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Can you hear us now? The impact of health-care utilization by rare disease patients in the United States

PURPOSE: The vast majority of rare diseases (RDs) are complex, disabling, and life-threatening conditions with a genetic origin. RD patients face significant health challenges and limited treatments, yet the extent of their impact within health care is not well known. One direct method to gauge the...

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Detalles Bibliográficos
Autores principales:	Navarrete-Opazo, Angela A., Singh, Maharaj, Tisdale, Ainslie, Cutillo, Christine M., Garrison, Sheldon R.
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	Nature Publishing Group US 2021
Materias:	Article
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8553605/ https://www.ncbi.nlm.nih.gov/pubmed/34183788 http://dx.doi.org/10.1038/s41436-021-01241-7

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