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Standard set of patient-reported outcomes for personality disorder

PURPOSE: The purpose of the article is to present standard set of outcomes for people with personality disorder (PD), in order to facilitate patient outcome measurement worldwide. METHODS: The International Consortium for Health Outcomes Measurement (ICHOM) gathered a multidisciplinary international...

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Autores principales: Prevolnik Rupel, Valentina, Jagger, Beth, Fialho, Luz Sousa, Chadderton, Lisa-Marie, Gintner, Timea, Arntz, Anroud, Baltzersen, Åse-Line, Blazdell, Julia, van Busschbach, Jan, Cencelli, Marika, Chanen, Andrew, Delvaux, Charlotte, van Gorp, Fieke, Langford, Lucie, McKenna, Brian, Moran, Paul, Pacheco, Karla, Sharp, Carla, Wang, Wei, Wright, Karen, Crawford, Mike J.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Springer International Publishing 2021
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8602216/
https://www.ncbi.nlm.nih.gov/pubmed/34075531
http://dx.doi.org/10.1007/s11136-021-02870-w
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author Prevolnik Rupel, Valentina
Jagger, Beth
Fialho, Luz Sousa
Chadderton, Lisa-Marie
Gintner, Timea
Arntz, Anroud
Baltzersen, Åse-Line
Blazdell, Julia
van Busschbach, Jan
Cencelli, Marika
Chanen, Andrew
Delvaux, Charlotte
van Gorp, Fieke
Langford, Lucie
McKenna, Brian
Moran, Paul
Pacheco, Karla
Sharp, Carla
Wang, Wei
Wright, Karen
Crawford, Mike J.
author_facet Prevolnik Rupel, Valentina
Jagger, Beth
Fialho, Luz Sousa
Chadderton, Lisa-Marie
Gintner, Timea
Arntz, Anroud
Baltzersen, Åse-Line
Blazdell, Julia
van Busschbach, Jan
Cencelli, Marika
Chanen, Andrew
Delvaux, Charlotte
van Gorp, Fieke
Langford, Lucie
McKenna, Brian
Moran, Paul
Pacheco, Karla
Sharp, Carla
Wang, Wei
Wright, Karen
Crawford, Mike J.
author_sort Prevolnik Rupel, Valentina
collection PubMed
description PURPOSE: The purpose of the article is to present standard set of outcomes for people with personality disorder (PD), in order to facilitate patient outcome measurement worldwide. METHODS: The International Consortium for Health Outcomes Measurement (ICHOM) gathered a multidisciplinary international working group, consisting of 16 experts, including clinicians, nurses, psychologists, methodologists and patient representatives, to develop a standard set of outcome measures for people with PD. The Delphi method was used to reach consensus on the scope of the set, outcome domains, outcome measures, case-mix variables and time points for measuring outcomes in service users. For each phase, a project team prepared materials based on systematic literature reviews and consultations with experts. RESULTS: The working group decided to include PD, as defined by International Classification of Diseases 11th revision (ICD-11). Eleven core outcomes and three optional outcomes across four health domains (mental health, behaviour, functioning and recovery) were defined as those relevant for people with PD. Validated measures for the selected outcomes were selected, some covering more than one outcome. Case-mix variables were aligned to other ICHOM mental health standard sets and consisted of demographic factors and those related to the treatment that people received. The group recommended that most outcomes are measured at baseline and annually. CONCLUSION: The international minimum standard set of outcomes has the potential to improve clinical decision making through systematic measurement and comparability. This will be key in improving the standard of health care for people with PD across the world.
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spelling pubmed-86022162021-12-03 Standard set of patient-reported outcomes for personality disorder Prevolnik Rupel, Valentina Jagger, Beth Fialho, Luz Sousa Chadderton, Lisa-Marie Gintner, Timea Arntz, Anroud Baltzersen, Åse-Line Blazdell, Julia van Busschbach, Jan Cencelli, Marika Chanen, Andrew Delvaux, Charlotte van Gorp, Fieke Langford, Lucie McKenna, Brian Moran, Paul Pacheco, Karla Sharp, Carla Wang, Wei Wright, Karen Crawford, Mike J. Qual Life Res Article PURPOSE: The purpose of the article is to present standard set of outcomes for people with personality disorder (PD), in order to facilitate patient outcome measurement worldwide. METHODS: The International Consortium for Health Outcomes Measurement (ICHOM) gathered a multidisciplinary international working group, consisting of 16 experts, including clinicians, nurses, psychologists, methodologists and patient representatives, to develop a standard set of outcome measures for people with PD. The Delphi method was used to reach consensus on the scope of the set, outcome domains, outcome measures, case-mix variables and time points for measuring outcomes in service users. For each phase, a project team prepared materials based on systematic literature reviews and consultations with experts. RESULTS: The working group decided to include PD, as defined by International Classification of Diseases 11th revision (ICD-11). Eleven core outcomes and three optional outcomes across four health domains (mental health, behaviour, functioning and recovery) were defined as those relevant for people with PD. Validated measures for the selected outcomes were selected, some covering more than one outcome. Case-mix variables were aligned to other ICHOM mental health standard sets and consisted of demographic factors and those related to the treatment that people received. The group recommended that most outcomes are measured at baseline and annually. CONCLUSION: The international minimum standard set of outcomes has the potential to improve clinical decision making through systematic measurement and comparability. This will be key in improving the standard of health care for people with PD across the world. Springer International Publishing 2021-06-02 2021 /pmc/articles/PMC8602216/ /pubmed/34075531 http://dx.doi.org/10.1007/s11136-021-02870-w Text en © The Author(s) 2021 https://creativecommons.org/licenses/by/4.0/Open AccessThis article is licensed under a Creative Commons Attribution 4.0 International License, which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons licence, and indicate if changes were made. The images or other third party material in this article are included in the article's Creative Commons licence, unless indicated otherwise in a credit line to the material. If material is not included in the article's Creative Commons licence and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this licence, visit http://creativecommons.org/licenses/by/4.0/ (https://creativecommons.org/licenses/by/4.0/) .
spellingShingle Article
Prevolnik Rupel, Valentina
Jagger, Beth
Fialho, Luz Sousa
Chadderton, Lisa-Marie
Gintner, Timea
Arntz, Anroud
Baltzersen, Åse-Line
Blazdell, Julia
van Busschbach, Jan
Cencelli, Marika
Chanen, Andrew
Delvaux, Charlotte
van Gorp, Fieke
Langford, Lucie
McKenna, Brian
Moran, Paul
Pacheco, Karla
Sharp, Carla
Wang, Wei
Wright, Karen
Crawford, Mike J.
Standard set of patient-reported outcomes for personality disorder
title Standard set of patient-reported outcomes for personality disorder
title_full Standard set of patient-reported outcomes for personality disorder
title_fullStr Standard set of patient-reported outcomes for personality disorder
title_full_unstemmed Standard set of patient-reported outcomes for personality disorder
title_short Standard set of patient-reported outcomes for personality disorder
title_sort standard set of patient-reported outcomes for personality disorder
topic Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8602216/
https://www.ncbi.nlm.nih.gov/pubmed/34075531
http://dx.doi.org/10.1007/s11136-021-02870-w
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