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Increasing the Focus on Children's Complex and Integrated Care Needs: A Position Paper of the European Academy of Pediatrics
There is wide variation in terminology used to refer to children living with complex needs, across clinical, research and policy settings. It is important to seek to reconcile this variation to support the effective development of programmes of care for this group of children and their families. The...
Autores principales: | , , , , , , , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Frontiers Media S.A.
2021
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8671931/ https://www.ncbi.nlm.nih.gov/pubmed/34926344 http://dx.doi.org/10.3389/fped.2021.758415 |
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author | Brenner, Maria Greene, Josephine Doyle, Carmel Koletzko, Berthold del Torso, Stefano Bambir, Ivan De Guchtenaere, Ann Polychronakis, Theofilos Reali, Laura Hadjipanayis, Adamos A. |
author_facet | Brenner, Maria Greene, Josephine Doyle, Carmel Koletzko, Berthold del Torso, Stefano Bambir, Ivan De Guchtenaere, Ann Polychronakis, Theofilos Reali, Laura Hadjipanayis, Adamos A. |
author_sort | Brenner, Maria |
collection | PubMed |
description | There is wide variation in terminology used to refer to children living with complex needs, across clinical, research and policy settings. It is important to seek to reconcile this variation to support the effective development of programmes of care for this group of children and their families. The European Academy of Pediatrics (EAP) established a multidisciplinary Working Group on Complex Care and the initial work of this group examined how complex care is defined in the literature. A scoping review was conducted which yielded 87 papers with multiple terms found that refer to children living with complex needs. We found that elements of integrated care, an essential component of care delivery to these children, were repeatedly referred to, though it was never specifically incorporated into a term to describe complex care needs. This is essential for practice and policy, to continuously assert the need for integrated care where a complex care need exists. We propose the use of the term Complex and Integrated Care Needs as a suitable term to refer to children with varying levels of complexity who require continuity of care across a variety of health and social care settings. |
format | Online Article Text |
id | pubmed-8671931 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2021 |
publisher | Frontiers Media S.A. |
record_format | MEDLINE/PubMed |
spelling | pubmed-86719312021-12-16 Increasing the Focus on Children's Complex and Integrated Care Needs: A Position Paper of the European Academy of Pediatrics Brenner, Maria Greene, Josephine Doyle, Carmel Koletzko, Berthold del Torso, Stefano Bambir, Ivan De Guchtenaere, Ann Polychronakis, Theofilos Reali, Laura Hadjipanayis, Adamos A. Front Pediatr Pediatrics There is wide variation in terminology used to refer to children living with complex needs, across clinical, research and policy settings. It is important to seek to reconcile this variation to support the effective development of programmes of care for this group of children and their families. The European Academy of Pediatrics (EAP) established a multidisciplinary Working Group on Complex Care and the initial work of this group examined how complex care is defined in the literature. A scoping review was conducted which yielded 87 papers with multiple terms found that refer to children living with complex needs. We found that elements of integrated care, an essential component of care delivery to these children, were repeatedly referred to, though it was never specifically incorporated into a term to describe complex care needs. This is essential for practice and policy, to continuously assert the need for integrated care where a complex care need exists. We propose the use of the term Complex and Integrated Care Needs as a suitable term to refer to children with varying levels of complexity who require continuity of care across a variety of health and social care settings. Frontiers Media S.A. 2021-12-01 /pmc/articles/PMC8671931/ /pubmed/34926344 http://dx.doi.org/10.3389/fped.2021.758415 Text en Copyright © 2021 Brenner, Greene, Doyle, Koletzko, del Torso, Bambir, De Guchtenaere, Polychronakis, Reali and Hadjipanayis. https://creativecommons.org/licenses/by/4.0/This is an open-access article distributed under the terms of the Creative Commons Attribution License (CC BY). The use, distribution or reproduction in other forums is permitted, provided the original author(s) and the copyright owner(s) are credited and that the original publication in this journal is cited, in accordance with accepted academic practice. No use, distribution or reproduction is permitted which does not comply with these terms. |
spellingShingle | Pediatrics Brenner, Maria Greene, Josephine Doyle, Carmel Koletzko, Berthold del Torso, Stefano Bambir, Ivan De Guchtenaere, Ann Polychronakis, Theofilos Reali, Laura Hadjipanayis, Adamos A. Increasing the Focus on Children's Complex and Integrated Care Needs: A Position Paper of the European Academy of Pediatrics |
title | Increasing the Focus on Children's Complex and Integrated Care Needs: A Position Paper of the European Academy of Pediatrics |
title_full | Increasing the Focus on Children's Complex and Integrated Care Needs: A Position Paper of the European Academy of Pediatrics |
title_fullStr | Increasing the Focus on Children's Complex and Integrated Care Needs: A Position Paper of the European Academy of Pediatrics |
title_full_unstemmed | Increasing the Focus on Children's Complex and Integrated Care Needs: A Position Paper of the European Academy of Pediatrics |
title_short | Increasing the Focus on Children's Complex and Integrated Care Needs: A Position Paper of the European Academy of Pediatrics |
title_sort | increasing the focus on children's complex and integrated care needs: a position paper of the european academy of pediatrics |
topic | Pediatrics |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8671931/ https://www.ncbi.nlm.nih.gov/pubmed/34926344 http://dx.doi.org/10.3389/fped.2021.758415 |
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