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A Mixed Methods Study of Hysterectomy in a U.S. Sample of Deaf Women Who Use American Sign Language

Background: Hysterectomy is one of the most common procedures performed in the United States. Yet, we know nothing about deaf women's experiences with hysterectomy. The study aims to establish a prevalence of hysterectomy among deaf women and provide insight into the experiences of those who ha...

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Autores principales: Jacobs, Katja, Minakawa, Ai, Rao, Sowmya R., Kushalnagar, Poorna
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Mary Ann Liebert, Inc., publishers 2021
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8665275/
https://www.ncbi.nlm.nih.gov/pubmed/34909763
http://dx.doi.org/10.1089/whr.2021.0081
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author Jacobs, Katja
Minakawa, Ai
Rao, Sowmya R.
Kushalnagar, Poorna
author_facet Jacobs, Katja
Minakawa, Ai
Rao, Sowmya R.
Kushalnagar, Poorna
author_sort Jacobs, Katja
collection PubMed
description Background: Hysterectomy is one of the most common procedures performed in the United States. Yet, we know nothing about deaf women's experiences with hysterectomy. The study aims to establish a prevalence of hysterectomy among deaf women and provide insight into the experiences of those who have undergone hysterectomy. Materials and Methods: Quantitative data (n = 195; 27% Black, Indigenous, People of Color) were collected through a bilingual online patient-reported outcomes survey and reproductive health questions from the National Health and Nutrition Examination Survey (NHANES) between November 2019 and March 2020. Semistructured interviews were conducted between March and April 2021 with a smaller sample of deaf women who underwent hysterectomy. A multivariable logistic regression model identified the relationship between health care history and sociodemographic factors, while qualitative interview data were used to understand deaf women's experiences with hysterectomy. Results: Of the 195 deaf respondents, 34% underwent hysterectomy (n = 67). Results indicated that the odds of hysterectomy increased for higher age (per year), being African American/Black or Latinx, being married or living with a partner, being overweight or obese, and if communicating with the doctor through English writing or others. Qualitative interviews were conducted with eight women who provided consent to participate. Although all women reported improved quality of life posthysterectomy, patient-centered experience and decision making before hysterectomy were highly dependent on access to communication, information sources, and social support. Conclusions: Prioritizing the needs of deaf women leading up to, during, and after hysterectomy has the potential to improve overall experience with hysterectomy and patient–clinician communication.
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spelling pubmed-86652752021-12-13 A Mixed Methods Study of Hysterectomy in a U.S. Sample of Deaf Women Who Use American Sign Language Jacobs, Katja Minakawa, Ai Rao, Sowmya R. Kushalnagar, Poorna Womens Health Rep (New Rochelle) Original Article Background: Hysterectomy is one of the most common procedures performed in the United States. Yet, we know nothing about deaf women's experiences with hysterectomy. The study aims to establish a prevalence of hysterectomy among deaf women and provide insight into the experiences of those who have undergone hysterectomy. Materials and Methods: Quantitative data (n = 195; 27% Black, Indigenous, People of Color) were collected through a bilingual online patient-reported outcomes survey and reproductive health questions from the National Health and Nutrition Examination Survey (NHANES) between November 2019 and March 2020. Semistructured interviews were conducted between March and April 2021 with a smaller sample of deaf women who underwent hysterectomy. A multivariable logistic regression model identified the relationship between health care history and sociodemographic factors, while qualitative interview data were used to understand deaf women's experiences with hysterectomy. Results: Of the 195 deaf respondents, 34% underwent hysterectomy (n = 67). Results indicated that the odds of hysterectomy increased for higher age (per year), being African American/Black or Latinx, being married or living with a partner, being overweight or obese, and if communicating with the doctor through English writing or others. Qualitative interviews were conducted with eight women who provided consent to participate. Although all women reported improved quality of life posthysterectomy, patient-centered experience and decision making before hysterectomy were highly dependent on access to communication, information sources, and social support. Conclusions: Prioritizing the needs of deaf women leading up to, during, and after hysterectomy has the potential to improve overall experience with hysterectomy and patient–clinician communication. Mary Ann Liebert, Inc., publishers 2021-11-29 /pmc/articles/PMC8665275/ /pubmed/34909763 http://dx.doi.org/10.1089/whr.2021.0081 Text en © Katja Jacobs et al., 2021; Published by Mary Ann Liebert, Inc. https://creativecommons.org/licenses/by/4.0/This Open Access article is distributed under the terms of the Creative Commons License [CC-BY] (http://creativecommons.org/licenses/by/4.0 (https://creativecommons.org/licenses/by/4.0/) ), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.
spellingShingle Original Article
Jacobs, Katja
Minakawa, Ai
Rao, Sowmya R.
Kushalnagar, Poorna
A Mixed Methods Study of Hysterectomy in a U.S. Sample of Deaf Women Who Use American Sign Language
title A Mixed Methods Study of Hysterectomy in a U.S. Sample of Deaf Women Who Use American Sign Language
title_full A Mixed Methods Study of Hysterectomy in a U.S. Sample of Deaf Women Who Use American Sign Language
title_fullStr A Mixed Methods Study of Hysterectomy in a U.S. Sample of Deaf Women Who Use American Sign Language
title_full_unstemmed A Mixed Methods Study of Hysterectomy in a U.S. Sample of Deaf Women Who Use American Sign Language
title_short A Mixed Methods Study of Hysterectomy in a U.S. Sample of Deaf Women Who Use American Sign Language
title_sort mixed methods study of hysterectomy in a u.s. sample of deaf women who use american sign language
topic Original Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8665275/
https://www.ncbi.nlm.nih.gov/pubmed/34909763
http://dx.doi.org/10.1089/whr.2021.0081
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