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Patients’ priorities and expectations on an EU registry for rare bone and mineral conditions

BACKGROUND: Understanding the natural history of rare bone and mineral conditions is essential for improving clinical practice and the development of new diagnostics and therapeutics. Recruitment and long-term participation in registries are key challenges for researchers. METHODS: To understand the...

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Detalles Bibliográficos
Autores principales:	Javaid, Muhammad Kassim, Mordenti, Marina, Boarini, Manila, Sangiorgi, Luca, Westerheim, Ingunn, Alves, Inês, Skarberg, Rebecca Tvedt, Appelman-Dijkstra, Natasha M., Grasemann, Corinna
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	BioMed Central 2021
Materias:	Research
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8564998/ https://www.ncbi.nlm.nih.gov/pubmed/34732217 http://dx.doi.org/10.1186/s13023-021-02069-9

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