A structured patient empowerment programme for primary immunodeficiency significantly improves general and health-related quality of life

INTRODUCTION: Primary immunodeficiencies (PIDs) are a heterogeneous group of rare diseases characterized by increased susceptibility to infections and a reduced quality of life (QoL). The influence of a patient empowerment programme for PID (PID-PEP) on general and health-related QoL was assessed in...

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Detalles Bibliográficos
Autores principales: Fasshauer, Maria, SCHUERMANN, GESINE, Gebert, Norbert, von Bernuth, Horst, Goldacker, Sigune, Krueger, Renate, Manzey, Petra, Notheis, Gundula, Ritterbusch, Henrike, Schauer, Uwe, Schulze, Ilka, Umlauf, Volker, Widmann, Steffi, Baumann, Ulrich
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Termedia Publishing House 2021
Materias:
Clinical Immunology
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8568033/
https://www.ncbi.nlm.nih.gov/pubmed/34764794
http://dx.doi.org/10.5114/ceji.2021.107088

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