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Adapting patient and public involvement in patient‐oriented methods research: Reflections in a Canadian setting during COVID‐19
BACKGROUND: Processes of the patient and public involvement (PPI) in health research shifted quickly during 2020. Faced with large‐scale issues, such as the COVID‐19 pandemic, the need to adapt processes of PPI to uphold commitments to nurturing the practice of ‘nothing about us without us’ in resea...
Autores principales: | , , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
John Wiley and Sons Inc.
2021
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8652646/ https://www.ncbi.nlm.nih.gov/pubmed/34773337 http://dx.doi.org/10.1111/hex.13387 |
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author | Leese, Jenny Garraway, Leana Li, Linda Oelke, Nelly MacLeod, Martha |
author_facet | Leese, Jenny Garraway, Leana Li, Linda Oelke, Nelly MacLeod, Martha |
author_sort | Leese, Jenny |
collection | PubMed |
description | BACKGROUND: Processes of the patient and public involvement (PPI) in health research shifted quickly during 2020. Faced with large‐scale issues, such as the COVID‐19 pandemic, the need to adapt processes of PPI to uphold commitments to nurturing the practice of ‘nothing about us without us’ in research has been urgent and profound. We describe how processes of PPI in research on patient‐oriented methods of knowledge translation and implementation science were adapted by four teams in a Canadian setting. METHODS: As part of an ongoing quality improvement self‐study to enhance PPI within these teams, team members shared their experiences of PPI in the context of this pivotal year during interviews and facilitated discussions. Drawing on these experiences, we outline challenges and reflections for adapting processes of PPI in health research on methods in times of urgency, conflict and fast‐moving change. DISCUSSION: Our reflections offer insight into common issues encountered across teams that may be amplified during times of rapid change, including handling change and uncertainty, sustaining relationship‐building and hearing differing perspectives in processes of PPI. CONCLUSION: These learnings present an opportunity to help others active in or planning patient‐oriented methods research to reflect on the changing nature of PPI and how to adapt PPI processes in response to turbulent situations in the future. |
format | Online Article Text |
id | pubmed-8652646 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2021 |
publisher | John Wiley and Sons Inc. |
record_format | MEDLINE/PubMed |
spelling | pubmed-86526462021-12-08 Adapting patient and public involvement in patient‐oriented methods research: Reflections in a Canadian setting during COVID‐19 Leese, Jenny Garraway, Leana Li, Linda Oelke, Nelly MacLeod, Martha Health Expect Covid and Co‐production BACKGROUND: Processes of the patient and public involvement (PPI) in health research shifted quickly during 2020. Faced with large‐scale issues, such as the COVID‐19 pandemic, the need to adapt processes of PPI to uphold commitments to nurturing the practice of ‘nothing about us without us’ in research has been urgent and profound. We describe how processes of PPI in research on patient‐oriented methods of knowledge translation and implementation science were adapted by four teams in a Canadian setting. METHODS: As part of an ongoing quality improvement self‐study to enhance PPI within these teams, team members shared their experiences of PPI in the context of this pivotal year during interviews and facilitated discussions. Drawing on these experiences, we outline challenges and reflections for adapting processes of PPI in health research on methods in times of urgency, conflict and fast‐moving change. DISCUSSION: Our reflections offer insight into common issues encountered across teams that may be amplified during times of rapid change, including handling change and uncertainty, sustaining relationship‐building and hearing differing perspectives in processes of PPI. CONCLUSION: These learnings present an opportunity to help others active in or planning patient‐oriented methods research to reflect on the changing nature of PPI and how to adapt PPI processes in response to turbulent situations in the future. John Wiley and Sons Inc. 2021-11-12 2022-04 /pmc/articles/PMC8652646/ /pubmed/34773337 http://dx.doi.org/10.1111/hex.13387 Text en © 2021 The Authors. Health Expectations published by John Wiley & Sons Ltd. https://creativecommons.org/licenses/by/4.0/This is an open access article under the terms of the http://creativecommons.org/licenses/by/4.0/ (https://creativecommons.org/licenses/by/4.0/) License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited. |
spellingShingle | Covid and Co‐production Leese, Jenny Garraway, Leana Li, Linda Oelke, Nelly MacLeod, Martha Adapting patient and public involvement in patient‐oriented methods research: Reflections in a Canadian setting during COVID‐19 |
title | Adapting patient and public involvement in patient‐oriented methods research: Reflections in a Canadian setting during COVID‐19 |
title_full | Adapting patient and public involvement in patient‐oriented methods research: Reflections in a Canadian setting during COVID‐19 |
title_fullStr | Adapting patient and public involvement in patient‐oriented methods research: Reflections in a Canadian setting during COVID‐19 |
title_full_unstemmed | Adapting patient and public involvement in patient‐oriented methods research: Reflections in a Canadian setting during COVID‐19 |
title_short | Adapting patient and public involvement in patient‐oriented methods research: Reflections in a Canadian setting during COVID‐19 |
title_sort | adapting patient and public involvement in patient‐oriented methods research: reflections in a canadian setting during covid‐19 |
topic | Covid and Co‐production |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8652646/ https://www.ncbi.nlm.nih.gov/pubmed/34773337 http://dx.doi.org/10.1111/hex.13387 |
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