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Characterizing the quality-of-life impact of Duchenne muscular dystrophy on caregivers: a case-control investigation
BACKGROUND: This study examined the impact of Duchenne muscular dystrophy (DMD) on family-member caregivers in terms of quality of life, life stress, and indirect costs, as compared to a stratified comparison group of parents of similar-age children without DMD. METHODS: A web-based survey included...
Autores principales: | Schwartz, Carolyn E., Stark, Roland B., Audhya, Ivana F., Gooch, Katherine L. |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Springer International Publishing
2021
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8605451/ https://www.ncbi.nlm.nih.gov/pubmed/34800189 http://dx.doi.org/10.1186/s41687-021-00386-y |
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