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Facilitating treatment engagement for early psychosis through peer-delivered decision support: intervention development and protocol for pilot evaluation

BACKGROUND: Emerging adults with early psychosis demonstrate high rates of service disengagement from critical early intervention services. Decision support interventions and peer support have both been shown to enhance service engagement but are understudied in this population. The purposes of this...

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Autores principales: Thomas, Elizabeth C., Suarez, John, Lucksted, Alicia, Siminoff, Laura A., Hurford, Irene, Dixon, Lisa B., O’Connell, Maria, Penn, David L., Salzer, Mark S.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2021
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8543800/
https://www.ncbi.nlm.nih.gov/pubmed/34689830
http://dx.doi.org/10.1186/s40814-021-00927-8
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author Thomas, Elizabeth C.
Suarez, John
Lucksted, Alicia
Siminoff, Laura A.
Hurford, Irene
Dixon, Lisa B.
O’Connell, Maria
Penn, David L.
Salzer, Mark S.
author_facet Thomas, Elizabeth C.
Suarez, John
Lucksted, Alicia
Siminoff, Laura A.
Hurford, Irene
Dixon, Lisa B.
O’Connell, Maria
Penn, David L.
Salzer, Mark S.
author_sort Thomas, Elizabeth C.
collection PubMed
description BACKGROUND: Emerging adults with early psychosis demonstrate high rates of service disengagement from critical early intervention services. Decision support interventions and peer support have both been shown to enhance service engagement but are understudied in this population. The purposes of this article are to describe the development of a novel peer-delivered decision coaching intervention for this population and to report plans for a pilot study designed to gather preliminary data about its feasibility, acceptability, and potential impact. METHODS: The intervention was developed based on formative qualitative data and in collaboration with a diverse team of researchers, key stakeholders, and expert consultants. The pilot trial will utilize a single-group (N = 20), pre-post, convergent mixed-methods design to explore whether and how the intervention addresses decision-making needs (the primary intervention target). The impact of the intervention on secondary outcomes (e.g., engagement in the program) will also be assessed. Additionally, through observation and feedback from the peer decision coach and study participants, we will evaluate the feasibility of research and intervention procedures, and the acceptability of information and support from the peer decision coach. DISCUSSION: The peer-delivered decision coaching intervention holds promise for assisting young people with making informed and values-consistent decisions about their care, and potentially enhancing service engagement within this traditionally difficult-to-engage population. If the intervention demonstrates feasibility and acceptability, and pilot data show its potential for improving treatment decision-making, our work will also lay the foundation for a new evidence base regarding roles for peer specialists on early intervention teams. TRIAL REGISTRATION: This trial was registered with ClinicalTrials.gov (Identifier: NCT04532034) on 28 August 2020 as Temple University Protocol Record 261047, Facilitating Engagement in Evidence-Based Treatment for Early Psychosis.
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spelling pubmed-85438002021-10-25 Facilitating treatment engagement for early psychosis through peer-delivered decision support: intervention development and protocol for pilot evaluation Thomas, Elizabeth C. Suarez, John Lucksted, Alicia Siminoff, Laura A. Hurford, Irene Dixon, Lisa B. O’Connell, Maria Penn, David L. Salzer, Mark S. Pilot Feasibility Stud Study Protocol BACKGROUND: Emerging adults with early psychosis demonstrate high rates of service disengagement from critical early intervention services. Decision support interventions and peer support have both been shown to enhance service engagement but are understudied in this population. The purposes of this article are to describe the development of a novel peer-delivered decision coaching intervention for this population and to report plans for a pilot study designed to gather preliminary data about its feasibility, acceptability, and potential impact. METHODS: The intervention was developed based on formative qualitative data and in collaboration with a diverse team of researchers, key stakeholders, and expert consultants. The pilot trial will utilize a single-group (N = 20), pre-post, convergent mixed-methods design to explore whether and how the intervention addresses decision-making needs (the primary intervention target). The impact of the intervention on secondary outcomes (e.g., engagement in the program) will also be assessed. Additionally, through observation and feedback from the peer decision coach and study participants, we will evaluate the feasibility of research and intervention procedures, and the acceptability of information and support from the peer decision coach. DISCUSSION: The peer-delivered decision coaching intervention holds promise for assisting young people with making informed and values-consistent decisions about their care, and potentially enhancing service engagement within this traditionally difficult-to-engage population. If the intervention demonstrates feasibility and acceptability, and pilot data show its potential for improving treatment decision-making, our work will also lay the foundation for a new evidence base regarding roles for peer specialists on early intervention teams. TRIAL REGISTRATION: This trial was registered with ClinicalTrials.gov (Identifier: NCT04532034) on 28 August 2020 as Temple University Protocol Record 261047, Facilitating Engagement in Evidence-Based Treatment for Early Psychosis. BioMed Central 2021-10-24 /pmc/articles/PMC8543800/ /pubmed/34689830 http://dx.doi.org/10.1186/s40814-021-00927-8 Text en © The Author(s) 2021 https://creativecommons.org/licenses/by/4.0/Open AccessThis article is licensed under a Creative Commons Attribution 4.0 International License, which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons licence, and indicate if changes were made. The images or other third party material in this article are included in the article's Creative Commons licence, unless indicated otherwise in a credit line to the material. If material is not included in the article's Creative Commons licence and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this licence, visit http://creativecommons.org/licenses/by/4.0/ (https://creativecommons.org/licenses/by/4.0/) . The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/ (https://creativecommons.org/publicdomain/zero/1.0/) ) applies to the data made available in this article, unless otherwise stated in a credit line to the data.
spellingShingle Study Protocol
Thomas, Elizabeth C.
Suarez, John
Lucksted, Alicia
Siminoff, Laura A.
Hurford, Irene
Dixon, Lisa B.
O’Connell, Maria
Penn, David L.
Salzer, Mark S.
Facilitating treatment engagement for early psychosis through peer-delivered decision support: intervention development and protocol for pilot evaluation
title Facilitating treatment engagement for early psychosis through peer-delivered decision support: intervention development and protocol for pilot evaluation
title_full Facilitating treatment engagement for early psychosis through peer-delivered decision support: intervention development and protocol for pilot evaluation
title_fullStr Facilitating treatment engagement for early psychosis through peer-delivered decision support: intervention development and protocol for pilot evaluation
title_full_unstemmed Facilitating treatment engagement for early psychosis through peer-delivered decision support: intervention development and protocol for pilot evaluation
title_short Facilitating treatment engagement for early psychosis through peer-delivered decision support: intervention development and protocol for pilot evaluation
title_sort facilitating treatment engagement for early psychosis through peer-delivered decision support: intervention development and protocol for pilot evaluation
topic Study Protocol
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8543800/
https://www.ncbi.nlm.nih.gov/pubmed/34689830
http://dx.doi.org/10.1186/s40814-021-00927-8
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