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The Impact of a Peer Social Support Network from the Perspective of Women with Fibromyalgia: A Qualitative Study

Background: Fibromyalgia is a chronic and complex disease whose management by patients requires a high level of commitment. Patient empowerment therefore represents an important milestone in chronic disease treatment and control. We explored the impact of a peer social support network from the persp...

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Autores principales: Reig-Garcia, Glòria, Bosch-Farré, Cristina, Suñer-Soler, Rosa, Juvinyà-Canal, Dolors, Pla-Vila, Núria, Noell-Boix, Rosa, Boix-Roqueta, Esther, Mantas-Jiménez, Susana
Formato: Online Artículo Texto
Lenguaje:English
Publicado: MDPI 2021
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8657284/
https://www.ncbi.nlm.nih.gov/pubmed/34886527
http://dx.doi.org/10.3390/ijerph182312801
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author Reig-Garcia, Glòria
Bosch-Farré, Cristina
Suñer-Soler, Rosa
Juvinyà-Canal, Dolors
Pla-Vila, Núria
Noell-Boix, Rosa
Boix-Roqueta, Esther
Mantas-Jiménez, Susana
author_facet Reig-Garcia, Glòria
Bosch-Farré, Cristina
Suñer-Soler, Rosa
Juvinyà-Canal, Dolors
Pla-Vila, Núria
Noell-Boix, Rosa
Boix-Roqueta, Esther
Mantas-Jiménez, Susana
author_sort Reig-Garcia, Glòria
collection PubMed
description Background: Fibromyalgia is a chronic and complex disease whose management by patients requires a high level of commitment. Patient empowerment therefore represents an important milestone in chronic disease treatment and control. We explored the impact of a peer social support network from the perspective of women with fibromyalgia. Methods: A generic qualitative design was proposed for the study, for which women who had been diagnosed with fibromyalgia were purposefully selected. Six semi-structured interviews were conducted, and the collected data were thematically analysed. Results: Three key themes emerged regarding the peer social support network: (1) empowerment (facilitating acceptance of the diagnosis and acting as a source of information); (2) effects on well-being and quality of life (attenuated the stigma, improved physical well-being, provided emotional support and was a socialization medium); and (3), valuable aspects (transmitted feelings of being understood and listened to and increased personal feelings of satisfaction). Conclusions: A peer social support network for women with fibromyalgia exerts positive effects on their physical, mental, and social well-being and empowers them to better manage their disease. Healthcare for women with fibromyalgia should include strategies that connect them through peer social support networks.
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spelling pubmed-86572842021-12-10 The Impact of a Peer Social Support Network from the Perspective of Women with Fibromyalgia: A Qualitative Study Reig-Garcia, Glòria Bosch-Farré, Cristina Suñer-Soler, Rosa Juvinyà-Canal, Dolors Pla-Vila, Núria Noell-Boix, Rosa Boix-Roqueta, Esther Mantas-Jiménez, Susana Int J Environ Res Public Health Article Background: Fibromyalgia is a chronic and complex disease whose management by patients requires a high level of commitment. Patient empowerment therefore represents an important milestone in chronic disease treatment and control. We explored the impact of a peer social support network from the perspective of women with fibromyalgia. Methods: A generic qualitative design was proposed for the study, for which women who had been diagnosed with fibromyalgia were purposefully selected. Six semi-structured interviews were conducted, and the collected data were thematically analysed. Results: Three key themes emerged regarding the peer social support network: (1) empowerment (facilitating acceptance of the diagnosis and acting as a source of information); (2) effects on well-being and quality of life (attenuated the stigma, improved physical well-being, provided emotional support and was a socialization medium); and (3), valuable aspects (transmitted feelings of being understood and listened to and increased personal feelings of satisfaction). Conclusions: A peer social support network for women with fibromyalgia exerts positive effects on their physical, mental, and social well-being and empowers them to better manage their disease. Healthcare for women with fibromyalgia should include strategies that connect them through peer social support networks. MDPI 2021-12-04 /pmc/articles/PMC8657284/ /pubmed/34886527 http://dx.doi.org/10.3390/ijerph182312801 Text en © 2021 by the authors. https://creativecommons.org/licenses/by/4.0/Licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license (https://creativecommons.org/licenses/by/4.0/).
spellingShingle Article
Reig-Garcia, Glòria
Bosch-Farré, Cristina
Suñer-Soler, Rosa
Juvinyà-Canal, Dolors
Pla-Vila, Núria
Noell-Boix, Rosa
Boix-Roqueta, Esther
Mantas-Jiménez, Susana
The Impact of a Peer Social Support Network from the Perspective of Women with Fibromyalgia: A Qualitative Study
title The Impact of a Peer Social Support Network from the Perspective of Women with Fibromyalgia: A Qualitative Study
title_full The Impact of a Peer Social Support Network from the Perspective of Women with Fibromyalgia: A Qualitative Study
title_fullStr The Impact of a Peer Social Support Network from the Perspective of Women with Fibromyalgia: A Qualitative Study
title_full_unstemmed The Impact of a Peer Social Support Network from the Perspective of Women with Fibromyalgia: A Qualitative Study
title_short The Impact of a Peer Social Support Network from the Perspective of Women with Fibromyalgia: A Qualitative Study
title_sort impact of a peer social support network from the perspective of women with fibromyalgia: a qualitative study
topic Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8657284/
https://www.ncbi.nlm.nih.gov/pubmed/34886527
http://dx.doi.org/10.3390/ijerph182312801
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