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Women’s experiences of accessing individualized disability supports: gender inequality and Australia’s National Disability Insurance Scheme

BACKGROUND: Care services in industrialized nations are increasingly moving towards individualized funding models, which aim to increase individuals’ flexibility, choice and control over their services and supports. Recent research suggests that such schemes have the potential to exacerbate inequali...

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Autores principales: Yates, Sophie, Carey, Gemma, Hargrave, Jen, Malbon, Eleanor, Green, Celia
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2021
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8576985/
https://www.ncbi.nlm.nih.gov/pubmed/34749729
http://dx.doi.org/10.1186/s12939-021-01571-7
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author Yates, Sophie
Carey, Gemma
Hargrave, Jen
Malbon, Eleanor
Green, Celia
author_facet Yates, Sophie
Carey, Gemma
Hargrave, Jen
Malbon, Eleanor
Green, Celia
author_sort Yates, Sophie
collection PubMed
description BACKGROUND: Care services in industrialized nations are increasingly moving towards individualized funding models, which aim to increase individuals’ flexibility, choice and control over their services and supports. Recent research suggests that such schemes have the potential to exacerbate inequalities, however none has explored gendered dimensions of inequality. The Australian National Disability Insurance Scheme (NDIS) is a major individualized funding reform, and has a female participation rate of only 37%, despite women and girls making up half of the disability population. METHODS: The objective of the study is to explore possible gendered barriers to applying for and receiving adequate support through the NDIS, and to suggest directions for future research. We report on semi-structured interviews with 30 women with disability and explore their experiences with the NDIS and their perspectives on challenges associated with being a woman seeking disability support in Australia. We analyse the results using thematic analysis. RESULTS: Most women in our sample reported differences between the experiences of men and women seeking disability support in Australia. Commonly reported gendered barriers to women being able to access the right supports for their disability involve a) confidence, negotiation and self-advocacy, b) gendered discrimination in diagnosis and the medical system, which has implications for disability support access, and c) support for and recognition of caring roles. CONCLUSIONS: These results suggest that women are not receiving equitable treatment with regard to the NDIS, and that further research and policy reform are needed to ensure that women with disability are not further disadvantaged as a result of the move toward individualized funding models.
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spelling pubmed-85769852021-11-10 Women’s experiences of accessing individualized disability supports: gender inequality and Australia’s National Disability Insurance Scheme Yates, Sophie Carey, Gemma Hargrave, Jen Malbon, Eleanor Green, Celia Int J Equity Health Research BACKGROUND: Care services in industrialized nations are increasingly moving towards individualized funding models, which aim to increase individuals’ flexibility, choice and control over their services and supports. Recent research suggests that such schemes have the potential to exacerbate inequalities, however none has explored gendered dimensions of inequality. The Australian National Disability Insurance Scheme (NDIS) is a major individualized funding reform, and has a female participation rate of only 37%, despite women and girls making up half of the disability population. METHODS: The objective of the study is to explore possible gendered barriers to applying for and receiving adequate support through the NDIS, and to suggest directions for future research. We report on semi-structured interviews with 30 women with disability and explore their experiences with the NDIS and their perspectives on challenges associated with being a woman seeking disability support in Australia. We analyse the results using thematic analysis. RESULTS: Most women in our sample reported differences between the experiences of men and women seeking disability support in Australia. Commonly reported gendered barriers to women being able to access the right supports for their disability involve a) confidence, negotiation and self-advocacy, b) gendered discrimination in diagnosis and the medical system, which has implications for disability support access, and c) support for and recognition of caring roles. CONCLUSIONS: These results suggest that women are not receiving equitable treatment with regard to the NDIS, and that further research and policy reform are needed to ensure that women with disability are not further disadvantaged as a result of the move toward individualized funding models. BioMed Central 2021-11-08 /pmc/articles/PMC8576985/ /pubmed/34749729 http://dx.doi.org/10.1186/s12939-021-01571-7 Text en © The Author(s) 2021 https://creativecommons.org/licenses/by/4.0/Open AccessThis article is licensed under a Creative Commons Attribution 4.0 International License, which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons licence, and indicate if changes were made. The images or other third party material in this article are included in the article's Creative Commons licence, unless indicated otherwise in a credit line to the material. If material is not included in the article's Creative Commons licence and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this licence, visit http://creativecommons.org/licenses/by/4.0/ (https://creativecommons.org/licenses/by/4.0/) . The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/ (https://creativecommons.org/publicdomain/zero/1.0/) ) applies to the data made available in this article, unless otherwise stated in a credit line to the data.
spellingShingle Research
Yates, Sophie
Carey, Gemma
Hargrave, Jen
Malbon, Eleanor
Green, Celia
Women’s experiences of accessing individualized disability supports: gender inequality and Australia’s National Disability Insurance Scheme
title Women’s experiences of accessing individualized disability supports: gender inequality and Australia’s National Disability Insurance Scheme
title_full Women’s experiences of accessing individualized disability supports: gender inequality and Australia’s National Disability Insurance Scheme
title_fullStr Women’s experiences of accessing individualized disability supports: gender inequality and Australia’s National Disability Insurance Scheme
title_full_unstemmed Women’s experiences of accessing individualized disability supports: gender inequality and Australia’s National Disability Insurance Scheme
title_short Women’s experiences of accessing individualized disability supports: gender inequality and Australia’s National Disability Insurance Scheme
title_sort women’s experiences of accessing individualized disability supports: gender inequality and australia’s national disability insurance scheme
topic Research
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8576985/
https://www.ncbi.nlm.nih.gov/pubmed/34749729
http://dx.doi.org/10.1186/s12939-021-01571-7
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