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Developing a Next-of-Kin Involvement Guide in Cancer Care—Results From a Consensus Process

BACKGROUND: In hospital cancer care, there is no set standard for next-of-kin involvement in improving the quality of care and patient safety. There is therefore a growing need for tools and methods that can guide this complex area. OBJECTIVE: The aim of this study was to present the results from a...

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Autores principales: Bergerød, Inger J., Braut, Geir S., Fagerdal, Birte, Gilje, Bjørnar, Wiig, Siri
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Lippincott Williams & Wilkins 2021
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8560156/
https://www.ncbi.nlm.nih.gov/pubmed/32769375
http://dx.doi.org/10.1097/NCC.0000000000000869
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author Bergerød, Inger J.
Braut, Geir S.
Fagerdal, Birte
Gilje, Bjørnar
Wiig, Siri
author_facet Bergerød, Inger J.
Braut, Geir S.
Fagerdal, Birte
Gilje, Bjørnar
Wiig, Siri
author_sort Bergerød, Inger J.
collection PubMed
description BACKGROUND: In hospital cancer care, there is no set standard for next-of-kin involvement in improving the quality of care and patient safety. There is therefore a growing need for tools and methods that can guide this complex area. OBJECTIVE: The aim of this study was to present the results from a consensus-based participatory process of designing a guide for next-of-kin involvement in hospital cancer care. METHOD: A consensus process based on a modified Nominal group technique was applied with 20 stakeholder participants from 2 Norwegian university hospitals. RESULT: The participants agreed on the 5 most important priorities for hospital cancer care services when involving next-of-kin. The results showed that next-of-kin stakeholders, when proactively involved, are important resources for the patient and healthcare professionals in terms of contribution to quality and safety in hospitals. Suggested means of involving next-of-kin were closer interaction with external support bodies, integration in clinical pathways, adjusted information, and training healthcare professionals. CONCLUSION: In this study, we identified topics and elements to include in a next-of-kin involvement guide to support quality and safety in hospital cancer care. The study raises awareness of the complex area of next-of-kin involvement and contributes with theory development and knowledge translation in an involvement guide tailored for use by healthcare professionals and managers in everyday clinical practice. IMPLICATIONS FOR PRACTICE: Service providers can use the guide to formulate intentions and make decisions with suggestions and priorities or as a reflexive tool for organizational improvement.
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spelling pubmed-85601562021-11-05 Developing a Next-of-Kin Involvement Guide in Cancer Care—Results From a Consensus Process Bergerød, Inger J. Braut, Geir S. Fagerdal, Birte Gilje, Bjørnar Wiig, Siri Cancer Nurs Articles: Online Only BACKGROUND: In hospital cancer care, there is no set standard for next-of-kin involvement in improving the quality of care and patient safety. There is therefore a growing need for tools and methods that can guide this complex area. OBJECTIVE: The aim of this study was to present the results from a consensus-based participatory process of designing a guide for next-of-kin involvement in hospital cancer care. METHOD: A consensus process based on a modified Nominal group technique was applied with 20 stakeholder participants from 2 Norwegian university hospitals. RESULT: The participants agreed on the 5 most important priorities for hospital cancer care services when involving next-of-kin. The results showed that next-of-kin stakeholders, when proactively involved, are important resources for the patient and healthcare professionals in terms of contribution to quality and safety in hospitals. Suggested means of involving next-of-kin were closer interaction with external support bodies, integration in clinical pathways, adjusted information, and training healthcare professionals. CONCLUSION: In this study, we identified topics and elements to include in a next-of-kin involvement guide to support quality and safety in hospital cancer care. The study raises awareness of the complex area of next-of-kin involvement and contributes with theory development and knowledge translation in an involvement guide tailored for use by healthcare professionals and managers in everyday clinical practice. IMPLICATIONS FOR PRACTICE: Service providers can use the guide to formulate intentions and make decisions with suggestions and priorities or as a reflexive tool for organizational improvement. Lippincott Williams & Wilkins 2021 2020-08-03 /pmc/articles/PMC8560156/ /pubmed/32769375 http://dx.doi.org/10.1097/NCC.0000000000000869 Text en Copyright © 2020 The Authors. Published by Wolters Kluwer Health, Inc. https://creativecommons.org/licenses/by/4.0/This is an open access article distributed under the Creative Commons Attribution License 4.0 (CCBY) (https://creativecommons.org/licenses/by/4.0/) , which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.
spellingShingle Articles: Online Only
Bergerød, Inger J.
Braut, Geir S.
Fagerdal, Birte
Gilje, Bjørnar
Wiig, Siri
Developing a Next-of-Kin Involvement Guide in Cancer Care—Results From a Consensus Process
title Developing a Next-of-Kin Involvement Guide in Cancer Care—Results From a Consensus Process
title_full Developing a Next-of-Kin Involvement Guide in Cancer Care—Results From a Consensus Process
title_fullStr Developing a Next-of-Kin Involvement Guide in Cancer Care—Results From a Consensus Process
title_full_unstemmed Developing a Next-of-Kin Involvement Guide in Cancer Care—Results From a Consensus Process
title_short Developing a Next-of-Kin Involvement Guide in Cancer Care—Results From a Consensus Process
title_sort developing a next-of-kin involvement guide in cancer care—results from a consensus process
topic Articles: Online Only
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8560156/
https://www.ncbi.nlm.nih.gov/pubmed/32769375
http://dx.doi.org/10.1097/NCC.0000000000000869
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