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Gender Transition: Is There a Right to Be Forgotten?

The European Union (EU) faced high risks from personal data proliferation to individuals’ privacy. Legislation has emerged that seeks to articulate all interests at stake, balancing the need for data flow from EU countries with protecting personal data: the General Data Protection Regulation. One of...

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Detalles Bibliográficos
Autores principales: Correia, Mónica, Rêgo, Guilhermina, Nunes, Rui
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Springer US 2021
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8560724/
https://www.ncbi.nlm.nih.gov/pubmed/33937950
http://dx.doi.org/10.1007/s10728-021-00433-1
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author Correia, Mónica
Rêgo, Guilhermina
Nunes, Rui
author_facet Correia, Mónica
Rêgo, Guilhermina
Nunes, Rui
author_sort Correia, Mónica
collection PubMed
description The European Union (EU) faced high risks from personal data proliferation to individuals’ privacy. Legislation has emerged that seeks to articulate all interests at stake, balancing the need for data flow from EU countries with protecting personal data: the General Data Protection Regulation. One of the mechanisms established by this new law to strengthen the individual’s control over their data is the so-called “right to be forgotten”, the right to obtain from the controller the erasure of records. In gender transition, this right represents a powerful form of control over personal data, especially health data that may reveal a gender with which they do not identify and reject. Therefore, it is pertinent to discern whether the right to have personal data deleted—in particular, health data—is ethically acceptable in gender transition. Towards addressing the ethical dimensions of the right to be forgotten in this case, this study presents relevant concepts, briefly outlines history, ethics and law of records considering the evolution from paper to electronic format, the main aspects of identity construction and gender identity, and explores the relationship between privacy, data protection/information control and identity projection. Also, it discusses in gender transition the relation between “the right to self-determination”, “the right to delete”, and “the right to identity and individuality”. Conclusions on the ethical admissibility of the ‘right to be forgotten’ to control gender-affirming information are presented.
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spelling pubmed-85607242021-11-15 Gender Transition: Is There a Right to Be Forgotten? Correia, Mónica Rêgo, Guilhermina Nunes, Rui Health Care Anal Original Article The European Union (EU) faced high risks from personal data proliferation to individuals’ privacy. Legislation has emerged that seeks to articulate all interests at stake, balancing the need for data flow from EU countries with protecting personal data: the General Data Protection Regulation. One of the mechanisms established by this new law to strengthen the individual’s control over their data is the so-called “right to be forgotten”, the right to obtain from the controller the erasure of records. In gender transition, this right represents a powerful form of control over personal data, especially health data that may reveal a gender with which they do not identify and reject. Therefore, it is pertinent to discern whether the right to have personal data deleted—in particular, health data—is ethically acceptable in gender transition. Towards addressing the ethical dimensions of the right to be forgotten in this case, this study presents relevant concepts, briefly outlines history, ethics and law of records considering the evolution from paper to electronic format, the main aspects of identity construction and gender identity, and explores the relationship between privacy, data protection/information control and identity projection. Also, it discusses in gender transition the relation between “the right to self-determination”, “the right to delete”, and “the right to identity and individuality”. Conclusions on the ethical admissibility of the ‘right to be forgotten’ to control gender-affirming information are presented. Springer US 2021-05-02 2021 /pmc/articles/PMC8560724/ /pubmed/33937950 http://dx.doi.org/10.1007/s10728-021-00433-1 Text en © The Author(s) 2021 https://creativecommons.org/licenses/by/4.0/Open AccessThis article is licensed under a Creative Commons Attribution 4.0 International License, which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons licence, and indicate if changes were made. The images or other third party material in this article are included in the article's Creative Commons licence, unless indicated otherwise in a credit line to the material. If material is not included in the article's Creative Commons licence and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this licence, visit http://creativecommons.org/licenses/by/4.0/ (https://creativecommons.org/licenses/by/4.0/) .
spellingShingle Original Article
Correia, Mónica
Rêgo, Guilhermina
Nunes, Rui
Gender Transition: Is There a Right to Be Forgotten?
title Gender Transition: Is There a Right to Be Forgotten?
title_full Gender Transition: Is There a Right to Be Forgotten?
title_fullStr Gender Transition: Is There a Right to Be Forgotten?
title_full_unstemmed Gender Transition: Is There a Right to Be Forgotten?
title_short Gender Transition: Is There a Right to Be Forgotten?
title_sort gender transition: is there a right to be forgotten?
topic Original Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8560724/
https://www.ncbi.nlm.nih.gov/pubmed/33937950
http://dx.doi.org/10.1007/s10728-021-00433-1
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