Cargando…

Increasing the Focus on Children's Complex and Integrated Care Needs: A Position Paper of the European Academy of Pediatrics

There is wide variation in terminology used to refer to children living with complex needs, across clinical, research and policy settings. It is important to seek to reconcile this variation to support the effective development of programmes of care for this group of children and their families. The...

Descripción completa

Detalles Bibliográficos
Autores principales: Brenner, Maria, Greene, Josephine, Doyle, Carmel, Koletzko, Berthold, del Torso, Stefano, Bambir, Ivan, De Guchtenaere, Ann, Polychronakis, Theofilos, Reali, Laura, Hadjipanayis, Adamos A.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Frontiers Media S.A. 2021
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8671931/
https://www.ncbi.nlm.nih.gov/pubmed/34926344
http://dx.doi.org/10.3389/fped.2021.758415
_version_ 1784615251218530304
author Brenner, Maria
Greene, Josephine
Doyle, Carmel
Koletzko, Berthold
del Torso, Stefano
Bambir, Ivan
De Guchtenaere, Ann
Polychronakis, Theofilos
Reali, Laura
Hadjipanayis, Adamos A.
author_facet Brenner, Maria
Greene, Josephine
Doyle, Carmel
Koletzko, Berthold
del Torso, Stefano
Bambir, Ivan
De Guchtenaere, Ann
Polychronakis, Theofilos
Reali, Laura
Hadjipanayis, Adamos A.
author_sort Brenner, Maria
collection PubMed
description There is wide variation in terminology used to refer to children living with complex needs, across clinical, research and policy settings. It is important to seek to reconcile this variation to support the effective development of programmes of care for this group of children and their families. The European Academy of Pediatrics (EAP) established a multidisciplinary Working Group on Complex Care and the initial work of this group examined how complex care is defined in the literature. A scoping review was conducted which yielded 87 papers with multiple terms found that refer to children living with complex needs. We found that elements of integrated care, an essential component of care delivery to these children, were repeatedly referred to, though it was never specifically incorporated into a term to describe complex care needs. This is essential for practice and policy, to continuously assert the need for integrated care where a complex care need exists. We propose the use of the term Complex and Integrated Care Needs as a suitable term to refer to children with varying levels of complexity who require continuity of care across a variety of health and social care settings.
format Online
Article
Text
id pubmed-8671931
institution National Center for Biotechnology Information
language English
publishDate 2021
publisher Frontiers Media S.A.
record_format MEDLINE/PubMed
spelling pubmed-86719312021-12-16 Increasing the Focus on Children's Complex and Integrated Care Needs: A Position Paper of the European Academy of Pediatrics Brenner, Maria Greene, Josephine Doyle, Carmel Koletzko, Berthold del Torso, Stefano Bambir, Ivan De Guchtenaere, Ann Polychronakis, Theofilos Reali, Laura Hadjipanayis, Adamos A. Front Pediatr Pediatrics There is wide variation in terminology used to refer to children living with complex needs, across clinical, research and policy settings. It is important to seek to reconcile this variation to support the effective development of programmes of care for this group of children and their families. The European Academy of Pediatrics (EAP) established a multidisciplinary Working Group on Complex Care and the initial work of this group examined how complex care is defined in the literature. A scoping review was conducted which yielded 87 papers with multiple terms found that refer to children living with complex needs. We found that elements of integrated care, an essential component of care delivery to these children, were repeatedly referred to, though it was never specifically incorporated into a term to describe complex care needs. This is essential for practice and policy, to continuously assert the need for integrated care where a complex care need exists. We propose the use of the term Complex and Integrated Care Needs as a suitable term to refer to children with varying levels of complexity who require continuity of care across a variety of health and social care settings. Frontiers Media S.A. 2021-12-01 /pmc/articles/PMC8671931/ /pubmed/34926344 http://dx.doi.org/10.3389/fped.2021.758415 Text en Copyright © 2021 Brenner, Greene, Doyle, Koletzko, del Torso, Bambir, De Guchtenaere, Polychronakis, Reali and Hadjipanayis. https://creativecommons.org/licenses/by/4.0/This is an open-access article distributed under the terms of the Creative Commons Attribution License (CC BY). The use, distribution or reproduction in other forums is permitted, provided the original author(s) and the copyright owner(s) are credited and that the original publication in this journal is cited, in accordance with accepted academic practice. No use, distribution or reproduction is permitted which does not comply with these terms.
spellingShingle Pediatrics
Brenner, Maria
Greene, Josephine
Doyle, Carmel
Koletzko, Berthold
del Torso, Stefano
Bambir, Ivan
De Guchtenaere, Ann
Polychronakis, Theofilos
Reali, Laura
Hadjipanayis, Adamos A.
Increasing the Focus on Children's Complex and Integrated Care Needs: A Position Paper of the European Academy of Pediatrics
title Increasing the Focus on Children's Complex and Integrated Care Needs: A Position Paper of the European Academy of Pediatrics
title_full Increasing the Focus on Children's Complex and Integrated Care Needs: A Position Paper of the European Academy of Pediatrics
title_fullStr Increasing the Focus on Children's Complex and Integrated Care Needs: A Position Paper of the European Academy of Pediatrics
title_full_unstemmed Increasing the Focus on Children's Complex and Integrated Care Needs: A Position Paper of the European Academy of Pediatrics
title_short Increasing the Focus on Children's Complex and Integrated Care Needs: A Position Paper of the European Academy of Pediatrics
title_sort increasing the focus on children's complex and integrated care needs: a position paper of the european academy of pediatrics
topic Pediatrics
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8671931/
https://www.ncbi.nlm.nih.gov/pubmed/34926344
http://dx.doi.org/10.3389/fped.2021.758415
work_keys_str_mv AT brennermaria increasingthefocusonchildrenscomplexandintegratedcareneedsapositionpaperoftheeuropeanacademyofpediatrics
AT greenejosephine increasingthefocusonchildrenscomplexandintegratedcareneedsapositionpaperoftheeuropeanacademyofpediatrics
AT doylecarmel increasingthefocusonchildrenscomplexandintegratedcareneedsapositionpaperoftheeuropeanacademyofpediatrics
AT koletzkoberthold increasingthefocusonchildrenscomplexandintegratedcareneedsapositionpaperoftheeuropeanacademyofpediatrics
AT deltorsostefano increasingthefocusonchildrenscomplexandintegratedcareneedsapositionpaperoftheeuropeanacademyofpediatrics
AT bambirivan increasingthefocusonchildrenscomplexandintegratedcareneedsapositionpaperoftheeuropeanacademyofpediatrics
AT deguchtenaereann increasingthefocusonchildrenscomplexandintegratedcareneedsapositionpaperoftheeuropeanacademyofpediatrics
AT polychronakistheofilos increasingthefocusonchildrenscomplexandintegratedcareneedsapositionpaperoftheeuropeanacademyofpediatrics
AT realilaura increasingthefocusonchildrenscomplexandintegratedcareneedsapositionpaperoftheeuropeanacademyofpediatrics
AT hadjipanayisadamosa increasingthefocusonchildrenscomplexandintegratedcareneedsapositionpaperoftheeuropeanacademyofpediatrics