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Exploring socioeconomic inequities in access to palliative and end-of-life care in the UK: a narrative synthesis

BACKGROUND: Efforts inequities in access to palliative and end-of-life care require comprehensive understanding about the extent of and reasons for inequities. Most research on this topic examines differences in receipt of care. There is a need, particularly in the UK, for theoretically driven resea...

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Autores principales: French, Maddy, Keegan, Thomas, Anestis, Eleftherios, Preston, Nancy
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2021
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8606060/
https://www.ncbi.nlm.nih.gov/pubmed/34802450
http://dx.doi.org/10.1186/s12904-021-00878-0
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author French, Maddy
Keegan, Thomas
Anestis, Eleftherios
Preston, Nancy
author_facet French, Maddy
Keegan, Thomas
Anestis, Eleftherios
Preston, Nancy
author_sort French, Maddy
collection PubMed
description BACKGROUND: Efforts inequities in access to palliative and end-of-life care require comprehensive understanding about the extent of and reasons for inequities. Most research on this topic examines differences in receipt of care. There is a need, particularly in the UK, for theoretically driven research that considers both receipt of care and the wider factors influencing the relationship between socioeconomic position and access to palliative and end-of-life care. METHODS: This is a mixed studies narrative synthesis on socioeconomic position and access to palliative and end-of-life care in the UK. Study searches were conducted in databases AMED, Medline, Embase, CINAHL, SocIndex, and Academic Literature Search, as well as grey literature sources, in July 2020. The candidacy model of access, which describes access as a seven-stage negotiation between patients and providers, guided study searches and provided a theoretical lens through which data were synthesised. RESULTS: Searches retrieved 5303 studies (after de-duplication), 29 of which were included. The synthesis generated four overarching themes, within which concepts of candidacy were evident: identifying needs; taking action; local conditions; and receiving care. CONCLUSION: There is not a consistent or clear narrative regarding the relationship between socioeconomic position and receipt of palliative and end-of-life care in the UK. Attempts to address any inequities in access will require knowledge and action across many different areas. Key evidence gaps in the UK literature concern the relationship between socioeconomic position, organisational context, and assessing need for care. SUPPLEMENTARY INFORMATION: The online version contains supplementary material available at 10.1186/s12904-021-00878-0.
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spelling pubmed-86060602021-11-22 Exploring socioeconomic inequities in access to palliative and end-of-life care in the UK: a narrative synthesis French, Maddy Keegan, Thomas Anestis, Eleftherios Preston, Nancy BMC Palliat Care Research BACKGROUND: Efforts inequities in access to palliative and end-of-life care require comprehensive understanding about the extent of and reasons for inequities. Most research on this topic examines differences in receipt of care. There is a need, particularly in the UK, for theoretically driven research that considers both receipt of care and the wider factors influencing the relationship between socioeconomic position and access to palliative and end-of-life care. METHODS: This is a mixed studies narrative synthesis on socioeconomic position and access to palliative and end-of-life care in the UK. Study searches were conducted in databases AMED, Medline, Embase, CINAHL, SocIndex, and Academic Literature Search, as well as grey literature sources, in July 2020. The candidacy model of access, which describes access as a seven-stage negotiation between patients and providers, guided study searches and provided a theoretical lens through which data were synthesised. RESULTS: Searches retrieved 5303 studies (after de-duplication), 29 of which were included. The synthesis generated four overarching themes, within which concepts of candidacy were evident: identifying needs; taking action; local conditions; and receiving care. CONCLUSION: There is not a consistent or clear narrative regarding the relationship between socioeconomic position and receipt of palliative and end-of-life care in the UK. Attempts to address any inequities in access will require knowledge and action across many different areas. Key evidence gaps in the UK literature concern the relationship between socioeconomic position, organisational context, and assessing need for care. SUPPLEMENTARY INFORMATION: The online version contains supplementary material available at 10.1186/s12904-021-00878-0. BioMed Central 2021-11-21 /pmc/articles/PMC8606060/ /pubmed/34802450 http://dx.doi.org/10.1186/s12904-021-00878-0 Text en © The Author(s) 2021 https://creativecommons.org/licenses/by/4.0/Open AccessThis article is licensed under a Creative Commons Attribution 4.0 International License, which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons licence, and indicate if changes were made. The images or other third party material in this article are included in the article's Creative Commons licence, unless indicated otherwise in a credit line to the material. If material is not included in the article's Creative Commons licence and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this licence, visit http://creativecommons.org/licenses/by/4.0/ (https://creativecommons.org/licenses/by/4.0/) . The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/ (https://creativecommons.org/publicdomain/zero/1.0/) ) applies to the data made available in this article, unless otherwise stated in a credit line to the data.
spellingShingle Research
French, Maddy
Keegan, Thomas
Anestis, Eleftherios
Preston, Nancy
Exploring socioeconomic inequities in access to palliative and end-of-life care in the UK: a narrative synthesis
title Exploring socioeconomic inequities in access to palliative and end-of-life care in the UK: a narrative synthesis
title_full Exploring socioeconomic inequities in access to palliative and end-of-life care in the UK: a narrative synthesis
title_fullStr Exploring socioeconomic inequities in access to palliative and end-of-life care in the UK: a narrative synthesis
title_full_unstemmed Exploring socioeconomic inequities in access to palliative and end-of-life care in the UK: a narrative synthesis
title_short Exploring socioeconomic inequities in access to palliative and end-of-life care in the UK: a narrative synthesis
title_sort exploring socioeconomic inequities in access to palliative and end-of-life care in the uk: a narrative synthesis
topic Research
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8606060/
https://www.ncbi.nlm.nih.gov/pubmed/34802450
http://dx.doi.org/10.1186/s12904-021-00878-0
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