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Codesigning patient experience measures for and with children and young people with intellectual disability: a study protocol
INTRODUCTION: Children and young people with intellectual disability represent one of the most vulnerable groups in healthcare, yet they remain under-represented in projects to design, develop and/or improve healthcare service delivery. Increasingly, healthcare services are using various codesign an...
Autores principales: | , , , , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
BMJ Publishing Group
2021
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8650477/ https://www.ncbi.nlm.nih.gov/pubmed/34872999 http://dx.doi.org/10.1136/bmjopen-2021-050973 |
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author | Mimmo, Laurel Woolfenden, Susan Travaglia, Joanne Strnadová, Iva Phillips, Maya Tokutake and Karen van Hoek, Matthew and Debbie Harrison, Reema |
author_facet | Mimmo, Laurel Woolfenden, Susan Travaglia, Joanne Strnadová, Iva Phillips, Maya Tokutake and Karen van Hoek, Matthew and Debbie Harrison, Reema |
author_sort | Mimmo, Laurel |
collection | PubMed |
description | INTRODUCTION: Children and young people with intellectual disability represent one of the most vulnerable groups in healthcare, yet they remain under-represented in projects to design, develop and/or improve healthcare service delivery. Increasingly, healthcare services are using various codesign and coproduction methodologies to engage children and young people in service delivery improvements. METHODS AND ANALYSIS: This study employs an inclusive approach to the study design and execution, including two co-researchers who are young people with intellectual disability on the project team. We will follow an adapted experience-based co-design methodology to enable children and young people with intellectual disability to participate fully in the co-design of a prototype tool for eliciting patient experience data from children and young people with intellectual disability in hospital. ETHICS AND DISSEMINATION: This study was granted ethical approval on 1 February 2021 by the Sydney Children’s Hospitals Network Human Research Ethics Committee, reference number 2020/ETH02898. Dissemination plan includes publications, doctoral thesis chapter, educational videos. A summary of findings will be shared with all participants and presented at the organisation quality and safety committee. |
format | Online Article Text |
id | pubmed-8650477 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2021 |
publisher | BMJ Publishing Group |
record_format | MEDLINE/PubMed |
spelling | pubmed-86504772021-12-22 Codesigning patient experience measures for and with children and young people with intellectual disability: a study protocol Mimmo, Laurel Woolfenden, Susan Travaglia, Joanne Strnadová, Iva Phillips, Maya Tokutake and Karen van Hoek, Matthew and Debbie Harrison, Reema BMJ Open Health Services Research INTRODUCTION: Children and young people with intellectual disability represent one of the most vulnerable groups in healthcare, yet they remain under-represented in projects to design, develop and/or improve healthcare service delivery. Increasingly, healthcare services are using various codesign and coproduction methodologies to engage children and young people in service delivery improvements. METHODS AND ANALYSIS: This study employs an inclusive approach to the study design and execution, including two co-researchers who are young people with intellectual disability on the project team. We will follow an adapted experience-based co-design methodology to enable children and young people with intellectual disability to participate fully in the co-design of a prototype tool for eliciting patient experience data from children and young people with intellectual disability in hospital. ETHICS AND DISSEMINATION: This study was granted ethical approval on 1 February 2021 by the Sydney Children’s Hospitals Network Human Research Ethics Committee, reference number 2020/ETH02898. Dissemination plan includes publications, doctoral thesis chapter, educational videos. A summary of findings will be shared with all participants and presented at the organisation quality and safety committee. BMJ Publishing Group 2021-12-06 /pmc/articles/PMC8650477/ /pubmed/34872999 http://dx.doi.org/10.1136/bmjopen-2021-050973 Text en © Author(s) (or their employer(s)) 2021. Re-use permitted under CC BY-NC. No commercial re-use. See rights and permissions. Published by BMJ. https://creativecommons.org/licenses/by-nc/4.0/This is an open access article distributed in accordance with the Creative Commons Attribution Non Commercial (CC BY-NC 4.0) license, which permits others to distribute, remix, adapt, build upon this work non-commercially, and license their derivative works on different terms, provided the original work is properly cited, appropriate credit is given, any changes made indicated, and the use is non-commercial. See: http://creativecommons.org/licenses/by-nc/4.0/ (https://creativecommons.org/licenses/by-nc/4.0/) . |
spellingShingle | Health Services Research Mimmo, Laurel Woolfenden, Susan Travaglia, Joanne Strnadová, Iva Phillips, Maya Tokutake and Karen van Hoek, Matthew and Debbie Harrison, Reema Codesigning patient experience measures for and with children and young people with intellectual disability: a study protocol |
title | Codesigning patient experience measures for and with children and young people with intellectual disability: a study protocol |
title_full | Codesigning patient experience measures for and with children and young people with intellectual disability: a study protocol |
title_fullStr | Codesigning patient experience measures for and with children and young people with intellectual disability: a study protocol |
title_full_unstemmed | Codesigning patient experience measures for and with children and young people with intellectual disability: a study protocol |
title_short | Codesigning patient experience measures for and with children and young people with intellectual disability: a study protocol |
title_sort | codesigning patient experience measures for and with children and young people with intellectual disability: a study protocol |
topic | Health Services Research |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8650477/ https://www.ncbi.nlm.nih.gov/pubmed/34872999 http://dx.doi.org/10.1136/bmjopen-2021-050973 |
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