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Integrated Hemophilia Patient Care via a National Network of Care Centers in the United States: A Model for Rare Coagulation Disorders
Rare, chronic diseases such as hemophilia and other congenital coagulation disorders require coordinated delivery of services for optimal outcomes. Hemophilia Treatment Centers (HTCs) are specialized, multidisciplinary health-care centers providing team-based care to meet the physical, psychosocial,...
Autores principales: | Valentino, Leonard A, Baker, Judith R, Butler, Regina, Escobar, Miguel, Frick, Neil, Karp, Susan, Koulianos, Kollet, Lattimore, Susan, Nugent, Diane, Pugliese, Joseph N, Recht, Michael, Reding, Mark T, Rice, Michelle, Thibodeaux, Constance B, Skinner, Mark |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Dove
2021
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8544265/ https://www.ncbi.nlm.nih.gov/pubmed/34707421 http://dx.doi.org/10.2147/JBM.S325031 |
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