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Exploring the Motivations of Research Participants Who Chose Not to Learn Medically Actionable Secondary Genetic Findings about Themselves
PURPOSE: Proposals to return medically actionable secondary genetic findings (SFs) in the clinical and research settings have generated controversy regarding whether to solicit individuals’ preferences about their “right not to know” genetic information. This study contributes to the debate by surve...
Autores principales: | Schupmann, Will, Miner, Skye A., Sullivan, Haley K., Glover, Jamie R., Hall, Janet E., Schurman, Shepherd H., Berkman, Benjamin E. |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
2021
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8633056/ https://www.ncbi.nlm.nih.gov/pubmed/34326490 http://dx.doi.org/10.1038/s41436-021-01271-1 |
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