Cargando…

The Voice of Parents of Children With a Congenital Anomaly – A EUROlinkCAT Study

EUROlinkCAT aims to investigate the health and educational outcomes of children with congenital anomalies for the first 10 years of their lives. We also aim to facilitate the development of a more reciprocal relationship between families with children with congenital anomalies, health and social car...

Descripción completa

Detalles Bibliográficos
Autores principales:	Holm, Kristina Garne, Neville, Amanda Julie, Pierini, Anna, Latos Bielenska, Anna, Jamry-Dziurla, Anna, Cavero-Carbonell, Clara, Garne, Ester, Clemensen, Jane
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	Frontiers Media S.A. 2021
Materias:	Pediatrics
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8667600/ https://www.ncbi.nlm.nih.gov/pubmed/34912754 http://dx.doi.org/10.3389/fped.2021.654883

Ejemplares similares

Information needs of parents of children with congenital anomalies across Europe: a EUROlinkCAT survey
por: Marcus, Elena, et al.
Publicado: (2022)

Accuracy of congenital anomaly coding in live birth children recorded in European health care databases, a EUROlinkCAT study
por: Bakker, Marian K., et al.
Publicado: (2023)

EUROlinkCAT protocol for a European population-based data linkage study investigating the survival, morbidity and education of children with congenital anomalies
por: Morris, Joan K, et al.
Publicado: (2021)

The use of health care databases for surveillance of congenital anomalies: A EUROlinkCAT study
por: Loane, M, et al.
Publicado: (2023)

Prescription of cardiovascular medication in children with congenital heart defects across six European Regions from 2000 to 2014: data from the EUROlinkCAT population-based cohort study
por: Damkjaer, Mads, et al.
Publicado: (2022)

Linking a European cohort of children born with congenital anomalies to vital statistics and mortality records: A EUROlinkCAT study
por: Loane, M., et al.
Publicado: (2021)

COVID-19 and children with congenital anomalies: a European survey of parents’ experiences of healthcare services
por: Latos-Bieleńska, Anna, et al.
Publicado: (2022)

Using Social Media as a Research Tool for a Bespoke Web-Based Platform for Stakeholders of Children With Congenital Anomalies: Development Study
por: Sinclair, Marlene, et al.
Publicado: (2021)

Epidemiology of Multiple Congenital Anomalies Before and After Implementation of a Nationwide Prenatal Screening Program in Denmark
por: Toxværd, Marlene E., et al.
Publicado: (2021)

Exploring Research Priorities of Parents Who Have Children With Down Syndrome, Cleft Lip With or Without Cleft Palate, Congenital Heart Defects, or Spina Bifida Using ConnectEpeople: A Social Media Coproduction Research Study
por: Sinclair, Marlene, et al.
Publicado: (2019)

EUROmediCAT signal detection: an evaluation of selected congenital anomaly‐medication associations
por: Given, Joanne E., et al.
Publicado: (2016)

Improving Information on Maternal Medication Use by Linking Prescription Data to Congenital Anomaly Registers: A EUROmediCAT Study
por: de Jonge, Linda, et al.
Publicado: (2015)

Prescriptions for insulin and insulin analogues in children with and without major congenital anomalies: a data linkage cohort study across six European regions
por: Given, Joanne, et al.
Publicado: (2023)

Participatory design methods for the development of a clinical telehealth service for neonatal homecare
por: Garne Holm, Kristina, et al.
Publicado: (2017)

Telemedicine in Neonatal Home Care: Identifying Parental Needs Through Participatory Design
por: Garne, Kristina, et al.
Publicado: (2016)

Prevention of Neural Tube Defects in Europe: A Public Health Failure
por: Morris, Joan K., et al.
Publicado: (2021)

Antiasthmatic prescriptions in children with and without congenital anomalies: a population-based study
por: Divin, Natalie, et al.
Publicado: (2023)

Hospital Length of Stay and Surgery among European Children with Rare Structural Congenital Anomalies—A Population-Based Data Linkage Study
por: Garne, Ester, et al.
Publicado: (2023)

Lamotrigine use in pregnancy and risk of orofacial cleft and other congenital anomalies
por: Dolk, Helen, et al.
Publicado: (2016)

Gastrostomy and congenital anomalies: a European population-based study
por: Garne, Ester, et al.
Publicado: (2022)

Ethics and legal requirements for data linkage in 14 European countries for children with congenital anomalies
por: Claridge, Hugh, et al.
Publicado: (2023)

Anti-asthmatic prescriptions in children with and without congenital anomalies: a European data linkage study.
por: Divin, Natalie, et al.
Publicado: (2022)

Case Report: Sequential Liver After Kidney Transplantation in a Patient With Sensenbrenner Syndrome (Cranioectodermal Dysplasia)
por: Ryżko, Joanna, et al.
Publicado: (2022)

Beta-Blocker Use in Pregnancy and Risk of Specific Congenital Anomalies: A European Case-Malformed Control Study
por: Bergman, Jorieke E. H., et al.
Publicado: (2017)

Metformin exposure in first trimester of pregnancy and risk of all or specific congenital anomalies: exploratory case-control study
por: Given, Joanne E, et al.
Publicado: (2018)

Sociodemographic Differences in Prenatal Diagnosis of Chromosomal Anomalies: A Population-Based Study
por: Santoro, Michele, et al.
Publicado: (2021)

Preterm birth and prescriptions for cardiovascular, antiseizure, antibiotics and antiasthmatic medication in children up to 10 years of age: a population-based data linkage cohort study across six European regions
por: Damkjaer, Mads, et al.
Publicado: (2022)

The Risk of Specific Congenital Anomalies in Relation to Newer Antiepileptic Drugs: A Literature Review
por: de Jong, Josta, et al.
Publicado: (2016)

Non-occupational exposure to paint fumes during pregnancy and risk of congenital anomalies: a cohort study
por: Hjortebjerg, Dorrit, et al.
Publicado: (2012)

Causes of death in children with congenital anomalies up to age 10 in eight European countries
por: Rissmann, Anke, et al.
Publicado: (2023)

Survival of children with rare structural congenital anomalies: a multi-registry cohort study
por: Coi, Alessio, et al.
Publicado: (2022)

The quality and the accuracy of codes for terminations of pregnancy for fetal anomalies recorded in hospital databases in three countries in northern Europe
por: Garne, Ester, et al.
Publicado: (2022)

Estimating Global Burden of Disease due to congenital anomaly: an analysis of European data
por: Boyle, Breidge, et al.
Publicado: (2018)

Prevalence of vascular disruption anomalies and association with young maternal age: A EUROCAT study to compare the United Kingdom with other European countries
por: Morris, Joan K., et al.
Publicado: (2022)

Creating a population-based cohort of children born with and without congenital anomalies using birth data matched to hospital discharge databases in 11 European regions: Assessment of linkage success and data quality
por: Loane, Maria, et al.
Publicado: (2023)

Isolated brachydactyly type E caused by a HOXD13 nonsense mutation: a case report
por: Jamsheer, Aleksander, et al.
Publicado: (2012)

Hospital length of stay among children with and without congenital anomalies across 11 European regions—A population-based data linkage study
por: Urhoj, Stine Kjaer, et al.
Publicado: (2022)

Trends in congenital anomalies in Europe from 1980 to 2012
por: Morris, Joan K., et al.
Publicado: (2018)

Temporal and geographical variations in survival of children born with congenital anomalies in Europe: A multi‐registry cohort study
por: Santoro, Michele, et al.
Publicado: (2022)

Prevalence and risk of Down syndrome in monozygotic and dizygotic multiple pregnancies in Europe: implications for prenatal screening
por: Boyle, B, et al.
Publicado: (2014)

Cannot write session to /tmp/vufind_sessions/sess_7idab815j7st2mbre7vfjkcffq