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Designing a Person-Centred Integrated Care Programme for People with Complex Chronic Conditions: A Case Study from Catalonia
INTRODUCTION: The prevalence of people with complex chronic conditions is increasing. This population’s high social and health needs require person-centred integrated approaches to care. METHODS: To collect data about experiences with the health system and identify priorities for care, we conducted...
Autores principales: | , , , , , , , , , , , , , , , , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Ubiquity Press
2021
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8622001/ https://www.ncbi.nlm.nih.gov/pubmed/34899101 http://dx.doi.org/10.5334/ijic.5653 |
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author | Mas, Miquel À. Miralles, Ramón Heras, Consol Ulldemolins, Maria J. Bonet, Josep M. Prat, Núria Isnard, Mar Pablo, Sara Rodoreda, Sara Verdaguer, Joaquim Lladó, Magdalena Moreno-Gabriel, Eduard Urrutia, Agustín Rocabayera, Maria A. Moreno-Millan, Nemesio Modol, Josep M. Andrés, Isabel Estrada, Oriol Ara Del Rey, Jordi |
author_facet | Mas, Miquel À. Miralles, Ramón Heras, Consol Ulldemolins, Maria J. Bonet, Josep M. Prat, Núria Isnard, Mar Pablo, Sara Rodoreda, Sara Verdaguer, Joaquim Lladó, Magdalena Moreno-Gabriel, Eduard Urrutia, Agustín Rocabayera, Maria A. Moreno-Millan, Nemesio Modol, Josep M. Andrés, Isabel Estrada, Oriol Ara Del Rey, Jordi |
author_sort | Mas, Miquel À. |
collection | PubMed |
description | INTRODUCTION: The prevalence of people with complex chronic conditions is increasing. This population’s high social and health needs require person-centred integrated approaches to care. METHODS: To collect data about experiences with the health system and identify priorities for care, we conducted 2 focus groups and 15 semi-structured interviews involving patients with multimorbidity and advanced conditions, caregivers, and representatives of patients’ associations. To design the programme, we combined this information with evidence-based recommendations from local healthcare and social care professionals. RESULTS: Patients’ and caregivers’ main priorities were to ensure (a) comprehension of information provided by healthcare professionals; (b) coordination between patients, caregivers, and professionals; (c) access to social services; (d) support to caregivers in managing situations; (e) perceived support throughout the healthcare process; (f) home care, when available; and (d) a patient-centred approach. These dimensions were included in 37 of 63 clinical actions of the programme to cover the whole care trajectory: identifying high needs, defining, and providing care plans, managing crises, and providing transitional care and end-of-life care. CONCLUSION: We developed an evidence-based integrated care programme tailored to high-need patients combining input from patients, caregivers, and healthcare and social care professionals. |
format | Online Article Text |
id | pubmed-8622001 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2021 |
publisher | Ubiquity Press |
record_format | MEDLINE/PubMed |
spelling | pubmed-86220012021-12-09 Designing a Person-Centred Integrated Care Programme for People with Complex Chronic Conditions: A Case Study from Catalonia Mas, Miquel À. Miralles, Ramón Heras, Consol Ulldemolins, Maria J. Bonet, Josep M. Prat, Núria Isnard, Mar Pablo, Sara Rodoreda, Sara Verdaguer, Joaquim Lladó, Magdalena Moreno-Gabriel, Eduard Urrutia, Agustín Rocabayera, Maria A. Moreno-Millan, Nemesio Modol, Josep M. Andrés, Isabel Estrada, Oriol Ara Del Rey, Jordi Int J Integr Care Methodology Paper INTRODUCTION: The prevalence of people with complex chronic conditions is increasing. This population’s high social and health needs require person-centred integrated approaches to care. METHODS: To collect data about experiences with the health system and identify priorities for care, we conducted 2 focus groups and 15 semi-structured interviews involving patients with multimorbidity and advanced conditions, caregivers, and representatives of patients’ associations. To design the programme, we combined this information with evidence-based recommendations from local healthcare and social care professionals. RESULTS: Patients’ and caregivers’ main priorities were to ensure (a) comprehension of information provided by healthcare professionals; (b) coordination between patients, caregivers, and professionals; (c) access to social services; (d) support to caregivers in managing situations; (e) perceived support throughout the healthcare process; (f) home care, when available; and (d) a patient-centred approach. These dimensions were included in 37 of 63 clinical actions of the programme to cover the whole care trajectory: identifying high needs, defining, and providing care plans, managing crises, and providing transitional care and end-of-life care. CONCLUSION: We developed an evidence-based integrated care programme tailored to high-need patients combining input from patients, caregivers, and healthcare and social care professionals. Ubiquity Press 2021-11-25 /pmc/articles/PMC8622001/ /pubmed/34899101 http://dx.doi.org/10.5334/ijic.5653 Text en Copyright: © 2021 The Author(s) https://creativecommons.org/licenses/by/4.0/This is an open-access article distributed under the terms of the Creative Commons Attribution 4.0 International License (CC-BY 4.0), which permits unrestricted use, distribution, and reproduction in any medium, provided the original author and source are credited. See http://creativecommons.org/licenses/by/4.0/. |
spellingShingle | Methodology Paper Mas, Miquel À. Miralles, Ramón Heras, Consol Ulldemolins, Maria J. Bonet, Josep M. Prat, Núria Isnard, Mar Pablo, Sara Rodoreda, Sara Verdaguer, Joaquim Lladó, Magdalena Moreno-Gabriel, Eduard Urrutia, Agustín Rocabayera, Maria A. Moreno-Millan, Nemesio Modol, Josep M. Andrés, Isabel Estrada, Oriol Ara Del Rey, Jordi Designing a Person-Centred Integrated Care Programme for People with Complex Chronic Conditions: A Case Study from Catalonia |
title | Designing a Person-Centred Integrated Care Programme for People with Complex Chronic Conditions: A Case Study from Catalonia |
title_full | Designing a Person-Centred Integrated Care Programme for People with Complex Chronic Conditions: A Case Study from Catalonia |
title_fullStr | Designing a Person-Centred Integrated Care Programme for People with Complex Chronic Conditions: A Case Study from Catalonia |
title_full_unstemmed | Designing a Person-Centred Integrated Care Programme for People with Complex Chronic Conditions: A Case Study from Catalonia |
title_short | Designing a Person-Centred Integrated Care Programme for People with Complex Chronic Conditions: A Case Study from Catalonia |
title_sort | designing a person-centred integrated care programme for people with complex chronic conditions: a case study from catalonia |
topic | Methodology Paper |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8622001/ https://www.ncbi.nlm.nih.gov/pubmed/34899101 http://dx.doi.org/10.5334/ijic.5653 |
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