Patient-focused pathogen genetic counselling—has the time come?

Ensuring accordance with principles of healthcare ethics requires improved communication of pathogen genomic data. This could include educating healthcare professionals in communicating pathogen genomic information to individuals, developing ethical frameworks for reporting pathogen genomic results...

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Detalles Bibliográficos
Autores principales: Ferdinand, Angeline S, Hocking, Jane S, Denholm, Justin T., Howden, Benjamin P., Williamson, Deborah A.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2021
Materias:
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Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8574140/
https://www.ncbi.nlm.nih.gov/pubmed/34749791
http://dx.doi.org/10.1186/s13073-021-00993-w
Descripción
Sumario:Ensuring accordance with principles of healthcare ethics requires improved communication of pathogen genomic data. This could include educating healthcare professionals in communicating pathogen genomic information to individuals, developing ethical frameworks for reporting pathogen genomic results to individuals, responsible media reporting guidelines, and counselling for individuals (‘pathogen genetic counselling’).

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