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GA4GH Passport standard for digital identity and access permissions

The Global Alliance for Genomics and Health (GA4GH) supports international standards that enable a federated data sharing model for the research community while respecting data security, ethical and regulatory frameworks, and data authorization and access processes for sensitive data. The GA4GH Pass...

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Autores principales: Voisin, Craig, Linden, Mikael, Dyke, Stephanie O.M., Bowers, Sarion R., Alper, Pinar, Barkley, Maxmillian P., Bernick, David, Chao, Jianpeng, Courtot, Mélanie, Jeanson, Francis, Konopko, Melissa A., Kuba, Martin, Lawson, Jonathan, Leinonen, Jaakko, Li, Stephanie, Ota Wang, Vivian, Philippakis, Anthony A., Reinold, Kathy, Rushton, Gregory A., Spalding, J. Dylan, Törnroos, Juha, Tulchinsky, Ilya, Guidry Auvil, Jaime M., Nyrönen, Tommi H.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Elsevier 2021
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8591913/
https://www.ncbi.nlm.nih.gov/pubmed/34820660
http://dx.doi.org/10.1016/j.xgen.2021.100030
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author Voisin, Craig
Linden, Mikael
Dyke, Stephanie O.M.
Bowers, Sarion R.
Alper, Pinar
Barkley, Maxmillian P.
Bernick, David
Chao, Jianpeng
Courtot, Mélanie
Jeanson, Francis
Konopko, Melissa A.
Kuba, Martin
Lawson, Jonathan
Leinonen, Jaakko
Li, Stephanie
Ota Wang, Vivian
Philippakis, Anthony A.
Reinold, Kathy
Rushton, Gregory A.
Spalding, J. Dylan
Törnroos, Juha
Tulchinsky, Ilya
Guidry Auvil, Jaime M.
Nyrönen, Tommi H.
author_facet Voisin, Craig
Linden, Mikael
Dyke, Stephanie O.M.
Bowers, Sarion R.
Alper, Pinar
Barkley, Maxmillian P.
Bernick, David
Chao, Jianpeng
Courtot, Mélanie
Jeanson, Francis
Konopko, Melissa A.
Kuba, Martin
Lawson, Jonathan
Leinonen, Jaakko
Li, Stephanie
Ota Wang, Vivian
Philippakis, Anthony A.
Reinold, Kathy
Rushton, Gregory A.
Spalding, J. Dylan
Törnroos, Juha
Tulchinsky, Ilya
Guidry Auvil, Jaime M.
Nyrönen, Tommi H.
author_sort Voisin, Craig
collection PubMed
description The Global Alliance for Genomics and Health (GA4GH) supports international standards that enable a federated data sharing model for the research community while respecting data security, ethical and regulatory frameworks, and data authorization and access processes for sensitive data. The GA4GH Passport standard (Passport) defines a machine-readable digital identity that conveys roles and data access permissions (called “visas”) for individual users. Visas are issued by data stewards, including data access committees (DACs) working with public databases, the entities responsible for the quality, integrity, and access arrangements for the datasets in the management of human biomedical data. Passports streamline management of data access rights across data systems by using visas that present a data user’s digital identity and permissions across organizations, tools, environments, and services. We describe real-world implementations of the GA4GH Passport standard in use cases from ELIXIR Europe, National Institutes of Health, and the Autism Sharing Initiative. These implementations demonstrate that the Passport standard has provided transparent mechanisms for establishing permissions and authorizing data access across platforms.
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spelling pubmed-85919132021-11-22 GA4GH Passport standard for digital identity and access permissions Voisin, Craig Linden, Mikael Dyke, Stephanie O.M. Bowers, Sarion R. Alper, Pinar Barkley, Maxmillian P. Bernick, David Chao, Jianpeng Courtot, Mélanie Jeanson, Francis Konopko, Melissa A. Kuba, Martin Lawson, Jonathan Leinonen, Jaakko Li, Stephanie Ota Wang, Vivian Philippakis, Anthony A. Reinold, Kathy Rushton, Gregory A. Spalding, J. Dylan Törnroos, Juha Tulchinsky, Ilya Guidry Auvil, Jaime M. Nyrönen, Tommi H. Cell Genom Technology The Global Alliance for Genomics and Health (GA4GH) supports international standards that enable a federated data sharing model for the research community while respecting data security, ethical and regulatory frameworks, and data authorization and access processes for sensitive data. The GA4GH Passport standard (Passport) defines a machine-readable digital identity that conveys roles and data access permissions (called “visas”) for individual users. Visas are issued by data stewards, including data access committees (DACs) working with public databases, the entities responsible for the quality, integrity, and access arrangements for the datasets in the management of human biomedical data. Passports streamline management of data access rights across data systems by using visas that present a data user’s digital identity and permissions across organizations, tools, environments, and services. We describe real-world implementations of the GA4GH Passport standard in use cases from ELIXIR Europe, National Institutes of Health, and the Autism Sharing Initiative. These implementations demonstrate that the Passport standard has provided transparent mechanisms for establishing permissions and authorizing data access across platforms. Elsevier 2021-11-10 /pmc/articles/PMC8591913/ /pubmed/34820660 http://dx.doi.org/10.1016/j.xgen.2021.100030 Text en © 2021 The Author(s) https://creativecommons.org/licenses/by/4.0/This is an open access article under the CC BY license (http://creativecommons.org/licenses/by/4.0/).
spellingShingle Technology
Voisin, Craig
Linden, Mikael
Dyke, Stephanie O.M.
Bowers, Sarion R.
Alper, Pinar
Barkley, Maxmillian P.
Bernick, David
Chao, Jianpeng
Courtot, Mélanie
Jeanson, Francis
Konopko, Melissa A.
Kuba, Martin
Lawson, Jonathan
Leinonen, Jaakko
Li, Stephanie
Ota Wang, Vivian
Philippakis, Anthony A.
Reinold, Kathy
Rushton, Gregory A.
Spalding, J. Dylan
Törnroos, Juha
Tulchinsky, Ilya
Guidry Auvil, Jaime M.
Nyrönen, Tommi H.
GA4GH Passport standard for digital identity and access permissions
title GA4GH Passport standard for digital identity and access permissions
title_full GA4GH Passport standard for digital identity and access permissions
title_fullStr GA4GH Passport standard for digital identity and access permissions
title_full_unstemmed GA4GH Passport standard for digital identity and access permissions
title_short GA4GH Passport standard for digital identity and access permissions
title_sort ga4gh passport standard for digital identity and access permissions
topic Technology
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8591913/
https://www.ncbi.nlm.nih.gov/pubmed/34820660
http://dx.doi.org/10.1016/j.xgen.2021.100030
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