Exploring the Motivations of Research Participants Who Chose Not to Learn Medically Actionable Secondary Genetic Findings about Themselves

PURPOSE: Proposals to return medically actionable secondary genetic findings (SFs) in the clinical and research settings have generated controversy regarding whether to solicit individuals’ preferences about their “right not to know” genetic information. This study contributes to the debate by surve...

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Detalles Bibliográficos
Autores principales: Schupmann, Will, Miner, Skye A., Sullivan, Haley K., Glover, Jamie R., Hall, Janet E., Schurman, Shepherd H., Berkman, Benjamin E.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: 2021
Materias:
Article
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8633056/
https://www.ncbi.nlm.nih.gov/pubmed/34326490
http://dx.doi.org/10.1038/s41436-021-01271-1

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8633056/
https://www.ncbi.nlm.nih.gov/pubmed/34326490
http://dx.doi.org/10.1038/s41436-021-01271-1

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