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Study protocol for a randomised clinical trial of a decision aid and values clarification method for parents of a fetus or neonate diagnosed with a life-threatening congenital heart defect
INTRODUCTION: Parents who receive the diagnosis of a life-threatening, complex heart defect in their fetus or neonate face a difficult choice between pursuing termination (for fetal diagnoses), palliative care or complex surgical interventions. Shared decision making (SDM) is recommended in clinical...
Autores principales: | Delaney, Rebecca K, Pinto, Nelangi M, Ozanne, Elissa M, Stark, Louisa A, Pershing, Mandy L, Thorpe, Alistair, Witteman, Holly O, Thokala, Praveen, Lambert, Linda M, Hansen, Lisa M, Greene, Tom H, Fagerlin, Angela |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
BMJ Publishing Group
2021
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8666895/ https://www.ncbi.nlm.nih.gov/pubmed/34893487 http://dx.doi.org/10.1136/bmjopen-2021-055455 |
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