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Bringing Advanced Therapies for Parkinson’s Disease to the Clinic: The Patient’s Perspective

There is an urgent unmet need in the Parkinson’s disease community—advanced therapies to modify the inevitable decline that occurs in those affected by this progressive neurodegenerative disease for which there is no cure. This will require collaboration from all stakeholders and central to those pa...

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Detalles Bibliográficos
Autores principales: Mathur, Soania, Stamford, Jon
Formato: Online Artículo Texto
Lenguaje:English
Publicado: IOS Press 2021
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8543244/
https://www.ncbi.nlm.nih.gov/pubmed/33967058
http://dx.doi.org/10.3233/JPD-212650
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author Mathur, Soania
Stamford, Jon
author_facet Mathur, Soania
Stamford, Jon
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description There is an urgent unmet need in the Parkinson’s disease community—advanced therapies to modify the inevitable decline that occurs in those affected by this progressive neurodegenerative disease for which there is no cure. This will require collaboration from all stakeholders and central to those partnerships are patients themselves. But participation in clinical trials and clinical use of advanced therapies have their own risk profile above and beyond standard therapeutics as evidenced by past invasive procedures. Therefore, it is of utmost importance that clear, evidence-based information about these potential treatments be clearly communicated by those exploring their use to ensure safe and informed participation from the patient community. Likewise, patients must weigh the benefits of these treatments their limitations and risks in order to truly give informed consent to participate in bringing these treatments to the clinic. Here we explore these issues from the patient perspective.
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spelling pubmed-85432442021-11-10 Bringing Advanced Therapies for Parkinson’s Disease to the Clinic: The Patient’s Perspective Mathur, Soania Stamford, Jon J Parkinsons Dis Review There is an urgent unmet need in the Parkinson’s disease community—advanced therapies to modify the inevitable decline that occurs in those affected by this progressive neurodegenerative disease for which there is no cure. This will require collaboration from all stakeholders and central to those partnerships are patients themselves. But participation in clinical trials and clinical use of advanced therapies have their own risk profile above and beyond standard therapeutics as evidenced by past invasive procedures. Therefore, it is of utmost importance that clear, evidence-based information about these potential treatments be clearly communicated by those exploring their use to ensure safe and informed participation from the patient community. Likewise, patients must weigh the benefits of these treatments their limitations and risks in order to truly give informed consent to participate in bringing these treatments to the clinic. Here we explore these issues from the patient perspective. IOS Press 2021-09-22 /pmc/articles/PMC8543244/ /pubmed/33967058 http://dx.doi.org/10.3233/JPD-212650 Text en © 2021 – The authors. Published by IOS Press https://creativecommons.org/licenses/by-nc/4.0/This is an open access article distributed under the terms of the Creative Commons Attribution Non-Commercial (CC BY-NC 4.0) License (https://creativecommons.org/licenses/by-nc/4.0/) , which permits unrestricted non-commercial use, distribution, and reproduction in any medium, provided the original work is properly cited.
spellingShingle Review
Mathur, Soania
Stamford, Jon
Bringing Advanced Therapies for Parkinson’s Disease to the Clinic: The Patient’s Perspective
title Bringing Advanced Therapies for Parkinson’s Disease to the Clinic: The Patient’s Perspective
title_full Bringing Advanced Therapies for Parkinson’s Disease to the Clinic: The Patient’s Perspective
title_fullStr Bringing Advanced Therapies for Parkinson’s Disease to the Clinic: The Patient’s Perspective
title_full_unstemmed Bringing Advanced Therapies for Parkinson’s Disease to the Clinic: The Patient’s Perspective
title_short Bringing Advanced Therapies for Parkinson’s Disease to the Clinic: The Patient’s Perspective
title_sort bringing advanced therapies for parkinson’s disease to the clinic: the patient’s perspective
topic Review
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8543244/
https://www.ncbi.nlm.nih.gov/pubmed/33967058
http://dx.doi.org/10.3233/JPD-212650
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