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Perceptions of Telehealth vs In-Person Visits Among Older Adults With Advanced Kidney Disease, Care Partners, and Clinicians

IMPORTANCE: Telehealth has been posited as a cost-effective means for improving access to care for persons with chronic conditions, including kidney disease. Perceptions of telehealth among older patients with chronic illness, their care partners, and clinicians are largely unknown but are critical...

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Autores principales: Ladin, Keren, Porteny, Thalia, Perugini, Julia M., Gonzales, Kristina M., Aufort, Kate E., Levine, Sarah K., Wong, John B., Isakova, Tamara, Rifkin, Dena, Gordon, Elisa J., Rossi, Ana, Koch-Weser, Susan, Weiner, Daniel E.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: American Medical Association 2021
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8649833/
https://www.ncbi.nlm.nih.gov/pubmed/34870680
http://dx.doi.org/10.1001/jamanetworkopen.2021.37193
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author Ladin, Keren
Porteny, Thalia
Perugini, Julia M.
Gonzales, Kristina M.
Aufort, Kate E.
Levine, Sarah K.
Wong, John B.
Isakova, Tamara
Rifkin, Dena
Gordon, Elisa J.
Rossi, Ana
Koch-Weser, Susan
Weiner, Daniel E.
author_facet Ladin, Keren
Porteny, Thalia
Perugini, Julia M.
Gonzales, Kristina M.
Aufort, Kate E.
Levine, Sarah K.
Wong, John B.
Isakova, Tamara
Rifkin, Dena
Gordon, Elisa J.
Rossi, Ana
Koch-Weser, Susan
Weiner, Daniel E.
author_sort Ladin, Keren
collection PubMed
description IMPORTANCE: Telehealth has been posited as a cost-effective means for improving access to care for persons with chronic conditions, including kidney disease. Perceptions of telehealth among older patients with chronic illness, their care partners, and clinicians are largely unknown but are critical to successful telehealth use and expansion efforts. OBJECTIVE: To identify patient, care partner, and nephrologists’ perceptions of the patient-centeredness, benefits, drawbacks of telehealth compared to in-person visits. DESIGN, SETTING, AND PARTICIPANTS: This qualitative study used semistructured interviews conducted from August to December 2020 with purposively sampled patients (aged 70 years or older, chronic kidney disease stages 4 to 5), care partners, and clinicians in Boston, Massachusetts; Chicago, Illinois; Portland, Maine; and San Diego, California. MAIN OUTCOMES AND MEASURES: Participants described telehealth experiences, including factors contributing to and impeding engagement, satisfaction, and quality of care. Thematic analysis was used to analyze data. RESULTS: Of 60 interviews, 19 (32%) were with clinicians, 30 (50%) with patients, and 11 (18%) with care partners; 16 clinicians (84%) were nephrologists; 17 patient participants (43%) were non-Hispanic Black, and 38 (67%) were women. Four overarching themes characterized telehealth’s benefits and drawbacks for patient-centered care among older, chronically ill adults: inconsistent quality of care, patient experience and engagement, loss of connection and mistrust (eg, challenges discussing bad news), and disparities with accessing telehealth. Although telehealth improved convenience and care partner engagement, participants expressed concerns about clinical effectiveness and limitations of virtual physical examinations and potentially widening disparities in access. Many participants shared concerns about harms to the patient-clinician relationship, limited ability to comfort patients in virtual settings, and reduced patient trust. CONCLUSIONS AND RELEVANCE: Older patients, care partners, and kidney clinicians (ie, nephrologists and physician assistants) shared divergent views of patient-centered telehealth care, especially its clinical effectiveness, patient experience, access to care, and clinician-patient relationship. Understanding older patients’ and kidney clinicians’ perceptions of telehealth elucidate barriers that should be addressed to promote high-quality care and telehealth use.
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spelling pubmed-86498332021-12-08 Perceptions of Telehealth vs In-Person Visits Among Older Adults With Advanced Kidney Disease, Care Partners, and Clinicians Ladin, Keren Porteny, Thalia Perugini, Julia M. Gonzales, Kristina M. Aufort, Kate E. Levine, Sarah K. Wong, John B. Isakova, Tamara Rifkin, Dena Gordon, Elisa J. Rossi, Ana Koch-Weser, Susan Weiner, Daniel E. JAMA Netw Open Original Investigation IMPORTANCE: Telehealth has been posited as a cost-effective means for improving access to care for persons with chronic conditions, including kidney disease. Perceptions of telehealth among older patients with chronic illness, their care partners, and clinicians are largely unknown but are critical to successful telehealth use and expansion efforts. OBJECTIVE: To identify patient, care partner, and nephrologists’ perceptions of the patient-centeredness, benefits, drawbacks of telehealth compared to in-person visits. DESIGN, SETTING, AND PARTICIPANTS: This qualitative study used semistructured interviews conducted from August to December 2020 with purposively sampled patients (aged 70 years or older, chronic kidney disease stages 4 to 5), care partners, and clinicians in Boston, Massachusetts; Chicago, Illinois; Portland, Maine; and San Diego, California. MAIN OUTCOMES AND MEASURES: Participants described telehealth experiences, including factors contributing to and impeding engagement, satisfaction, and quality of care. Thematic analysis was used to analyze data. RESULTS: Of 60 interviews, 19 (32%) were with clinicians, 30 (50%) with patients, and 11 (18%) with care partners; 16 clinicians (84%) were nephrologists; 17 patient participants (43%) were non-Hispanic Black, and 38 (67%) were women. Four overarching themes characterized telehealth’s benefits and drawbacks for patient-centered care among older, chronically ill adults: inconsistent quality of care, patient experience and engagement, loss of connection and mistrust (eg, challenges discussing bad news), and disparities with accessing telehealth. Although telehealth improved convenience and care partner engagement, participants expressed concerns about clinical effectiveness and limitations of virtual physical examinations and potentially widening disparities in access. Many participants shared concerns about harms to the patient-clinician relationship, limited ability to comfort patients in virtual settings, and reduced patient trust. CONCLUSIONS AND RELEVANCE: Older patients, care partners, and kidney clinicians (ie, nephrologists and physician assistants) shared divergent views of patient-centered telehealth care, especially its clinical effectiveness, patient experience, access to care, and clinician-patient relationship. Understanding older patients’ and kidney clinicians’ perceptions of telehealth elucidate barriers that should be addressed to promote high-quality care and telehealth use. American Medical Association 2021-12-06 /pmc/articles/PMC8649833/ /pubmed/34870680 http://dx.doi.org/10.1001/jamanetworkopen.2021.37193 Text en Copyright 2021 Ladin K et al. JAMA Network Open. https://creativecommons.org/licenses/by/4.0/This is an open access article distributed under the terms of the CC-BY License.
spellingShingle Original Investigation
Ladin, Keren
Porteny, Thalia
Perugini, Julia M.
Gonzales, Kristina M.
Aufort, Kate E.
Levine, Sarah K.
Wong, John B.
Isakova, Tamara
Rifkin, Dena
Gordon, Elisa J.
Rossi, Ana
Koch-Weser, Susan
Weiner, Daniel E.
Perceptions of Telehealth vs In-Person Visits Among Older Adults With Advanced Kidney Disease, Care Partners, and Clinicians
title Perceptions of Telehealth vs In-Person Visits Among Older Adults With Advanced Kidney Disease, Care Partners, and Clinicians
title_full Perceptions of Telehealth vs In-Person Visits Among Older Adults With Advanced Kidney Disease, Care Partners, and Clinicians
title_fullStr Perceptions of Telehealth vs In-Person Visits Among Older Adults With Advanced Kidney Disease, Care Partners, and Clinicians
title_full_unstemmed Perceptions of Telehealth vs In-Person Visits Among Older Adults With Advanced Kidney Disease, Care Partners, and Clinicians
title_short Perceptions of Telehealth vs In-Person Visits Among Older Adults With Advanced Kidney Disease, Care Partners, and Clinicians
title_sort perceptions of telehealth vs in-person visits among older adults with advanced kidney disease, care partners, and clinicians
topic Original Investigation
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8649833/
https://www.ncbi.nlm.nih.gov/pubmed/34870680
http://dx.doi.org/10.1001/jamanetworkopen.2021.37193
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