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Promoting psycho-social wellbeing for engaging inflammatory bowel disease patients in their care: an Italian consensus statement
BACKGROUND: Inflammatory bowel diseases (IBD) are remitting and relapsing diseases that mainly interest the gastrointestinal tract. IBD is associated with a condition of psycho-social discomfort that deeply compromises the quality of life and the competence of patient to be fully engaged in their se...
Autores principales: | , , , , , , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
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BioMed Central
2021
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8628380/ https://www.ncbi.nlm.nih.gov/pubmed/34839834 http://dx.doi.org/10.1186/s40359-021-00692-6 |
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author | Graffigna, Guendalina Bosio, Caterina Pagnini, Francesco Volpato, Eleonora Previtali, Enrica Leone, Salvatore D’Amico, Ferdinando Armuzzi, Alessandro Danese, Silvio |
author_facet | Graffigna, Guendalina Bosio, Caterina Pagnini, Francesco Volpato, Eleonora Previtali, Enrica Leone, Salvatore D’Amico, Ferdinando Armuzzi, Alessandro Danese, Silvio |
author_sort | Graffigna, Guendalina |
collection | PubMed |
description | BACKGROUND: Inflammatory bowel diseases (IBD) are remitting and relapsing diseases that mainly interest the gastrointestinal tract. IBD is associated with a condition of psycho-social discomfort that deeply compromises the quality of life and the competence of patient to be fully engaged in their self-management. As a consequence, effective care of IBD patients should include not only medical but also psychological support in order to improve patients' wellbeing. Although this, to date there is no standardized approach to promote psychological wellbeing of IBD patients in order to improve the perception of the quality of the care. To fill this gap, a consensus conference has been organized in order to define the psychosocial needs of IBD patients and to promote their engagement in daily clinical practice. This paper describes the process implemented and illustrates the recommendations deriving from it, which focus on the importance of a multidisciplinary approach in IBD management. RESULTS: The consensus conference has been organized in three phases: (1) literature review about life experiences, engagement, and psychosocial needs of IBD patients; (2) workshops with IBD experts and patients’ representatives; (3) drafting of statements and voting. Seventy-three participants were involved in the consensus conference, and sixteen statements have been voted and approved during the consensus process. CONCLUSIONS: The main conclusion is the necessity of the early detection of – and, in case of need, intervention on- psycho-social needs of patients in order to achieve patient involvement in IBD care. |
format | Online Article Text |
id | pubmed-8628380 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2021 |
publisher | BioMed Central |
record_format | MEDLINE/PubMed |
spelling | pubmed-86283802021-12-01 Promoting psycho-social wellbeing for engaging inflammatory bowel disease patients in their care: an Italian consensus statement Graffigna, Guendalina Bosio, Caterina Pagnini, Francesco Volpato, Eleonora Previtali, Enrica Leone, Salvatore D’Amico, Ferdinando Armuzzi, Alessandro Danese, Silvio BMC Psychol Research BACKGROUND: Inflammatory bowel diseases (IBD) are remitting and relapsing diseases that mainly interest the gastrointestinal tract. IBD is associated with a condition of psycho-social discomfort that deeply compromises the quality of life and the competence of patient to be fully engaged in their self-management. As a consequence, effective care of IBD patients should include not only medical but also psychological support in order to improve patients' wellbeing. Although this, to date there is no standardized approach to promote psychological wellbeing of IBD patients in order to improve the perception of the quality of the care. To fill this gap, a consensus conference has been organized in order to define the psychosocial needs of IBD patients and to promote their engagement in daily clinical practice. This paper describes the process implemented and illustrates the recommendations deriving from it, which focus on the importance of a multidisciplinary approach in IBD management. RESULTS: The consensus conference has been organized in three phases: (1) literature review about life experiences, engagement, and psychosocial needs of IBD patients; (2) workshops with IBD experts and patients’ representatives; (3) drafting of statements and voting. Seventy-three participants were involved in the consensus conference, and sixteen statements have been voted and approved during the consensus process. CONCLUSIONS: The main conclusion is the necessity of the early detection of – and, in case of need, intervention on- psycho-social needs of patients in order to achieve patient involvement in IBD care. BioMed Central 2021-11-28 /pmc/articles/PMC8628380/ /pubmed/34839834 http://dx.doi.org/10.1186/s40359-021-00692-6 Text en © The Author(s) 2021 https://creativecommons.org/licenses/by/4.0/Open AccessThis article is licensed under a Creative Commons Attribution 4.0 International License, which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons licence, and indicate if changes were made. The images or other third party material in this article are included in the article's Creative Commons licence, unless indicated otherwise in a credit line to the material. If material is not included in the article's Creative Commons licence and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this licence, visit http://creativecommons.org/licenses/by/4.0/ (https://creativecommons.org/licenses/by/4.0/) . The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/ (https://creativecommons.org/publicdomain/zero/1.0/) ) applies to the data made available in this article, unless otherwise stated in a credit line to the data. |
spellingShingle | Research Graffigna, Guendalina Bosio, Caterina Pagnini, Francesco Volpato, Eleonora Previtali, Enrica Leone, Salvatore D’Amico, Ferdinando Armuzzi, Alessandro Danese, Silvio Promoting psycho-social wellbeing for engaging inflammatory bowel disease patients in their care: an Italian consensus statement |
title | Promoting psycho-social wellbeing for engaging inflammatory bowel disease patients in their care: an Italian consensus statement |
title_full | Promoting psycho-social wellbeing for engaging inflammatory bowel disease patients in their care: an Italian consensus statement |
title_fullStr | Promoting psycho-social wellbeing for engaging inflammatory bowel disease patients in their care: an Italian consensus statement |
title_full_unstemmed | Promoting psycho-social wellbeing for engaging inflammatory bowel disease patients in their care: an Italian consensus statement |
title_short | Promoting psycho-social wellbeing for engaging inflammatory bowel disease patients in their care: an Italian consensus statement |
title_sort | promoting psycho-social wellbeing for engaging inflammatory bowel disease patients in their care: an italian consensus statement |
topic | Research |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8628380/ https://www.ncbi.nlm.nih.gov/pubmed/34839834 http://dx.doi.org/10.1186/s40359-021-00692-6 |
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