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The Impact of a Peer Social Support Network from the Perspective of Women with Fibromyalgia: A Qualitative Study
Background: Fibromyalgia is a chronic and complex disease whose management by patients requires a high level of commitment. Patient empowerment therefore represents an important milestone in chronic disease treatment and control. We explored the impact of a peer social support network from the persp...
Autores principales: | , , , , , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
MDPI
2021
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8657284/ https://www.ncbi.nlm.nih.gov/pubmed/34886527 http://dx.doi.org/10.3390/ijerph182312801 |
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author | Reig-Garcia, Glòria Bosch-Farré, Cristina Suñer-Soler, Rosa Juvinyà-Canal, Dolors Pla-Vila, Núria Noell-Boix, Rosa Boix-Roqueta, Esther Mantas-Jiménez, Susana |
author_facet | Reig-Garcia, Glòria Bosch-Farré, Cristina Suñer-Soler, Rosa Juvinyà-Canal, Dolors Pla-Vila, Núria Noell-Boix, Rosa Boix-Roqueta, Esther Mantas-Jiménez, Susana |
author_sort | Reig-Garcia, Glòria |
collection | PubMed |
description | Background: Fibromyalgia is a chronic and complex disease whose management by patients requires a high level of commitment. Patient empowerment therefore represents an important milestone in chronic disease treatment and control. We explored the impact of a peer social support network from the perspective of women with fibromyalgia. Methods: A generic qualitative design was proposed for the study, for which women who had been diagnosed with fibromyalgia were purposefully selected. Six semi-structured interviews were conducted, and the collected data were thematically analysed. Results: Three key themes emerged regarding the peer social support network: (1) empowerment (facilitating acceptance of the diagnosis and acting as a source of information); (2) effects on well-being and quality of life (attenuated the stigma, improved physical well-being, provided emotional support and was a socialization medium); and (3), valuable aspects (transmitted feelings of being understood and listened to and increased personal feelings of satisfaction). Conclusions: A peer social support network for women with fibromyalgia exerts positive effects on their physical, mental, and social well-being and empowers them to better manage their disease. Healthcare for women with fibromyalgia should include strategies that connect them through peer social support networks. |
format | Online Article Text |
id | pubmed-8657284 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2021 |
publisher | MDPI |
record_format | MEDLINE/PubMed |
spelling | pubmed-86572842021-12-10 The Impact of a Peer Social Support Network from the Perspective of Women with Fibromyalgia: A Qualitative Study Reig-Garcia, Glòria Bosch-Farré, Cristina Suñer-Soler, Rosa Juvinyà-Canal, Dolors Pla-Vila, Núria Noell-Boix, Rosa Boix-Roqueta, Esther Mantas-Jiménez, Susana Int J Environ Res Public Health Article Background: Fibromyalgia is a chronic and complex disease whose management by patients requires a high level of commitment. Patient empowerment therefore represents an important milestone in chronic disease treatment and control. We explored the impact of a peer social support network from the perspective of women with fibromyalgia. Methods: A generic qualitative design was proposed for the study, for which women who had been diagnosed with fibromyalgia were purposefully selected. Six semi-structured interviews were conducted, and the collected data were thematically analysed. Results: Three key themes emerged regarding the peer social support network: (1) empowerment (facilitating acceptance of the diagnosis and acting as a source of information); (2) effects on well-being and quality of life (attenuated the stigma, improved physical well-being, provided emotional support and was a socialization medium); and (3), valuable aspects (transmitted feelings of being understood and listened to and increased personal feelings of satisfaction). Conclusions: A peer social support network for women with fibromyalgia exerts positive effects on their physical, mental, and social well-being and empowers them to better manage their disease. Healthcare for women with fibromyalgia should include strategies that connect them through peer social support networks. MDPI 2021-12-04 /pmc/articles/PMC8657284/ /pubmed/34886527 http://dx.doi.org/10.3390/ijerph182312801 Text en © 2021 by the authors. https://creativecommons.org/licenses/by/4.0/Licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license (https://creativecommons.org/licenses/by/4.0/). |
spellingShingle | Article Reig-Garcia, Glòria Bosch-Farré, Cristina Suñer-Soler, Rosa Juvinyà-Canal, Dolors Pla-Vila, Núria Noell-Boix, Rosa Boix-Roqueta, Esther Mantas-Jiménez, Susana The Impact of a Peer Social Support Network from the Perspective of Women with Fibromyalgia: A Qualitative Study |
title | The Impact of a Peer Social Support Network from the Perspective of Women with Fibromyalgia: A Qualitative Study |
title_full | The Impact of a Peer Social Support Network from the Perspective of Women with Fibromyalgia: A Qualitative Study |
title_fullStr | The Impact of a Peer Social Support Network from the Perspective of Women with Fibromyalgia: A Qualitative Study |
title_full_unstemmed | The Impact of a Peer Social Support Network from the Perspective of Women with Fibromyalgia: A Qualitative Study |
title_short | The Impact of a Peer Social Support Network from the Perspective of Women with Fibromyalgia: A Qualitative Study |
title_sort | impact of a peer social support network from the perspective of women with fibromyalgia: a qualitative study |
topic | Article |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8657284/ https://www.ncbi.nlm.nih.gov/pubmed/34886527 http://dx.doi.org/10.3390/ijerph182312801 |
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