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ADULTS WITH LOEYS-DIETZ SYNDROME AND VASCULAR EHLERS-DANLOS SYNDROME: A CROSS-SECTIONAL STUDY OF LIFE SATISFACTION

OBJECTIVE: To explore life satisfaction among adults with Loeys-Dietz and those with vascular Ehlers-Danlos syndrome. DESIGN: Postal survey in 2018. PARTICIPANTS AND METHODS: Persons with molecularly verified Loeys-Dietz syndrome or vascular Ehlers-Danlos syndrome were recruited through the National...

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Detalles Bibliográficos
Autores principales:	JOHANSEN, Heidi, VELVIN, Gry, FUGL-MEYER, Kerstin, LIDAL, Ingeborg Beate
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	Foundation for Rehabilitation Information 2021
Materias:	Original Report
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8638722/ https://www.ncbi.nlm.nih.gov/pubmed/34705050 http://dx.doi.org/10.2340/jrm.v53.572

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