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A Virtual Community for Disability Advocacy: Development of a Searchable Artificial Intelligence–Supported Platform

BACKGROUND: The lack of availability of disability data has been identified as a major challenge hindering continuous disability equity monitoring. It is important to develop a platform that enables searching for disability data to expose systemic discrimination and social exclusion, which increase...

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Autores principales: El Morr, Christo, Maret, Pierre, Muhlenbach, Fabrice, Dharmalingam, Dhayananth, Tadesse, Rediet, Creighton, Alexandra, Kundi, Bushra, Buettgen, Alexis, Mgwigwi, Thumeka, Dinca-Panaitescu, Serban, Dua, Enakshi, Gorman, Rachel
Formato: Online Artículo Texto
Lenguaje:English
Publicado: JMIR Publications 2021
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8663581/
https://www.ncbi.nlm.nih.gov/pubmed/34738910
http://dx.doi.org/10.2196/33335
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author El Morr, Christo
Maret, Pierre
Muhlenbach, Fabrice
Dharmalingam, Dhayananth
Tadesse, Rediet
Creighton, Alexandra
Kundi, Bushra
Buettgen, Alexis
Mgwigwi, Thumeka
Dinca-Panaitescu, Serban
Dua, Enakshi
Gorman, Rachel
author_facet El Morr, Christo
Maret, Pierre
Muhlenbach, Fabrice
Dharmalingam, Dhayananth
Tadesse, Rediet
Creighton, Alexandra
Kundi, Bushra
Buettgen, Alexis
Mgwigwi, Thumeka
Dinca-Panaitescu, Serban
Dua, Enakshi
Gorman, Rachel
author_sort El Morr, Christo
collection PubMed
description BACKGROUND: The lack of availability of disability data has been identified as a major challenge hindering continuous disability equity monitoring. It is important to develop a platform that enables searching for disability data to expose systemic discrimination and social exclusion, which increase vulnerability to inequitable social conditions. OBJECTIVE: Our project aims to create an accessible and multilingual pilot disability website that structures and integrates data about people with disabilities and provides data for national and international disability advocacy communities. The platform will be endowed with a document upload function with hybrid (automated and manual) paragraph tagging, while the querying function will involve an intelligent natural language search in the supported languages. METHODS: We have designed and implemented a virtual community platform using Wikibase, Semantic Web, machine learning, and web programming tools to enable disability communities to upload and search for disability documents. The platform data model is based on an ontology we have designed following the United Nations Convention on the Rights of Persons with Disabilities (CRPD). The virtual community facilitates the uploading and sharing of validated information, and supports disability rights advocacy by enabling dissemination of knowledge. RESULTS: Using health informatics and artificial intelligence techniques (namely Semantic Web, machine learning, and natural language processing techniques), we were able to develop a pilot virtual community that supports disability rights advocacy by facilitating uploading, sharing, and accessing disability data. The system consists of a website on top of a Wikibase (a Semantic Web–based datastore). The virtual community accepts 4 types of users: information producers, information consumers, validators, and administrators. The virtual community enables the uploading of documents, semiautomatic tagging of their paragraphs with meaningful keywords, and validation of the process before uploading the data to the disability Wikibase. Once uploaded, public users (information consumers) can perform a semantic search using an intelligent and multilingual search engine (QAnswer). Further enhancements of the platform are planned. CONCLUSIONS: The platform ontology is flexible and can accommodate advocacy reports and disability policy and legislation from specific jurisdictions, which can be accessed in relation to the CRPD articles. The platform ontology can be expanded to fit international contexts. The virtual community supports information upload and search. Semiautomatic tagging and intelligent multilingual semantic search using natural language are enabled using artificial intelligence techniques, namely Semantic Web, machine learning, and natural language processing.
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spelling pubmed-86635812022-01-05 A Virtual Community for Disability Advocacy: Development of a Searchable Artificial Intelligence–Supported Platform El Morr, Christo Maret, Pierre Muhlenbach, Fabrice Dharmalingam, Dhayananth Tadesse, Rediet Creighton, Alexandra Kundi, Bushra Buettgen, Alexis Mgwigwi, Thumeka Dinca-Panaitescu, Serban Dua, Enakshi Gorman, Rachel JMIR Form Res Original Paper BACKGROUND: The lack of availability of disability data has been identified as a major challenge hindering continuous disability equity monitoring. It is important to develop a platform that enables searching for disability data to expose systemic discrimination and social exclusion, which increase vulnerability to inequitable social conditions. OBJECTIVE: Our project aims to create an accessible and multilingual pilot disability website that structures and integrates data about people with disabilities and provides data for national and international disability advocacy communities. The platform will be endowed with a document upload function with hybrid (automated and manual) paragraph tagging, while the querying function will involve an intelligent natural language search in the supported languages. METHODS: We have designed and implemented a virtual community platform using Wikibase, Semantic Web, machine learning, and web programming tools to enable disability communities to upload and search for disability documents. The platform data model is based on an ontology we have designed following the United Nations Convention on the Rights of Persons with Disabilities (CRPD). The virtual community facilitates the uploading and sharing of validated information, and supports disability rights advocacy by enabling dissemination of knowledge. RESULTS: Using health informatics and artificial intelligence techniques (namely Semantic Web, machine learning, and natural language processing techniques), we were able to develop a pilot virtual community that supports disability rights advocacy by facilitating uploading, sharing, and accessing disability data. The system consists of a website on top of a Wikibase (a Semantic Web–based datastore). The virtual community accepts 4 types of users: information producers, information consumers, validators, and administrators. The virtual community enables the uploading of documents, semiautomatic tagging of their paragraphs with meaningful keywords, and validation of the process before uploading the data to the disability Wikibase. Once uploaded, public users (information consumers) can perform a semantic search using an intelligent and multilingual search engine (QAnswer). Further enhancements of the platform are planned. CONCLUSIONS: The platform ontology is flexible and can accommodate advocacy reports and disability policy and legislation from specific jurisdictions, which can be accessed in relation to the CRPD articles. The platform ontology can be expanded to fit international contexts. The virtual community supports information upload and search. Semiautomatic tagging and intelligent multilingual semantic search using natural language are enabled using artificial intelligence techniques, namely Semantic Web, machine learning, and natural language processing. JMIR Publications 2021-11-05 /pmc/articles/PMC8663581/ /pubmed/34738910 http://dx.doi.org/10.2196/33335 Text en ©Christo El Morr, Pierre Maret, Fabrice Muhlenbach, Dhayananth Dharmalingam, Rediet Tadesse, Alexandra Creighton, Bushra Kundi, Alexis Buettgen, Thumeka Mgwigwi, Serban Dinca-Panaitescu, Enakshi Dua, Rachel Gorman. Originally published in JMIR Formative Research (https://formative.jmir.org), 05.11.2021. https://creativecommons.org/licenses/by/4.0/This is an open-access article distributed under the terms of the Creative Commons Attribution License (https://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work, first published in JMIR Formative Research, is properly cited. The complete bibliographic information, a link to the original publication on https://formative.jmir.org, as well as this copyright and license information must be included.
spellingShingle Original Paper
El Morr, Christo
Maret, Pierre
Muhlenbach, Fabrice
Dharmalingam, Dhayananth
Tadesse, Rediet
Creighton, Alexandra
Kundi, Bushra
Buettgen, Alexis
Mgwigwi, Thumeka
Dinca-Panaitescu, Serban
Dua, Enakshi
Gorman, Rachel
A Virtual Community for Disability Advocacy: Development of a Searchable Artificial Intelligence–Supported Platform
title A Virtual Community for Disability Advocacy: Development of a Searchable Artificial Intelligence–Supported Platform
title_full A Virtual Community for Disability Advocacy: Development of a Searchable Artificial Intelligence–Supported Platform
title_fullStr A Virtual Community for Disability Advocacy: Development of a Searchable Artificial Intelligence–Supported Platform
title_full_unstemmed A Virtual Community for Disability Advocacy: Development of a Searchable Artificial Intelligence–Supported Platform
title_short A Virtual Community for Disability Advocacy: Development of a Searchable Artificial Intelligence–Supported Platform
title_sort virtual community for disability advocacy: development of a searchable artificial intelligence–supported platform
topic Original Paper
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8663581/
https://www.ncbi.nlm.nih.gov/pubmed/34738910
http://dx.doi.org/10.2196/33335
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