sort | geolocation, ethics, and hiv research |
topic | Short Communication |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8542916/ https://www.ncbi.nlm.nih.gov/pubmed/34722103 http://dx.doi.org/10.1007/s12553-021-00611-0 |
work_keys_str_mv | AT garettrenee geolocationethicsandhivresearch AT youngseand geolocationethicsandhivresearch |