Patient-focused pathogen genetic counselling—has the time come?

Ensuring accordance with principles of healthcare ethics requires improved communication of pathogen genomic data. This could include educating healthcare professionals in communicating pathogen genomic information to individuals, developing ethical frameworks for reporting pathogen genomic results...

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Detalles Bibliográficos
Autores principales: Ferdinand, Angeline S, Hocking, Jane S, Denholm, Justin T., Howden, Benjamin P., Williamson, Deborah A.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2021
Materias:
Comment
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8574140/
https://www.ncbi.nlm.nih.gov/pubmed/34749791
http://dx.doi.org/10.1186/s13073-021-00993-w
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author Ferdinand, Angeline S
Hocking, Jane S
Denholm, Justin T.
Howden, Benjamin P.
Williamson, Deborah A.
author_facet Ferdinand, Angeline S
Hocking, Jane S
Denholm, Justin T.
Howden, Benjamin P.
Williamson, Deborah A.
author_sort Ferdinand, Angeline S
collection PubMed
description Ensuring accordance with principles of healthcare ethics requires improved communication of pathogen genomic data. This could include educating healthcare professionals in communicating pathogen genomic information to individuals, developing ethical frameworks for reporting pathogen genomic results to individuals, responsible media reporting guidelines, and counselling for individuals (‘pathogen genetic counselling’).
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spelling pubmed-85741402021-11-08 Patient-focused pathogen genetic counselling—has the time come? Ferdinand, Angeline S Hocking, Jane S Denholm, Justin T. Howden, Benjamin P. Williamson, Deborah A. Genome Med Comment Ensuring accordance with principles of healthcare ethics requires improved communication of pathogen genomic data. This could include educating healthcare professionals in communicating pathogen genomic information to individuals, developing ethical frameworks for reporting pathogen genomic results to individuals, responsible media reporting guidelines, and counselling for individuals (‘pathogen genetic counselling’). BioMed Central 2021-11-08 /pmc/articles/PMC8574140/ /pubmed/34749791 http://dx.doi.org/10.1186/s13073-021-00993-w Text en © The Author(s) 2021 https://creativecommons.org/licenses/by/4.0/Open AccessThis article is licensed under a Creative Commons Attribution 4.0 International License, which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons licence, and indicate if changes were made. The images or other third party material in this article are included in the article's Creative Commons licence, unless indicated otherwise in a credit line to the material. If material is not included in the article's Creative Commons licence and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this licence, visit http://creativecommons.org/licenses/by/4.0/ (https://creativecommons.org/licenses/by/4.0/) . The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/ (https://creativecommons.org/publicdomain/zero/1.0/) ) applies to the data made available in this article, unless otherwise stated in a credit line to the data.
spellingShingle Comment
Ferdinand, Angeline S
Hocking, Jane S
Denholm, Justin T.
Howden, Benjamin P.
Williamson, Deborah A.
Patient-focused pathogen genetic counselling—has the time come?
title Patient-focused pathogen genetic counselling—has the time come?
title_full Patient-focused pathogen genetic counselling—has the time come?
title_fullStr Patient-focused pathogen genetic counselling—has the time come?
title_full_unstemmed Patient-focused pathogen genetic counselling—has the time come?
title_short Patient-focused pathogen genetic counselling—has the time come?
title_sort patient-focused pathogen genetic counselling—has the time come?
topic Comment
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8574140/
https://www.ncbi.nlm.nih.gov/pubmed/34749791
http://dx.doi.org/10.1186/s13073-021-00993-w
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