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Development levels of pediatric palliative care teams and the extent of palliative care understanding and implementation among pediatric oncologists in China
IMPORTANCE: Pediatric palliative care (PPC) is an interdisciplinary collaboration that focuses on the prevention and relief of patient suffering. PPC has emerged as a critical field of medical expertise and practice. However, no information is available regarding the progress of PPC in the Chinese m...
Autores principales: | , , , , , , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
John Wiley and Sons Inc.
2021
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8666946/ https://www.ncbi.nlm.nih.gov/pubmed/34938967 http://dx.doi.org/10.1002/ped4.12291 |
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author | Cai, Siyu Guo, Qiaohong Wang, Xianjing Wang, Ruixin Yang, Peiyi Zhou, Yuchen Luo, Yanhui Zhou, Xuan Peng, Xiaoxia |
author_facet | Cai, Siyu Guo, Qiaohong Wang, Xianjing Wang, Ruixin Yang, Peiyi Zhou, Yuchen Luo, Yanhui Zhou, Xuan Peng, Xiaoxia |
author_sort | Cai, Siyu |
collection | PubMed |
description | IMPORTANCE: Pediatric palliative care (PPC) is an interdisciplinary collaboration that focuses on the prevention and relief of patient suffering. PPC has emerged as a critical field of medical expertise and practice. However, no information is available regarding the progress of PPC in the Chinese mainland. OBJECTIVE: This study investigated the geographic distribution, team structure, and services of PPC teams in the Chinese mainland. It also investigated the level of understanding and implementation among pediatric oncologists regarding PPC. METHODS: The PPC subspecialty group of the Pediatrics Society of the Chinese Medical Association included 45 PPC teams. The team structure and services were investigated using questionnaires mailed to the team leader of each PPC team. In addition, we sent questionnaires regarding the level of PPC understanding and implementation of PPC practices to 170 pediatric oncologists in 11 hospitals. RESULTS: The geographical distribution of PPC teams is uneven in China. Most PPC teams are concentrated in the eastern provincial capital of China. Most PPC teams had limited staff and services. The level of PPC understanding was considerably limited across all demographics; most pediatric oncologists reported “some understanding” (n = 71, 41.8%) or “poor understanding” (n = 50, 29.4%). Only 62.9% of pediatric oncologists had experience providing advice to family members regarding PPC matters. INTERPRETATION: China is currently experiencing a critical shortage of PPC resources. Most pediatric oncologists had a limited understanding of PPC and reported limited practical implementation of PPC, which leads to underutilization of PPC resources. |
format | Online Article Text |
id | pubmed-8666946 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2021 |
publisher | John Wiley and Sons Inc. |
record_format | MEDLINE/PubMed |
spelling | pubmed-86669462021-12-21 Development levels of pediatric palliative care teams and the extent of palliative care understanding and implementation among pediatric oncologists in China Cai, Siyu Guo, Qiaohong Wang, Xianjing Wang, Ruixin Yang, Peiyi Zhou, Yuchen Luo, Yanhui Zhou, Xuan Peng, Xiaoxia Pediatr Investig Original Article IMPORTANCE: Pediatric palliative care (PPC) is an interdisciplinary collaboration that focuses on the prevention and relief of patient suffering. PPC has emerged as a critical field of medical expertise and practice. However, no information is available regarding the progress of PPC in the Chinese mainland. OBJECTIVE: This study investigated the geographic distribution, team structure, and services of PPC teams in the Chinese mainland. It also investigated the level of understanding and implementation among pediatric oncologists regarding PPC. METHODS: The PPC subspecialty group of the Pediatrics Society of the Chinese Medical Association included 45 PPC teams. The team structure and services were investigated using questionnaires mailed to the team leader of each PPC team. In addition, we sent questionnaires regarding the level of PPC understanding and implementation of PPC practices to 170 pediatric oncologists in 11 hospitals. RESULTS: The geographical distribution of PPC teams is uneven in China. Most PPC teams are concentrated in the eastern provincial capital of China. Most PPC teams had limited staff and services. The level of PPC understanding was considerably limited across all demographics; most pediatric oncologists reported “some understanding” (n = 71, 41.8%) or “poor understanding” (n = 50, 29.4%). Only 62.9% of pediatric oncologists had experience providing advice to family members regarding PPC matters. INTERPRETATION: China is currently experiencing a critical shortage of PPC resources. Most pediatric oncologists had a limited understanding of PPC and reported limited practical implementation of PPC, which leads to underutilization of PPC resources. John Wiley and Sons Inc. 2021-09-27 /pmc/articles/PMC8666946/ /pubmed/34938967 http://dx.doi.org/10.1002/ped4.12291 Text en © 2021 Chinese Medical Association. Pediatric Investigation published by John Wiley & Sons Australia, Ltd on behalf of Futang Research Center of Pediatric Development. https://creativecommons.org/licenses/by-nc-nd/4.0/This is an open access article under the terms of the http://creativecommons.org/licenses/by-nc-nd/4.0/ (https://creativecommons.org/licenses/by-nc-nd/4.0/) License, which permits use and distribution in any medium, provided the original work is properly cited, the use is non‐commercial and no modifications or adaptations are made. |
spellingShingle | Original Article Cai, Siyu Guo, Qiaohong Wang, Xianjing Wang, Ruixin Yang, Peiyi Zhou, Yuchen Luo, Yanhui Zhou, Xuan Peng, Xiaoxia Development levels of pediatric palliative care teams and the extent of palliative care understanding and implementation among pediatric oncologists in China |
title | Development levels of pediatric palliative care teams and the extent of palliative care understanding and implementation among pediatric oncologists in China |
title_full | Development levels of pediatric palliative care teams and the extent of palliative care understanding and implementation among pediatric oncologists in China |
title_fullStr | Development levels of pediatric palliative care teams and the extent of palliative care understanding and implementation among pediatric oncologists in China |
title_full_unstemmed | Development levels of pediatric palliative care teams and the extent of palliative care understanding and implementation among pediatric oncologists in China |
title_short | Development levels of pediatric palliative care teams and the extent of palliative care understanding and implementation among pediatric oncologists in China |
title_sort | development levels of pediatric palliative care teams and the extent of palliative care understanding and implementation among pediatric oncologists in china |
topic | Original Article |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8666946/ https://www.ncbi.nlm.nih.gov/pubmed/34938967 http://dx.doi.org/10.1002/ped4.12291 |
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