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Remote Digital Psychiatry for Mobile Mental Health Assessment and Therapy: MindLogger Platform Development Study

BACKGROUND: Universal access to assessment and treatment of mental health and learning disorders remains a significant and unmet need. There are many people without access to care because of economic, geographic, and cultural barriers, as well as the limited availability of clinical experts who coul...

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Autores principales: Klein, Arno, Clucas, Jon, Krishnakumar, Anirudh, Ghosh, Satrajit S, Van Auken, Wilhelm, Thonet, Benjamin, Sabram, Ihor, Acuna, Nino, Keshavan, Anisha, Rossiter, Henry, Xiao, Yao, Semenuta, Sergey, Badioli, Alessandra, Konishcheva, Kseniia, Abraham, Sanu Ann, Alexander, Lindsay M, Merikangas, Kathleen R, Swendsen, Joel, Lindner, Ariel B, Milham, Michael P
Formato: Online Artículo Texto
Lenguaje:English
Publicado: JMIR Publications 2021
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8663601/
https://www.ncbi.nlm.nih.gov/pubmed/34762054
http://dx.doi.org/10.2196/22369
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author Klein, Arno
Clucas, Jon
Krishnakumar, Anirudh
Ghosh, Satrajit S
Van Auken, Wilhelm
Thonet, Benjamin
Sabram, Ihor
Acuna, Nino
Keshavan, Anisha
Rossiter, Henry
Xiao, Yao
Semenuta, Sergey
Badioli, Alessandra
Konishcheva, Kseniia
Abraham, Sanu Ann
Alexander, Lindsay M
Merikangas, Kathleen R
Swendsen, Joel
Lindner, Ariel B
Milham, Michael P
author_facet Klein, Arno
Clucas, Jon
Krishnakumar, Anirudh
Ghosh, Satrajit S
Van Auken, Wilhelm
Thonet, Benjamin
Sabram, Ihor
Acuna, Nino
Keshavan, Anisha
Rossiter, Henry
Xiao, Yao
Semenuta, Sergey
Badioli, Alessandra
Konishcheva, Kseniia
Abraham, Sanu Ann
Alexander, Lindsay M
Merikangas, Kathleen R
Swendsen, Joel
Lindner, Ariel B
Milham, Michael P
author_sort Klein, Arno
collection PubMed
description BACKGROUND: Universal access to assessment and treatment of mental health and learning disorders remains a significant and unmet need. There are many people without access to care because of economic, geographic, and cultural barriers, as well as the limited availability of clinical experts who could help advance our understanding and treatment of mental health. OBJECTIVE: This study aims to create an open, configurable software platform to build clinical measures, mobile assessments, tasks, and interventions without programming expertise. Specifically, our primary requirements include an administrator interface for creating and scheduling recurring and customized questionnaires where end users receive and respond to scheduled notifications via an iOS or Android app on a mobile device. Such a platform would help relieve overwhelmed health systems and empower remote and disadvantaged subgroups in need of accurate and effective information, assessment, and care. This platform has the potential to advance scientific research by supporting the collection of data with instruments tailored to specific scientific questions from large, distributed, and diverse populations. METHODS: We searched for products that satisfy these requirements. We designed and developed a new software platform called MindLogger, which exceeds the requirements. To demonstrate the platform’s configurability, we built multiple applets (collections of activities) within the MindLogger mobile app and deployed several of them, including a comprehensive set of assessments underway in a large-scale, longitudinal mental health study. RESULTS: Of the hundreds of products we researched, we found 10 that met our primary requirements with 4 that support end-to-end encryption, 2 that enable restricted access to individual users’ data, 1 that provides open-source software, and none that satisfy all three. We compared features related to information presentation and data capture capabilities; privacy and security; and access to the product, code, and data. We successfully built MindLogger mobile and web applications, as well as web browser–based tools for building and editing new applets and for administering them to end users. MindLogger has end-to-end encryption, enables restricted access, is open source, and supports a variety of data collection features. One applet is currently collecting data from children and adolescents in our mental health study, and other applets are in different stages of testing and deployment for use in clinical and research settings. CONCLUSIONS: We demonstrated the flexibility and applicability of the MindLogger platform through its deployment in a large-scale, longitudinal, mobile mental health study and by building a variety of other mental health–related applets. With this release, we encourage a broad range of users to apply the MindLogger platform to create and test applets to advance health care and scientific research. We hope that increasing the availability of applets designed to assess and administer interventions will facilitate access to health care in the general population.
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spelling pubmed-86636012022-01-05 Remote Digital Psychiatry for Mobile Mental Health Assessment and Therapy: MindLogger Platform Development Study Klein, Arno Clucas, Jon Krishnakumar, Anirudh Ghosh, Satrajit S Van Auken, Wilhelm Thonet, Benjamin Sabram, Ihor Acuna, Nino Keshavan, Anisha Rossiter, Henry Xiao, Yao Semenuta, Sergey Badioli, Alessandra Konishcheva, Kseniia Abraham, Sanu Ann Alexander, Lindsay M Merikangas, Kathleen R Swendsen, Joel Lindner, Ariel B Milham, Michael P J Med Internet Res Original Paper BACKGROUND: Universal access to assessment and treatment of mental health and learning disorders remains a significant and unmet need. There are many people without access to care because of economic, geographic, and cultural barriers, as well as the limited availability of clinical experts who could help advance our understanding and treatment of mental health. OBJECTIVE: This study aims to create an open, configurable software platform to build clinical measures, mobile assessments, tasks, and interventions without programming expertise. Specifically, our primary requirements include an administrator interface for creating and scheduling recurring and customized questionnaires where end users receive and respond to scheduled notifications via an iOS or Android app on a mobile device. Such a platform would help relieve overwhelmed health systems and empower remote and disadvantaged subgroups in need of accurate and effective information, assessment, and care. This platform has the potential to advance scientific research by supporting the collection of data with instruments tailored to specific scientific questions from large, distributed, and diverse populations. METHODS: We searched for products that satisfy these requirements. We designed and developed a new software platform called MindLogger, which exceeds the requirements. To demonstrate the platform’s configurability, we built multiple applets (collections of activities) within the MindLogger mobile app and deployed several of them, including a comprehensive set of assessments underway in a large-scale, longitudinal mental health study. RESULTS: Of the hundreds of products we researched, we found 10 that met our primary requirements with 4 that support end-to-end encryption, 2 that enable restricted access to individual users’ data, 1 that provides open-source software, and none that satisfy all three. We compared features related to information presentation and data capture capabilities; privacy and security; and access to the product, code, and data. We successfully built MindLogger mobile and web applications, as well as web browser–based tools for building and editing new applets and for administering them to end users. MindLogger has end-to-end encryption, enables restricted access, is open source, and supports a variety of data collection features. One applet is currently collecting data from children and adolescents in our mental health study, and other applets are in different stages of testing and deployment for use in clinical and research settings. CONCLUSIONS: We demonstrated the flexibility and applicability of the MindLogger platform through its deployment in a large-scale, longitudinal, mobile mental health study and by building a variety of other mental health–related applets. With this release, we encourage a broad range of users to apply the MindLogger platform to create and test applets to advance health care and scientific research. We hope that increasing the availability of applets designed to assess and administer interventions will facilitate access to health care in the general population. JMIR Publications 2021-11-11 /pmc/articles/PMC8663601/ /pubmed/34762054 http://dx.doi.org/10.2196/22369 Text en ©Arno Klein, Jon Clucas, Anirudh Krishnakumar, Satrajit S Ghosh, Wilhelm Van Auken, Benjamin Thonet, Ihor Sabram, Nino Acuna, Anisha Keshavan, Henry Rossiter, Yao Xiao, Sergey Semenuta, Alessandra Badioli, Kseniia Konishcheva, Sanu Ann Abraham, Lindsay M Alexander, Kathleen R Merikangas, Joel Swendsen, Ariel B Lindner, Michael P Milham. Originally published in the Journal of Medical Internet Research (https://www.jmir.org), 11.11.2021. https://creativecommons.org/licenses/by/4.0/This is an open-access article distributed under the terms of the Creative Commons Attribution License (https://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work, first published in the Journal of Medical Internet Research, is properly cited. The complete bibliographic information, a link to the original publication on https://www.jmir.org/, as well as this copyright and license information must be included.
spellingShingle Original Paper
Klein, Arno
Clucas, Jon
Krishnakumar, Anirudh
Ghosh, Satrajit S
Van Auken, Wilhelm
Thonet, Benjamin
Sabram, Ihor
Acuna, Nino
Keshavan, Anisha
Rossiter, Henry
Xiao, Yao
Semenuta, Sergey
Badioli, Alessandra
Konishcheva, Kseniia
Abraham, Sanu Ann
Alexander, Lindsay M
Merikangas, Kathleen R
Swendsen, Joel
Lindner, Ariel B
Milham, Michael P
Remote Digital Psychiatry for Mobile Mental Health Assessment and Therapy: MindLogger Platform Development Study
title Remote Digital Psychiatry for Mobile Mental Health Assessment and Therapy: MindLogger Platform Development Study
title_full Remote Digital Psychiatry for Mobile Mental Health Assessment and Therapy: MindLogger Platform Development Study
title_fullStr Remote Digital Psychiatry for Mobile Mental Health Assessment and Therapy: MindLogger Platform Development Study
title_full_unstemmed Remote Digital Psychiatry for Mobile Mental Health Assessment and Therapy: MindLogger Platform Development Study
title_short Remote Digital Psychiatry for Mobile Mental Health Assessment and Therapy: MindLogger Platform Development Study
title_sort remote digital psychiatry for mobile mental health assessment and therapy: mindlogger platform development study
topic Original Paper
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8663601/
https://www.ncbi.nlm.nih.gov/pubmed/34762054
http://dx.doi.org/10.2196/22369
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