Development of the Myasthenia Gravis (MG) Symptoms PRO: a case study of a patient-centred outcome measure in rare disease

BACKGROUND: Myasthenia gravis (MG) is a chronic autoimmune neuromuscular disease, characterised by fluctuating muscle weakness which makes it challenging to assess symptom severity. Mixed methods psychometrics (MMP), which combines evidence from qualitative research and modern psychometrics, is a ve...

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Detalles Bibliográficos
Autores principales: Cleanthous, Sophie, Mork, Ann-Christin, Regnault, Antoine, Cano, Stefan, Kaminski, Henry J., Morel, Thomas
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2021
Materias:
Research
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8556940/
https://www.ncbi.nlm.nih.gov/pubmed/34717694
http://dx.doi.org/10.1186/s13023-021-02064-0

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