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Impact of the J Project on progress of primary immunodeficiency care in Ukraine

The J Project is a Central-Eastern European collaborative program in the field of physician education and clinical research aimed at improving the clinical care and diagnosis of primary immunodeficiency disorders (PIDs). Ukraine was one of the first to participate in the project, which allowed us to...

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Detalles Bibliográficos
Autores principales: Volokha, Alla, Bondarenko, Anastasia, Chernyshova, Liudmyla, Hilfanova, Anna, Stepanovskiy, Yuriy, Boyarchuk, Oksana, Kostyuchenko, Larysa
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Termedia Publishing House 2021
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8568034/
https://www.ncbi.nlm.nih.gov/pubmed/34764795
http://dx.doi.org/10.5114/ceji.2021.108183
Descripción
Sumario:The J Project is a Central-Eastern European collaborative program in the field of physician education and clinical research aimed at improving the clinical care and diagnosis of primary immunodeficiency disorders (PIDs). Ukraine was one of the first to participate in the project, which allowed us to join the whole European PID community. Since 2004, the country has been holding annual J Project meetings with the involvement of new regions. The spread of the J Project impact has contributed to significantly improved early PID diagnosis in Ukraine. Progress has been made not only in identifying patients but also in arranging the treatment. The assistance in genetic diagnosis made it possible to detect PIDs, study their features, and improve approaches to the management. This also gave an impetus to the development of regional PID centers and participation in scientific research. Of utmost importance is the cooperation with colleagues from Poland, Hungary, and Belarus, who are active members of the J Project.