Cargando…

Parenting a Child with a Neurodevelopmental Disorder

PURPOSE OF REVIEW: Traditional thinking and focus in ‘childhood disability’ have been on the child with the impairment — with the imperative to make the right diagnosis and find the right treatments. The implicit if not direct expectation was that interventions should aim to ‘fix’ the problems. Prof...

Descripción completa

Detalles Bibliográficos
Autores principales: Rosenbaum, Peter L., Novak-Pavlic, Monika
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Springer International Publishing 2021
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8607064/
https://www.ncbi.nlm.nih.gov/pubmed/34840932
http://dx.doi.org/10.1007/s40474-021-00240-2
_version_ 1784602478805778432
author Rosenbaum, Peter L.
Novak-Pavlic, Monika
author_facet Rosenbaum, Peter L.
Novak-Pavlic, Monika
author_sort Rosenbaum, Peter L.
collection PubMed
description PURPOSE OF REVIEW: Traditional thinking and focus in ‘childhood disability’ have been on the child with the impairment — with the imperative to make the right diagnosis and find the right treatments. The implicit if not direct expectation was that interventions should aim to ‘fix’ the problems. Professionals have led the processes of investigation and management planning, with parents expected to ‘comply’ with professionals’ recommendations. Much less attention has been paid to parents’ perspectives or their wellbeing. RECENT FINDINGS: In the past two decades, we have seen a sea change in our conceptualizations of childhood disability. The WHO’s framework for health (the International Classification of Functioning, Disability and Health (aka ICF)) and CanChild’s ‘F-words for Child Development’ inform modern thinking and action. We now recognize the family as the unit of interest, with parents’ voices an essential element of all aspects of management. The goals of intervention are built around the F-words ideas of function, family, fun, friendships, fitness and future. SUMMARY: There has been world-wide uptake of the F-words concepts, with increasing evidence of the impact of these ideas on parents and professionals alike. There are important implications of these developments on the structure, processes and content of services for children with neurodevelopmental disorders, their families and the services designed to support them.
format Online
Article
Text
id pubmed-8607064
institution National Center for Biotechnology Information
language English
publishDate 2021
publisher Springer International Publishing
record_format MEDLINE/PubMed
spelling pubmed-86070642021-11-22 Parenting a Child with a Neurodevelopmental Disorder Rosenbaum, Peter L. Novak-Pavlic, Monika Curr Dev Disord Rep Hot Topic PURPOSE OF REVIEW: Traditional thinking and focus in ‘childhood disability’ have been on the child with the impairment — with the imperative to make the right diagnosis and find the right treatments. The implicit if not direct expectation was that interventions should aim to ‘fix’ the problems. Professionals have led the processes of investigation and management planning, with parents expected to ‘comply’ with professionals’ recommendations. Much less attention has been paid to parents’ perspectives or their wellbeing. RECENT FINDINGS: In the past two decades, we have seen a sea change in our conceptualizations of childhood disability. The WHO’s framework for health (the International Classification of Functioning, Disability and Health (aka ICF)) and CanChild’s ‘F-words for Child Development’ inform modern thinking and action. We now recognize the family as the unit of interest, with parents’ voices an essential element of all aspects of management. The goals of intervention are built around the F-words ideas of function, family, fun, friendships, fitness and future. SUMMARY: There has been world-wide uptake of the F-words concepts, with increasing evidence of the impact of these ideas on parents and professionals alike. There are important implications of these developments on the structure, processes and content of services for children with neurodevelopmental disorders, their families and the services designed to support them. Springer International Publishing 2021-11-20 2021 /pmc/articles/PMC8607064/ /pubmed/34840932 http://dx.doi.org/10.1007/s40474-021-00240-2 Text en © The Author(s), under exclusive licence to Springer Nature Switzerland AG 2021 This article is made available via the PMC Open Access Subset for unrestricted research re-use and secondary analysis in any form or by any means with acknowledgement of the original source. These permissions are granted for the duration of the World Health Organization (WHO) declaration of COVID-19 as a global pandemic.
spellingShingle Hot Topic
Rosenbaum, Peter L.
Novak-Pavlic, Monika
Parenting a Child with a Neurodevelopmental Disorder
title Parenting a Child with a Neurodevelopmental Disorder
title_full Parenting a Child with a Neurodevelopmental Disorder
title_fullStr Parenting a Child with a Neurodevelopmental Disorder
title_full_unstemmed Parenting a Child with a Neurodevelopmental Disorder
title_short Parenting a Child with a Neurodevelopmental Disorder
title_sort parenting a child with a neurodevelopmental disorder
topic Hot Topic
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8607064/
https://www.ncbi.nlm.nih.gov/pubmed/34840932
http://dx.doi.org/10.1007/s40474-021-00240-2
work_keys_str_mv AT rosenbaumpeterl parentingachildwithaneurodevelopmentaldisorder
AT novakpavlicmonika parentingachildwithaneurodevelopmentaldisorder